National Nurses Week

“I help fight ALS because I was blessed with the opportunity to do so.  I have never worked with such a devastating disease and yet a patient population that is so amazingly selfless and courageous.  I consider it an honor …

“Everyone deserves a voice…”

Tuesday, April 16 was World Voice Day, a day to talk about the importance of healthy and effective communication. It’s estimated that approximately 75% of all people diagnosed with ALS will need some form of communication assistance. Communication devices are …

Revised Airlie House ALS Clinical Trial Guidelines

In March 2016, Senda Ajroud-Driss, MD, Director of the Lois Insolia ALS Clinic, Associate Professor of Neurology and Teepu Siddique, MD, Les Turner ALS Foundation/Herbert C. Wenske Professor, Professor of Neurology and Cell and Molecular Biology, were two of 140 …

“They’re like a second family…”

On Saturday, March 9, we honored Mindy Evans-Williams with the Hope Through Caring Award at our annual Hope Through Caring Gala. Mindy has been living with ALS for over two decades, supported by the Foundation every step of the way. …