Join the ALS Registry

In the next year alone, about 5,000 people in the U.S. may be diagnosed with #ALS. The National #ALSRegistry is connecting persons living with ALS with researchers who want to find the causes of the disease, help those diagnosed, and …

Investing in our Future: Funding ALS Research

Each year, the Les Turner ALS Foundation provides a grant to the Les Turner ALS Research and Patient Center at Northwestern Medicine. This grant provides support to the Lois Insolia ALS Clinic as well as researchers looking for answers on …

Radicava FAQs

Les Turner ALS Research and Patient Center at Northwestern Medicine On May 5, the FDA approved a new drug to treat ALS. Radicava™ (also known as Edaravone) is the first approved ALS-specific drug since Riluzole, which was approved 22 years …

New Gene Identified in ALS

(May 15, 2017)- For the first time, a variant in UBQLN4 gene has been associated with Lou Gehrig’s disease or amyotrophic lateral sclerosis (ALS) – a progressive disease resulting in the loss of nerve cells that control muscle movement, which …

April Special Events eNewsletter

Want to stay updated about the latest Foundation events? Subscribe to our mailing list to receive monthly eNewsletters. Read our April Edition to learn more.

April Foundation eNewsletter

Want to stay updated about the latest Foundation news? Subscribe to our mailing list to receive monthly eNewsletters. Read our April Edition to learn more.

Comcast Newsmakers Features Foundation

May is national ALS Awareness month! We need your help to spread the word about the effects of ALS and the Foundation’s role of providing hope and help to those impacted by the disease. Our Executive Director, Andrea Pauls Backman, …