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X-WR-CALNAME:Les Turner ALS Foundation
X-ORIGINAL-URL:https://lesturnerals.org
X-WR-CALDESC:Events for Les Turner ALS Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231106T080000
DTEND;TZID=America/Chicago:20231106T170000
DTSTAMP:20260419T065548
CREATED:20230621T160053Z
LAST-MODIFIED:20230621T160053Z
UID:10000631-1699257600-1699290000@lesturnerals.org
SUMMARY:13th Annual Les Turner Symposium on ALS
DESCRIPTION:The 2023 Les Turner Symposium on ALS will be held virtually and in-person at Northwestern Memorial Hospital in Chicago on Monday\, Nov. 6. \nThe Les Turner Symposium on ALS has featured presentations from leading ALS scientists and clinicians\, as well as people living with ALS; plus research posters\, a Q&A panel and more. The symposium is free and open to the public\, with thanks to our generous sponsors. \nTime: Registration Opens- 8:00am \nSymposium – 8:45am – 5:00pm \nBreakfast\, lunch and refreshments will be served. \nIt will be held in person with opportunities to stream presentations from home. \nRegistration and Abstract submissions will be open in July. \nKeynote Presentation: Antisense based therapy for rare neurological diseases\nC. Frank Bennett\, Ph.D \nCurrently there are multiple genetic based medicines being pursued for rare neurological diseases including antisense technology\, gene therapy and gene editing technologies. Antisense oligonucleotides (ASOs are one of the more advanced technologies. ASOs are synthetic\, chemical modified nucleic acid analogs designed to bind to RNA by Watson-Crick base paring. Upon binding to the RNA\, ASOs modulate the function of the targeted RNA through a variety of mechanisms. Both protein coding\, as well as non-coding RNAs\, can be targets of ASO based drugs\, significantly broadening therapeutic targets for drug discovery compared to small molecules and protein based therapeutics. The approval of nusinersen (Spinraza™) as a treatment for spinal muscular atrophy (SMA) and the recent approval of tofersen (Qalsody) for familial ALS validates the utility of antisense drugs for the treatment of motor neuron diseases. The application of antisense technology as potential therapy for other rare neurodegenerative diseases and neurodevelopmental disorders will be discussed.
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/13th-annual-les-turner-symposium-on-als/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231111T103000
DTEND;TZID=UTC:20231111T120000
DTSTAMP:20260419T065548
CREATED:20171215T212728Z
LAST-MODIFIED:20240110T191029Z
UID:10000218-1699698600-1699704000@lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Second Saturday of each month from 10:30am – 12:00 pm \nFacilitator(s): Karen Raley Steffens\, RN\, CHPN\, CCM \nRSVP: Please email us at supportgroup@lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/navigating-als-together/2023-11-11/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231116T150000
DTEND;TZID=America/Chicago:20231116T160000
DTSTAMP:20260419T065548
CREATED:20210817T021756Z
LAST-MODIFIED:20230504T200037Z
UID:10000354-1700146800-1700150400@lesturnerals.org
SUMMARY:Caregivers-Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Thursday of each month from 3pm to 4pm \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/caregivers-only-support-group-thursday/2023-11-16/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231118T100000
DTEND;TZID=America/Chicago:20231118T110000
DTSTAMP:20260419T065548
CREATED:20230822T185003Z
LAST-MODIFIED:20231003T171852Z
UID:10000706-1700301600-1700305200@lesturnerals.org
SUMMARY:Caregiver Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Saturday of each month from 10 am to 11 am \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/caregiver-only-support-group-2/2023-11-18/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231118T110000
DTEND;TZID=America/Chicago:20231118T113000
DTSTAMP:20260419T065548
CREATED:20230822T145323Z
LAST-MODIFIED:20231127T172740Z
UID:10000658-1700305200-1700307000@lesturnerals.org
SUMMARY:Celebration of Life
