Les Turner ALS Foundation
Our small and tightknit team brings decades of experience and compassion to their jobs. Made up of a team of support service professionals, fundraising and marketing and communications professionals, and an office staff that handles administrative functions, we are committed to providing the best possible support for people living with ALS and their families.
ALS Support Services Coordinator
Founded in 1977, the Les Turner ALS Foundation is the oldest independent ALS group in the country. For over 45 years, we have taken an individualized approach to ensure each person living with the disease receives the best quality of care and access to the most promising therapies. We treat each person like family, supporting them every step of the way, and provide their loved ones with answers and encouragement.
Our Les Turner ALS Center at Northwestern Medicine is led by the most well-respected and successful clinicians and researchers in the field, advancing vital care and research in pursuit of life-enhancing treatments and a cure.
Our mission is to provide the most comprehensive care and support to people living with ALS and their families so they can confidently navigate the disease, and advance scientific research for the prevention, treatment and cure of ALS.
We seek a compassionate, resourceful, and highly motivated person to join our Support Services team. This position reports to the Manager of Support Services.
Our support services are designed to offer resources and emotional support for people living with ALS and their loved ones, specifically providing:
- Personalized care visits and coordination of care with the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine
- Support groups for people living with ALS, families, and caregivers
- Educational materials and programs
- Access to medical equipment and communication devices
- Need-based grants
Essential Duties and Responsibilities
- Empowering and advocating for people living with ALS and their caregivers with patient-centered focus
- Facilitate support groups and ALS community education programs as assigned
- Manage direct care coordination with people living with ALS and their families:
- Assess needs and collaborate with community groups to provide resources
- Actively manage a caseload, assuring people living with ALS and caregiver needs are addressed to improve quality of life and to assist in achieving life goals
- Facilitate communication between person living with ALS and multidisciplinary ALS care team to promote patient-centered care and opportunities for clinical research
- Provide disease education and guidance on Social Security Disability Insurance, insurance navigation, financial resources, caregiving and equipment
- Assist with advanced directives including medical power of attorney and end-of-life planning and bereavement support
- Stay informed of intervention strategies to help individuals with ALS manage complex care
- High energy and passion for Les Turner ALS Foundation’s mission is essential
- Ability to interact with people affected by ALS from diverse disability, cultural and economic backgrounds
- Licensed Clinical Professional Counselor (LCPC), Licensed Clinical Social Worker (LCSW) or Registered Nurse (RN). Other allied professionals, speech and language pathologists and occupational therapists may also apply
- 3 - 5 years of experience in patient education and/or patient advocacy role
- Creative, flexible and disciplined with strong research skills and excellent attention to detail
- Strong analytical thinking, problem solving and communication skills (both written and oral) with a demonstrated attention to detail and strong self-management skills
- Proficient with Microsoft Office skills including Word, Excel, PowerPoint, Outlook, and customer relationship management software
- Flexibility to attend evening and/or weekend meetings and/or events
- Must have valid driver’s license and access to a car
What We Offer
We offer a warm, friendly office environment full of highly motivated and inspiring teammates. Salary for this role is competitive and commensurate with your skills and experience. Our benefits package is robust and includes comprehensive health insurance, 401k with organizational match, generous paid time off, ten paid holidays, summer hours, disability and life insurance.
This role is primarily remote. On occasion, the ALS Support Services Coordinator will be required to visit our Skokie, IL, office for team meetings. In-person visits may be approved on a case-by-case basis by the Manager of Support Services.
Please submit cover letter and resume to demonstrate your interest in the role and the Foundation to email@example.com writing “ALS Support Services Coordinator” in the subject line. Please also explain why working at the Les Turner ALS Foundation would be meaningful to you. Applications will be accepted until the position is filled.
The Les Turner ALS Foundation is an equal opportunity employer. We firmly believe that the application of the concept of equal opportunity means a better workforce and better business for all. Therefore, we will not discriminate and will take affirmative action measures to ensure against discrimination in employment, recruitment, advertisements for employment, compensation, termination, upgrading, promotions, and other conditions of employment against any employee or job applicant on the basis of race, color, gender, religion (creed), national origin (ancestry), age, marital status, disability, military status, sexual orientation or gender expression.
The ALS Support Services Coordinator is a full-time, salaried, exempt position. All new hires are required to provide proof of Covid vaccination or be willing to be vaccinated within two weeks of employment. The Foundation complies with the Fair Labor Standards Act and the Americans with Disabilities Act.
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