Support Services

Support Groups & Education

The Foundation provides several opportunities for people living with ALS and their families to come together, offering support to each other and receiving the professional advice and guidance of the Foundation’s ALS Support Services Coordinators.

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Support Groups

Monthly free support groups allow people living with ALS and caregivers to give and receive emotional support and to share information and practical experience. Groups are professionally facilitated and participants are encouraged to express their feelings about ALS openly—whether it’s with fear, anger, guilt, sadness or any other emotions. Support groups provide a welcoming environment and a sense of camaraderie with others who are living with this devastating disease. Currently, the Foundation offers support groups in five different areas of Chicagoland.

Support group meetings are open to people living with ALS, family members, caregivers and friends. Each facility is wheelchair accessible and offers free parking. We request that you RSVP if you are planning to attend any of these meetings to assure there is availability. Alternatively, if no one responds, meetings will not be held.

Please contact Laurie Fieldman at LFieldman@lesturnerals.org or 847 679 3311 to RSVP, for more information on any support groups or meetings, or to be placed on our support group mailing list.

Read why the Foundation believes support groups are important.


Education

Presentations & Webinars:

8th Annual Les Turner Symposium on ALS and NeuroRepair
Monday, November 12, 2018

2018 ALS News You Can Use Educational Meeting
Legal Care for Living with ALS
(Helen Mesoloras, JD, Elder and Disability Attorney and Partner with Dutton & Casey, Attorneys at Law)

NEALS Consortium Presents:
How Professionals Can Help the Kids in ALS Families
(Laurie B. Fieldman, LCSW, Director of Social Services)

Proactive Collaborative Considerations of Augmentative Communication Tools and Strategies
(John M. Costello, MA, CCC-SLP, ALS Augmentative Communication Program, Boston Children’s Hospital)

Nutrition and ALS
(Anne-Marie Wills, MD, MPH, Massachusetts General Hospital and Jane Hubbard, MS, RD, LDN, Massachusetts General Hospital)

Treating Respiratory Dysfunction in ALS
(Dr. Christopher Lee, Vanderbilt University Medical Center)

Cured by Curcumin? Untangling another ALS X-file
(Richard Bedlack, MD, PhD, Ducke ALS Clinic)

Respiratory Videos: 

Video 1- Developing a Care Plan
Video 2- Respiratory Support Options
Video 3- Your Decisions for Your Quality of Life
Ventilation- The Decision Making Process


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