Les Turner ALS Foundation

The International Alliance of ALS/MND Associations

The International Alliance of ALS/MND Associations was founded in 1992 to provide support to patient-driven associations through networking and exchanging information about ALS. The Les Turner ALS Foundation and the Motor Neuron Disease Association of England, Wales and Northern Ireland (MNDA), along with several others, were founding Alliance members.

Today, more than 40 organizations representing 30 countries worldwide have joined forces to combat ALS and Motor Neuron Disease (MND).

In 2019, our CEO, Andrea Pauls Backman, joined the Board of Directors of the Alliance, continuing our long-held legacy of participation and collaboration with the Alliance.

The Les Turner ALS Foundation is one of the founding members of the International Alliance of ALS/MND Assocations

The key objectives of the Alliance are: to increase awareness of ALS/MND worldwide, to exchange and disseminate information, to improve quality of care for people with ALS/MND everywhere, to stimulate and support research and to establish an international identity.

The International Alliance of ALS/MND Associations partners with MNDA, one of the largest Alliance Members, on the coordination of an annual International Symposium of ALS/MND. The Foundation hosted these international meetings in 1996 and 2012 in Chicago.

Members of the Foundation’s Support Services Team as well as members of our Les Turner ALS Center regularly present at these annual meetings, sharing their knowledge and experience with other ALS professionals from around the world.

To learn more about the Alliance and its annual meetings and symposium, visit http://www.alsmndalliance.org/

Read the latest newsletter from the Alliance to learn about updates from its members here.

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International Symposium on ALS/MND

Each year, the Symposium attracts over 1,000 delegates, representing the energy and dynamism of the global MND/ALS research community. It is the largest medical and scientific conference specific to MND/ALS and is the premier event in the research calendar for discussion on the latest advances in research and clinical management. 

Learn about the Symposium here.

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