DESCRIPTION:This year’s Celebration of Life Live Event has concluded. Thank you to everyone who submitted photos and participated. \n 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/celebration-of-life-2023/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231120T140000
DTEND;TZID=UTC:20231120T150000
DTSTAMP:20260419T065548
CREATED:20231024T194007Z
LAST-MODIFIED:20240110T191530Z
UID:10000785-1700488800-1700492400@lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Third Monday of each month from 2-3:15 p.m. \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please email us at supportgroup@lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/navigatingalstogether/2023-11-20/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231127T180000
DTEND;TZID=America/Chicago:20231127T193000
DTSTAMP:20260419T065548
CREATED:20220302T215618Z
LAST-MODIFIED:20230504T200204Z
UID:10000601-1701108000-1701113400@lesturnerals.org
SUMMARY:Living After Loss (Bereavement Group)
DESCRIPTION:An open\, supportive monthly bereavement group for anyone (family\, friend\, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told\, feelings will be explored\, and information will be shared about how to remain connected to the memory of a loved one. \nDate: Fourth Monday \nTime: 6pm – 7:30pm \nFacilitator(s): Easton Stevenson\, LCSW\n \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.* \n 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/living-after-loss-bereavement-group/2023-11-27/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231209T103000
DTEND;TZID=UTC:20231209T120000
DTSTAMP:20260419T065548
CREATED:20171215T212728Z
LAST-MODIFIED:20240110T191029Z
UID:10000219-1702117800-1702123200@lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Second Saturday of each month from 10:30am – 12:00 pm \nFacilitator(s): Karen Raley Steffens\, RN\, CHPN\, CCM \nRSVP: Please email us at supportgroup@lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/navigating-als-together/2023-12-09/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231214T120000
DTEND;TZID=America/Chicago:20231214T130000
DTSTAMP:20260419T065548
CREATED:20231027T171018Z
LAST-MODIFIED:20231027T171018Z
UID:10000771-1702555200-1702558800@lesturnerals.org
SUMMARY:December ALS Learning Series
DESCRIPTION:Mental Health Needs & Supports for People Living with ALS and their Caregivers \nThursday December 14\, 2023 12:00 p.m CST \nAbout the Program: Join us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and the need for support – for both the person living with ALS and their caregivers\, including the children and youth. Dr. Kavanaugh will also review recent research findings informing supportive interventions and tools\, targeting support for the whole family. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar. \n 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/december-als-learning-series/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231216T100000
DTEND;TZID=America/Chicago:20231216T110000
DTSTAMP:20260419T065548
CREATED:20230822T185003Z
LAST-MODIFIED:20231003T171852Z
UID:10000707-1702720800-1702724400@lesturnerals.org
SUMMARY:Caregiver Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Saturday of each month from 10 am to 11 am \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/caregiver-only-support-group-2/2023-12-16/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231218T140000
DTEND;TZID=UTC:20231218T150000
DTSTAMP:20260419T065548
CREATED:20231024T194007Z
LAST-MODIFIED:20240110T191530Z
UID:10000786-1702908000-1702911600@lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Third Monday of each month from 2-3:15 p.m. \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please email us at supportgroup@lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/navigatingalstogether/2023-12-18/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231218T180000
DTEND;TZID=America/Chicago:20231218T193000
DTSTAMP:20260419T065548
CREATED:20231026T142216Z
LAST-MODIFIED:20231026T142218Z
UID:10000602-1702922400-1702927800@lesturnerals.org
SUMMARY:Living After Loss (Bereavement Group)
