Support Services

Informative Links

The resources below are listed as a service to the ALS community. The Les Turner ALS Foundation does not endorse or recommend information, products or services contained in these sites. You should contact an appropriate medical professional before making decisions about treatment.

Click on any of the topics below to learn more.
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Les Turner ALS Research and Patient Center at Northwestern Medicine

Northwestern University Division of Neuromuscular Medicine

Northwestern University Feinberg School of Medicine

International Alliance of ALS/MND Associations

Centers for Disease Control’s National ALS Registry


The ALS Association

ALS Society of Canada

American Academy of Neurology

Dana Alliance for Brain Initiatives

MND Care (Australia)

Muscular Dystrophy Association

National Institute of Neurological Disorders and Stroke

World Federation of Neurology

World Federation of Neurology’s ALSUntangled Program

ALS Finding a Cure

The ALS Hope Foundation

ALS Therapy Development Institute (ALSTDI)

ALS Untangled

Project A.L.S.

Team Gleason

Clinical Trials: ALSTDI’s List of Open Trials a registry of federally and privately supported clinical trials

Tirasemtiv (VITALITY-ALS)



Synapse Biomedical: Diaphram Pacying System

Feeding Tube Educational Videos

Video 1
Video 2

Information for Non-invasive Ventilator Users

Battery Geeks

Battery Power Solutions

VPAP Supplies

The CPAP Store

BIPAP Mask Liners/Comfort Aids

Pad A Cheek Mask Pads

Res Med Masks/Products


Climate Control on iVAPS or VPAP
ResMed – Video

Controlling Nasal Congestion with PAP
Ohio Sleep Medicine Institute – Video

Sleep Comfort Care Systems

Information for Ventilator Users

International Vent Users Networkh5

Information about Diaphragm Pacers

Exploration Health – Video
Synapse Biomedical

Information on Airway Clearance Equipment/Use

Cough Assist
Philips Respironics
The Vest” – Video

Foundation Respiratory Videos

Video 1
Video 2
Video 3
Ventilation: The Decision Making Process

One of the core pieces of the Foundation’s patient programs is the Stuart Rosen Transportation Program. This program helps reduce expenses associated with transportation costs to people with ALS (PALS) so they are able to get to their clinic appointments at the Lois Insolia ALS Clinic.

As the Foundation has grown, so have the needs of our PALS. We are delighted to continue providing this vital service and in order to accommodate the growth of the program and serve as many PALS as possible, a few changes have been made to the guidelines for the grant application. Learn more about the program and its enhancements below.

Transportation Companies

Transportation Grant Guidelines

Augmentative Communications


Tobii Dynavox


Illinois Assistive Technology Program

Woodlake Technologies

Grooming, Clothing and Other Daily Living Tools

Adaptations by Adrian 

Allegro Medical

Buck and Buck




Patterson Medical


Trademark Medical

Youcan Toocan

Home Construction and Modifications

Accessible Living LTD


Best Medical Equipment

Discount Ramps

DME Access, Inc.

Extended Home Living Services

Illinois DHS Home Modification Resources


Home Emergency Systems


Home Physician Services

Home Physicians



Lotsa Helping Hands

Meal Train 

National Family Caregivers Association

Share the Care

Elder and Disability Law/End-of-Life Decisions

Advance Directive

Aging With Dignity

National Academy of Elder Law Attorneys

Dutton & Casey, P.C.

Elder & Disability Law office, LTD
John Belconis – 847 430 3652

Ethnic Groups

Casa Central

Polish American Association

Make-A-Wish Groups for Adults

Dream Foundation

Fairy Godmother

Patient Interest

ALS Guardian Angels

Ask About Aimee

Patients Like Me

Traveling with Disabilities

Emerging Horizons

Endeavour Safaris

Services Offered:

Home & Community Services

Home & Community Services Team

The Foundation’s Home and Community Services — which include telephone and in-person support, educational resources and patient and family advocates —  are available at no cost to ALS patients, their families  in the Chicagoland area and portions of northwest Indiana.

Learn More

Lois Insolia ALS Clinic

Lois Insolia ALS Clinic

At the multidisciplinary ALS clinic, trained specialists use a team approach to provide comprehensive treatment. They are dedicated to the total care and support of people with ALS, their families and caregivers. During a visit, patients meet with several members of the team, and each provides input regarding assessment, care planning, education and other health care needs.

Learn More

National ALS Registry

National ALS Registry

The Les Turner ALS Foundation is a partner with the National ALS Registry, a program to collect, manage and analyze data about people with ALS and to provide clinical trial information to people living with ALS. It is important to include as many people with the disease as possible to get the most accurate information. Be part of changing the future of ALS.

Learn More

Hope and help for people with ALS.

Your contribution helps support the vast majority of the Chicagoland ALS population.