Updates for 2018

New ALS Research Laboratory – The Les Turner ALS Research and Patient Center will add a fourth lab to support the research of the Center Director, Robert Kalb, MD. The lab will focus on activity-dependent development of circuits in the …

2018 Grants to Center

Your advocacy for advancements towards a cure allow us to continue innovative research in 2018. The Foundation will award over $1.1 million to the Center in 2018. This gift will fund six new research grants and continued support of the …

Foundation Holiday Office Hours

Happy Holidays to you and your loved ones! Thank you for making the season brighter for the entire ALS community. The Foundation’s holiday hours are listed below. Office closed: Friday, December 22 Monday, December 25 Friday, December 29 Monday, January …

2017 Year in Review

As 2017 comes to a close, see what you accomplished: You supported research that led to Radicava, the first FDA approved drug in 22 years.You raised over $2 million at events that inspired the ALS community. You educated others and …

Meet the New Center Director: Q&A

Join us in welcoming Robert Kalb, MD, the inaugural Director of the Les Turner ALS Research and Patient Center at Northwestern Medicine and Chief of Neuromuscular Medicine in the Ken & Ruth Davee Department of Neurology. Dr. Kalb has spent …

C.H.A.R.M Through the Holidays

For most people, the holidays are a time of joy and good cheer. But when living with ALS, or providing care for someone who does, holiday activities have the potential to add stress to an otherwise happy season. Over the years, …

Cytokinetics Announces Negative Results from VITALITY-ALS

Cytokinetics announced the endpoints for the clinical trial of tirasemtiv (VITALITY-ALS) had not been met and that further development of the drug was being suspended. We share Cytokinetics, and your, disappointment in this announcement and are grateful for Cytokinetics continued …