DESCRIPTION:An open\, supportive monthly bereavement group for anyone (family\, friend\, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told\, feelings will be explored\, and information will be shared about how to remain connected to the memory of a loved one. \nDate: Fourth Monday \nTime: 6pm – 7:30pm \nFacilitator(s): Easton Stevenson\, LCSW\n \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.* \n 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/living-after-loss-bereavement-group-2/2023-12-18/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231221T150000
DTEND;TZID=America/Chicago:20231221T160000
DTSTAMP:20260419T065548
CREATED:20210817T021756Z
LAST-MODIFIED:20230504T200037Z
UID:10000355-1703170800-1703174400@lesturnerals.org
SUMMARY:Caregivers-Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Thursday of each month from 3pm to 4pm \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/caregivers-only-support-group-thursday/2023-12-21/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240113T103000
DTEND;TZID=UTC:20240113T120000
DTSTAMP:20260419T065548
CREATED:20171215T212728Z
LAST-MODIFIED:20240110T191029Z
UID:10000220-1705141800-1705147200@lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Second Saturday of each month from 10:30am – 12:00 pm \nFacilitator(s): Karen Raley Steffens\, RN\, CHPN\, CCM \nRSVP: Please email us at supportgroup@lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/navigating-als-together/2024-01-13/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240115T140000
DTEND;TZID=UTC:20240115T150000
DTSTAMP:20260419T065548
CREATED:20231024T194007Z
LAST-MODIFIED:20240110T191530Z
UID:10000787-1705327200-1705330800@lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Third Monday of each month from 2-3:15 p.m. \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please email us at supportgroup@lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/navigatingalstogether/2024-01-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240115T153000
DTEND;TZID=America/Chicago:20240115T163000
DTSTAMP:20260419T065548
CREATED:20240110T192825Z
LAST-MODIFIED:20240110T193410Z
UID:10000356-1705332600-1705336200@lesturnerals.org
SUMMARY:ALS Caregivers Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Monday of each month from 3:30 – 4:30 p.m. \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/caregivers-only-support-group-thursday-2/2024-01-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240118T150000
DTEND;TZID=America/Chicago:20240118T160000
DTSTAMP:20260419T065548
CREATED:20240110T193053Z
LAST-MODIFIED:20240110T193254Z
UID:10000708-1705590000-1705593600@lesturnerals.org
SUMMARY:ALS Caregivers Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Thursday of each month from 3:00 – 4:00 p.m. \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/caregiversupport-group-2-3/2024-01-18/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240122T180000
DTEND;TZID=America/Chicago:20240122T193000
DTSTAMP:20260419T065548
CREATED:20240110T194328Z
LAST-MODIFIED:20250613T165348Z
UID:10000770-1705946400-1705951800@lesturnerals.org
SUMMARY:Living After Loss (Bereavement Group)
DESCRIPTION:An open\, supportive monthly bereavement group for anyone (family\, friend\, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told\, feelings will be explored\, and information will be shared about how to remain connected to the memory of a loved one. \nDate: Fourth Monday \nTime: 6pm – 7:30pm \nFacilitator(s): Easton Stevenson\, LCSW\n \nRSVP: Email supportgroup@lesturnerals.org. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.* \n 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/living-after-loss-bereavement-group-2-2/2024-01-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240125T180000
DTEND;TZID=America/Chicago:20240125T193000
DTSTAMP:20260419T065548
CREATED:20240117T215953Z
LAST-MODIFIED:20240117T221045Z
UID:10000847-1706205600-1706211000@lesturnerals.org
SUMMARY:Moving Forward After Loss Spousal/Partner Bereavement Group Winter Session
DESCRIPTION:A closed\, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months. \nThis group provides support\, validation\, and education in a supportive setting to those who are grieving the loss of their loved one. \nWinter Session – January 25 – February 27\, 2024 \nTime: 6 – 7:30 p.m. C.S.T\nFacilitator: Easton Stevenson\, LCSW \nRSVP: Please register here. This group is invite only.
