Support Services
Connection. Support. And the best resources the ALS community has to offer.
ALS poses steep obstacles — and sometimes the road can feel lonely. The Les Turner ALS Foundation support services were designed to make things a little easier — offering community, comfort and tangible resources for patients and their loved ones. A cure still eludes us — but help is within reach. Our services include:
- The Lois Insolia ALS Clinic at the Les Turner ALS Research and Patient Center at Northwestern Medicine;
- Our Home and Community Services Team, which includes six Patient and Family Advocates (four nurses and two social workers);
- Support groups and other meetings led by experienced professionals;
- Loan banks for communication and medical equipment;
- Walter Boughton Foundation Patient and Family Services Grant Program;
- Dan Nelson ALS Respite Grant Fund;
- Stuart Rosen ALS Transportation Fund;
- Jill and Dennis Smith ALS Education and Awareness Fund;
- Patient resource guide;
- Educational videos and programs;
- Personal support and referral, via telephone and email.
Recently diagnosed with ALS?Contact our Director of Patient Services
Latest News & Resources
Meet the Director of the Les Turner ALS Research and Patient Center at Northwestern Medicine
It is our great pleasure to announce that Robert Kalb, MD from the University of Pennsylvania has been selected as …Read More »Radicava is Now Available for Treatment in U.S
Mitsubishi Tanabe Pharma America, Inc., today announced RADICAVA ™ (edaravone), an intravenous therapy indicated for all adult patients diagnosed with …Read More »Collaboration in Research
A recent publication in Neurology Today highlights the research of Dr. Sabrina Paganoni who is testing a drug to slow the progression …Read More »
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Services Offered:
Home & Community Services Team
The Foundation’s Home and Community Services — which include telephone and in-person support, educational resources and patient and family advocates — are available at no cost to ALS patients and their families in the Chicagoland area and portions of northwest Indiana.
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Lois Insolia ALS Clinic
At the multidisciplinary ALS clinic, trained specialists use a team approach to provide comprehensive treatment. They are dedicated to the total care and support of people with ALS, their families and caregivers. During a visit, patients meet with several members of the team, and each provides input regarding assessment, care planning, education and other health care needs.
National ALS Registry
The Les Turner ALS Foundation is a partner with the National ALS Registry, a program to collect, manage and analyze data about people with ALS and to provide clinical trial information to people living with ALS. It is important to include as many people with the disease as possible to get the most accurate information. Be part of changing the future of ALS.
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