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SUMMARY:End The Legacy's Genetic ALS & FTD Community Summit 2024
DESCRIPTION:We are so pleased and excited to open up registration to all impacted by Genetic ALS & FTD to our first Community Summit of those impacted by genetic ALS & FTD. The event will be held in Chicago with local host the Les Turner ALS Foundation\, from Friday afternoon\, June 7th\, through Sunday mid-day\, June 9th. The summit will focus on informal connections for the dozens of participants\, a NEALS Clinical Research Learning Institute\, and skill-building panels for a strong Genetic ALS & FTD patient movement. Learn more and sign up here!  \nQuestions\, please email info@endthelegacy.org
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/end-the-legacys-genetic-als-ftd-community-summit-2024/
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SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Second Saturday of each month from 10:30am – 12:00 pm \nFacilitator(s): Karen Raley Steffens\, RN\, CHPN\, CCM \nRSVP: Please email us at supportgroup@lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/navigating-als-together/2024-06-08/
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