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/moving-forward-after-loss-spousal-partner-bereavement-group-winter-session/2024-01-25/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240126T120000
DTEND;TZID=America/Chicago:20240126T170000
DTSTAMP:20260419T065548
CREATED:20240118T162114Z
LAST-MODIFIED:20240118T162114Z
UID:10001079-1706270400-1706288400@lesturnerals.org
SUMMARY:Gordon Scully Racing Watch Party
DESCRIPTION:Join us for an exciting watch party as we cheer on Gordon Scully’s race on Friday\, 26th\, at Erie Cafe from 12:00 PM – 5:00 PM. \nEnjoy delicious appetizers and sip on a signature cocktail as you enjoy the race. \nLooking forward to seeing you there! \n 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/gordon-scully-racing-watch-party/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240127T103000
DTEND;TZID=UTC:20240127T113000
DTSTAMP:20260419T065548
CREATED:20240110T192230Z
LAST-MODIFIED:20240110T192232Z
UID:10000710-1706351400-1706355000@lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Fourth Saturday of each month from 10:30 am-11:30 a.m. \nFacilitator(s): Rochelle Walwer\, LCSW \nRSVP: Click here to register \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/navigatingalstogether-2/2024-01-27/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240131T120000
DTEND;TZID=America/Chicago:20240131T130000
DTSTAMP:20260419T065548
CREATED:20240111T215731Z
LAST-MODIFIED:20240111T215755Z
UID:10000846-1706702400-1706706000@lesturnerals.org
SUMMARY:ALS Learning Series: A Conversation with a Genetic Counselor
DESCRIPTION:Wednesday\, January 31\, 2024\, 12:00 p.m.\, CST \n\n\n\n\n\n\n\nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America & Biogen for sponsoring this webinar. \nAbout the Presentation: \n\n\n\n\n\nNavigating ALS care can be complicated and filled with many complex decisions\, including whether genetic testing is right for you. Join us for a discussion with genetic counselor Laynie Dratch\, ScM CGC\, as she describes the role of a genetic counselor and addresses common questions about the genetics of ALS-FTD spectrum disorders\, the genetic testing process\, and more. Laynie welcomes you to come with questions for discussion. \nAbout the Speaker: \n\n\nLaynie Dratch\, ScM CGC \nLaynie Dratch\, ScM CGC is a board-certified genetic counselor for the Penn Frontotemporal Degeneration (FTD) Center and Penn Amyotrophic Lateral Sclerosis (ALS) Center in the Department of Neurology at the University of Pennsylvania. She is the co-founder and chair of the ALS/FTD Working Group within the National Society of Genetic Counselor’s Neurogenetics group\, as well as the co-founder of the annual Penn Familial FTD/ALS Conference. Her research interests include the lived experiences of individuals at risk of developing ALS/FTD spectrum disorders\, and genetic counseling access and service delivery. Laynie completed her master’s in genetic counseling at the Johns Hopkins University / National Institutes of Health genetic counseling training program and completed her undergraduate studies at Colgate University where she graduated summa cum laude with a BA in neuroscience and a minor in psychology. 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/a-conversation-with-a-genetic-counselor-could-the-als-in-my-family-be-genetic/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240201T180000
DTEND;TZID=America/Chicago:20240201T193000
DTSTAMP:20260419T065548
CREATED:20240117T215953Z
LAST-MODIFIED:20240117T221045Z
UID:10000848-1706810400-1706815800@lesturnerals.org
SUMMARY:Moving Forward After Loss Spousal/Partner Bereavement Group Winter Session
DESCRIPTION:A closed\, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months. \nThis group provides support\, validation\, and education in a supportive setting to those who are grieving the loss of their loved one. \nWinter Session – January 25 – February 27\, 2024 \nTime: 6 – 7:30 p.m. C.S.T\nFacilitator: Easton Stevenson\, LCSW \nRSVP: Please register here. This group is invite only.
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/moving-forward-after-loss-spousal-partner-bereavement-group-winter-session/2024-02-01/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240208T180000
DTEND;TZID=America/Chicago:20240208T193000
DTSTAMP:20260419T065548
CREATED:20240117T215953Z
LAST-MODIFIED:20240117T221045Z
UID:10000849-1707415200-1707420600@lesturnerals.org
SUMMARY:Moving Forward After Loss Spousal/Partner Bereavement Group Winter Session
DESCRIPTION:A closed\, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months. \nThis group provides support\, validation\, and education in a supportive setting to those who are grieving the loss of their loved one. \nWinter Session – January 25 – February 27\, 2024 \nTime: 6 – 7:30 p.m. C.S.T\nFacilitator: Easton Stevenson\, LCSW \nRSVP: Please register here. This group is invite only.
