Support Services

Support Groups & Education

The Foundation provides several opportunities for people living with ALS and their families to come together, offering support to each other and receiving the professional advice and guidance of the Foundation’s ALS Support Services Coordinators.

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Support Groups

Monthly free support groups allow people living with ALS and caregivers to give and receive emotional support and to share information and practical experience. Groups are professionally facilitated and participants are encouraged to express their feelings about ALS openly—whether it’s with fear, anger, guilt, sadness or any other emotions. Support groups provide a welcoming environment and a sense of camaraderie with others who are living with this devastating disease. Currently, the Foundation offers support groups in five different areas of Chicagoland.

Support group meetings are open to people living with ALS, family members, caregivers and friends. Each facility is wheelchair accessible and offers free parking. We request that you RSVP if you are planning to attend any of these meetings to assure there is availability. Alternatively, if no one responds, meetings will not be held.

Please contact Laurie Fieldman at LFieldman@lesturnerals.org or 847 679 3311 to RSVP, for more information on any support groups or meetings, or to be placed on our support group mailing list.

Read why the Foundation believes support groups are important.


Education

Upcoming Events:

ALS News You Can Use Educational Conference
Practical solutions for people living with ALS/MND, their families and caregivers
October 14, 2018

Webinars:

People living with ALS Webinar-How Professionals Can Help the Kids in ALS Families
(Laurie B. Fieldman, LCSW, Director of Social Services)

NEALS Consortium Presents: Proactive Collaborative Considerations of Augmentative Communication Tools and Strategies
(John M. Costello, MA, CCC-SLP, ALS Augmentative Communication Program, Boston Children’s Hospital)

NEALS Consortium Presents: Nutrition and ALS
(Anne-Marie Wills, MD, MPH, Massachusetts General Hospital and Jane Hubbard, MS, RD, LDN, Massachusetts General Hospital)

Respiratory Videos: 

Video 1- Developing a Care Plan
Video 2- Respiratory Support Options
Video 3- Your Decisions for Your Quality of Life
Ventilation- The Decision Making Process

Presentations: 

2017 ALS  News You Can Use
2017 Symposium on ALS and NeuroRepair 


Services Offered:

Support Services Team

The Foundation’s Support Services Team — which include telephone and in-person support, educational resources and ALS Support Services Coordinators —  are available at no cost to people living with ALS and their families in the Chicagoland area and portions of northwest Indiana.

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Lois Insolia ALS Clinic

Lois Insolia ALS Clinic

At the multidisciplinary ALS clinic, trained specialists use a team approach to provide comprehensive treatment. They are dedicated to the total care and support of people with ALS, their families and caregivers. During a visit, patients meet with several members of the team, and each provides input regarding assessment, care planning, education and other health care needs.

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National ALS Registry

National ALS Registry

The Les Turner ALS Foundation is a partner with the National ALS Registry, a program to collect, manage and analyze data about people with ALS and to provide clinical trial information to people living with ALS. It is important to include as many people with the disease as possible to get the most accurate information. Be part of changing the future of ALS.

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Hope and help for people with ALS.

Your contribution helps support the vast majority of the Chicagoland ALS population.