Support Services

Informative Links

The resources below are listed as a service to the ALS community. The Les Turner ALS Foundation does not endorse or recommend information, products or services contained in these sites. You should contact an appropriate medical professional before making decisions about treatment.

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Les Turner ALS Research and Patient Center at Northwestern Medicine
http://www.feinberg.northwestern.edu/sites/alsresearch/

Northwestern University Division of Neuromuscular Medicine
www.neurogenetics.northwestern.edu

Northwestern University Feinberg School of Medicine
www.medschool.northwestern.edu

International Alliance of ALS/MND Associations
www.alsmndalliance.org

Centers for Disease Control’s National ALS Registry
www.cdc.gov/als

 

The ALS Association
www.alsa.org

ALS Society of Canada
www.als.ca

American Academy of Neurology
www.aan.com

Dana Alliance for Brain Initiatives
www.dana.org/brainweb

MND Care (Australia)
www.mndcare.net.au

Muscular Dystrophy Association
www.mda.org

National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov

World Federation of Neurology
www.wfnals.org

World Federation of Neurology’s ALSUntangled Program
www.wfnals.org/alsu.html

ALS Finding a Cure
www.alsfindingacure.org

The ALS Hope Foundation
www.alshopefoundation.org

ALS Therapy Development Institute (ALSTDI)
www.als.net

ALS Untangled
www.alsuntangled.com

Project A.L.S.
www.projectals.org

Team Gleason
www.teamgleason.org

Clinical Trials: ALSTDI’s List of Open Trials
www.als.net/ALS-Research/ALS-Clinical-Trials/

ClinicalTrials.gov: a registry of federally and privately supported clinical trials
www.clinicaltrials.gov

Tirasemtiv (VITALITY-ALS)
cytokinetics.com/tirasemtiv

Nuedexta
www.nuedexta.com

Rilutek
www.rilutek.co
m

Synapse Biomedical: Diaphram Pacying System
www.synapsebiomedical.com
www.synapsebiomedical.com/news/media/New-Hope-ALS.shtml

Feeding Tube Educational Videos

Video 1
Video 2

Information for Non-invasive Ventilator Users

Battery Geeks
www.thebatterygeeks.com

Battery Power Solutions
www.batterypowersolutions.net

VPAP Supplies
www.cpapsupplyusa.com
www.cpap.com

The CPAP Store
www.cpapman.com

BIPAP Mask Liners/Comfort Aids
www.remzzzs.com

Pad A Cheek Mask Pads
www.padacheeck.com

Res Med Masks/Products
www.resmed.com

Respironics
www.trilogy100.respironics.com

Climate Control on iVAPS or VPAP
ResMed – Video

Controlling Nasal Congestion with PAP
Ohio Sleep Medicine Institute – Video

Sleep Comfort Care Systems
www.sleepcomfortcaresystem.com

Information for Ventilator Users

International Vent Users Networkh5
www.ventusers.org

Information about Diaphragm Pacers

Exploration Health – Video
Synapse Biomedical

Information on Airway Clearance Equipment/Use

Cough Assist
Philips Respironics
The Vest” – Video

Foundation Respiratory Videos

Video 1
Video 2
Video 3
Ventilation: The Decision Making Process

One of the core pieces of the Foundation’s patient programs is the Stuart Rosen Transportation Program. This program helps reduce expenses associated with transportation costs to people with ALS (PALS) so they are able to get to their clinic appointments at the Lois Insolia ALS Clinic.

As the Foundation has grown, so have the needs of our PALS. We are delighted to continue providing this vital service and in order to accommodate the growth of the program and serve as many PALS as possible, a few changes have been made to the guidelines for the grant application. Learn more about the program and its enhancements below.

Transportation Companies

Transportation Grant Guidelines

Augmentative Communications

Asyst
www.asyst.us

Tobii Dynavox
www.tobiidynavox.com

E-triloquist
www.etriloquist.com

Illinois Assistive Technology Program
www.iltech.org

Woodlake Technologies
www.woodlaketechnologies.com

Grooming, Clothing and Other Daily Living Tools

Adaptations by Adrian
www.adaptationsbyadrian.com 

Allegro Medical
www.allegromedical.com

Buck and Buck
www.buckandbuck.com

Drugstore.com
www.drugstore.com

HDIS
www.hdis.com

Homedics
www.homedics.com 

Oxyfresh
www.oxyfresh.com

Patterson Medical
www.pattersonmedical.com

Showerbuddy
www.myshowerbuddy.com

Trademark Medical
www.trademarkmedical.com

Youcan Toocan
www.youcantoocan.com

Home Construction and Modifications

Accessible Living LTD
www.accessiblelivingltd.com

Amramp
www.amramp.com

Best Medical Equipment
www.bestmedequipment.com

Discount Ramps
www.discountramps.com

DME Access, Inc.
www.dmeaccess.com

Extended Home Living Services
www.ehls.com

Illinois DHS Home Modification Resources
www.dhs.state.il.us

RampNOW
www.rampnow.com

Home Emergency Systems

Lifeline
www.lifelinesys.com

Home Physician Services

Home Physicians
www.homephysicians.com

Caregiving

CaringBridge
www.caringbridge.org

Lotsa Helping Hands
www.lotsahelpinghands.com

Meal Train
www.mealtrain.com 

National Family Caregivers Association
www.nfcacares.org

Share the Care
www.sharethecare.org

Elder and Disability Law/End-of-Life Decisions

Advance Directive
www.makingyourwishesknown.com

Aging With Dignity
www.agingwithdignity.org

National Academy of Elder Law Attorneys
www.naela.org

Dutton & Casey, P.C.
www.duttonelderlaw.com

Elder & Disability Law office, LTD
John Belconis – 847 430 3652

Ethnic Groups

Casa Central
www.casacentral.org

Polish American Association
www.polish.org

Make-A-Wish Groups for Adults

Dream Foundation
www.dreamfoundation.org

Fairy Godmother
www.fairygodmother.com

Patient Interest

ALS Guardian Angels
www.alsguardianangels.com

Ask About Aimee
www.askaboutaimee.com

Patients Like Me
www.patientslikeme.org

Traveling with Disabilities

Emerging Horizons
www.emerginghorizons.com

Endeavour Safaris
www.endeavour-safaris.com

Services Offered:

Home & Community Services

Home & Community Services Team

The Foundation’s Home and Community Services — which include telephone and in-person support, educational resources and patient and family advocates —  are available at no cost to ALS patients, their families  in the Chicagoland area and portions of northwest Indiana.

Learn More

Lois Insolia ALS Clinic

Lois Insolia ALS Clinic

At the multidisciplinary ALS clinic, trained specialists use a team approach to provide comprehensive treatment. They are dedicated to the total care and support of people with ALS, their families and caregivers. During a visit, patients meet with several members of the team, and each provides input regarding assessment, care planning, education and other health care needs.

Learn More

National ALS Registry

National ALS Registry

The Les Turner ALS Foundation is a partner with the National ALS Registry, a program to collect, manage and analyze data about people with ALS and to provide clinical trial information to people living with ALS. It is important to include as many people with the disease as possible to get the most accurate information. Be part of changing the future of ALS.

Learn More

Hope and help for people with ALS.

Your contribution helps support nearly 90% of the Chicagoland ALS population.