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/moving-forward-after-loss-spousal-partner-bereavement-group-winter-session/2024-02-08/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240210T103000
DTEND;TZID=UTC:20240210T120000
DTSTAMP:20260419T065548
CREATED:20171215T212728Z
LAST-MODIFIED:20240110T191029Z
UID:10000773-1707561000-1707566400@lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Second Saturday of each month from 10:30am – 12:00 pm \nFacilitator(s): Karen Raley Steffens\, RN\, CHPN\, CCM \nRSVP: Please email us at supportgroup@lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/navigating-als-together/2024-02-10/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240211T160000
DTEND;TZID=America/Chicago:20240211T230000
DTSTAMP:20260419T065548
CREATED:20240201T170648Z
LAST-MODIFIED:20240201T170648Z
UID:10001083-1707667200-1707692400@lesturnerals.org
SUMMARY:Super Bowl Party
DESCRIPTION:Come and join the fun at the \nSUPER BOWL FUNDRAISER FOR ALS \nSUNDAY\, FEBRUARY 11\, 2024\, 4 PM \nAT \nVALLEY LODGE TAVERN \n1141 CENTRAL AVENUE\, WILMETTE \nTickets will be available at the door on event night \nThere will also be Squares\, Strip Cards\, Silent Auction items\, and more! \n\n\nThe Valley Lodge Tavern is proud to support the Les Turner ALS Foundation.  While this cause is important to many\, it holds a special place in our hearts because of Tiffany\, a valued colleague and dear friend\, who has been battling ALS with grace and strength for several years.  We have witnessed firsthand the incredible support that the Les Turner ALS Foundation provides individuals like Tiffany and their families\, and we believe that they are making a crucial difference in this fight. \n\nJoining the effort to find a cure and improve the lives of those affected by ALS is our way of showing our love and respect for Tiffany and all those struggling with this devasting disease.  Your generosity helps ensure that people living with ALS live their lives with both quality and dignity. 100% of the event’s proceeds will benefit the Les Turner ALS Foundation.
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/super-bowl-party/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240215T150000
DTEND;TZID=America/Chicago:20240215T160000
DTSTAMP:20260419T065548
CREATED:20240110T193053Z
LAST-MODIFIED:20240110T193254Z
UID:10000823-1708009200-1708012800@lesturnerals.org
SUMMARY:ALS Caregivers Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Thursday of each month from 3:00 – 4:00 p.m. \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/caregiversupport-group-2-3/2024-02-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240215T180000
DTEND;TZID=America/Chicago:20240215T193000
DTSTAMP:20260419T065548
CREATED:20240117T215953Z
LAST-MODIFIED:20240117T221045Z
UID:10000850-1708020000-1708025400@lesturnerals.org
SUMMARY:Moving Forward After Loss Spousal/Partner Bereavement Group Winter Session
DESCRIPTION:A closed\, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months. \nThis group provides support\, validation\, and education in a supportive setting to those who are grieving the loss of their loved one. \nWinter Session – January 25 – February 27\, 2024 \nTime: 6 – 7:30 p.m. C.S.T\nFacilitator: Easton Stevenson\, LCSW \nRSVP: Please register here. This group is invite only.
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/moving-forward-after-loss-spousal-partner-bereavement-group-winter-session/2024-02-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240219T140000
DTEND;TZID=UTC:20240219T150000
DTSTAMP:20260419T065548
CREATED:20231024T194007Z
LAST-MODIFIED:20240110T191530Z
UID:10000788-1708351200-1708354800@lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Third Monday of each month from 2-3:15 p.m. \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please email us at supportgroup@lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/navigatingalstogether/2024-02-19/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240219T153000
DTEND;TZID=America/Chicago:20240219T163000
DTSTAMP:20260419T065548
CREATED:20240110T192825Z
LAST-MODIFIED:20240110T193410Z
UID:10000811-1708356600-1708360200@lesturnerals.org
SUMMARY:ALS Caregivers Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Monday of each month from 3:30 – 4:30 p.m. \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/caregivers-only-support-group-thursday-2/2024-02-19/
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END:VCALENDAR