National ALS Registry Updates

As proud partners of the National ALS Registry, Les Turner ALS Foundation Executive Director, Andrea Pauls Backman and Director of Patient Services, Judy Richman, attended the Annual Agency for Toxic Substances and Disease Registry (ATSDR) Meeting in Atlanta this week. …

Every August Until A Cure

In August 2014, a viral phenomenon took over social media feeds across the globe with people accepting the ALS Ice Bucket Challenge. Friends challenging friends, patients challenging celebrities and teenagers challenging grandparents to douse themselves with ice cold water while …

Racing for Awareness

Since Derek Hogg was diagnosed with ALS in 2013, he has become a staple at the Les Turner ALS Foundation’s Strike Out ALS 5k. Whether running, using his son’s stroller for support or peddling a special recumbent bike, Derek defines …

March of Faces Banner

Honor a loved one by including them on a March of Faces banner. The banners travel with the Foundation and are displayed at various events throughout the year as a way to recognize those we have lost to ALS despite …

Personalize Your Care Act

Take action and urge your Representative to support the Personalize Your Care Act (PYCA)! This act was introduced by Earl Blumenauer (D-OR) and Rep. Phil Roe (R-TN) in the US House of Representatives to increase accessibility to and public awareness …