ALS Caregivers Support Group
2024-01-18 15:00 - 16:00, 2024-02-15 15:00 - 16:00, 2024-03-21 15:00 - 16:00 (America/Chicago)
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the guidance and encouragement of a devoted facilitator, caregivers can find the strength to persevere. And, by feeling heard and understood, caregivers become more equipped to face another day with new coping strategies.
Time: Meets the Third Thursday of each month from 3:00 – 4:00 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please RSVP here.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Living After Loss (Bereavement Group)
2024-01-22 18:00 - 19:30, 2024-02-26 18:00 - 19:30, 2024-03-25 18:00 - 19:30 (America/Chicago)
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will be shared about how to remain connected to the memory of a loved one.
Date: Fourth Monday
Time: 6pm – 7:30pm
Facilitator(s): Easton Stevenson, LCSW

RSVP: Email supportgroup@lesturnerals.org.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Moving Forward After Loss Spousal/Partner Bereavement Group Winter Session
2024-01-25 18:00 - 19:30, 2024-02-01 18:00 - 19:30, 2024-02-08 18:00 - 19:30, 2024-02-15 18:00 - 19:30, 2024-02-22 18:00 - 19:30, 2024-02-29 18:00 - 19:30 (America/Chicago)
A closed, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months.
This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one.
Winter Session – January 25 – February 27, 2024
Time: 6 – 7:30 p.m. C.S.T
Facilitator: Easton Stevenson, LCSW
RSVP: Please register here. This group is invite only.

Gordon Scully Racing Watch Party
2024-01-26 12:00 - 17:00 (America/Chicago)
Join us for an exciting watch party as we cheer on Gordon Scully’s race on Friday, 26th, at Erie Cafe from 12:00 PM – 5:00 PM.
Enjoy delicious appetizers and sip on a signature cocktail as you enjoy the race.
Looking forward to seeing you there!

Navigating ALS Together Support Group
2024-01-27 10:30 - 11:30, 2024-02-24 10:30 - 11:30, 2024-03-23 10:30 - 11:30 UTC
Meets the Fourth Saturday of each month from 10:30 am-11:30 a.m.
Facilitator(s): Rochelle Walwer, LCSW
RSVP: Click here to register
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

ALS Learning Series: A Conversation with a Genetic Counselor
2024-01-31 12:00 - 13:00 (America/Chicago)
Wednesday, January 31, 2024, 12:00 p.m., CST

The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation, Mitsubishi Tanabe Pharma America & Biogen for sponsoring this webinar.
About the Presentation:

Navigating ALS care can be complicated and filled with many complex decisions, including whether genetic testing is right for you. Join us for a discussion with genetic counselor Laynie Dratch, ScM CGC, as she describes the role of a genetic counselor and addresses common questions about the genetics of ALS-FTD spectrum disorders, the genetic testing process, and more. Laynie welcomes you to come with questions for discussion.
About the Speaker:

Laynie Dratch, ScM CGC
Laynie Dratch, ScM CGC is a board-certified genetic counselor for the Penn Frontotemporal Degeneration (FTD) Center and Penn Amyotrophic Lateral Sclerosis (ALS) Center in the Department of Neurology at the University of Pennsylvania. She is the co-founder and chair of the ALS/FTD Working Group within the National Society of Genetic Counselor’s Neurogenetics group, as well as the co-founder of the annual Penn Familial FTD/ALS Conference. Her research interests include the lived experiences of individuals at risk of developing ALS/FTD spectrum disorders, and genetic counseling access and service delivery. Laynie completed her master’s in genetic counseling at the Johns Hopkins University / National Institutes of Health genetic counseling training program and completed her undergraduate studies at Colgate University where she graduated summa cum laude with a BA in neuroscience and a minor in psychology.

Navigating ALS Together Support Group
2024-02-10 10:30 - 12:00, 2024-03-09 10:30 - 12:00, 2024-04-13 10:30 - 12:00 UTC
Meets the Second Saturday of each month from 10:30am – 12:00 pm
Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM
RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Super Bowl Party
2024-02-11 16:00 - 23:00 (America/Chicago)
Come and join the fun at the
SUPER BOWL FUNDRAISER FOR ALS
SUNDAY, FEBRUARY 11, 2024, 4 PM
AT
VALLEY LODGE TAVERN
1141 CENTRAL AVENUE, WILMETTE
Tickets will be available at the door on event night
There will also be Squares, Strip Cards, Silent Auction items, and more!

The Valley Lodge Tavern is proud to support the Les Turner ALS Foundation. While this cause is important to many, it holds a special place in our hearts because of Tiffany, a valued colleague and dear friend, who has been battling ALS with grace and strength for several years. We have witnessed firsthand the incredible support that the Les Turner ALS Foundation provides individuals like Tiffany and their families, and we believe that they are making a crucial difference in this fight.

Joining the effort to find a cure and improve the lives of those affected by ALS is our way of showing our love and respect for Tiffany and all those struggling with this devasting disease. Your generosity helps ensure that people living with ALS live their lives with both quality and dignity. 100% of the event’s proceeds will benefit the Les Turner ALS Foundation.

Navigating ALS Together Support Group
2024-02-19 14:00 - 15:00, 2024-03-18 14:00 - 15:00 UTC
Meets the Third Monday of each month from 2-3:15 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

ALS Caregivers Support Group
2024-02-19 15:30 - 16:30, 2024-03-18 15:30 - 16:30 (America/Chicago)
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the guidance and encouragement of a devoted facilitator, caregivers can find the strength to persevere. And, by feeling heard and understood, caregivers become more equipped to face another day with new coping strategies.
Time: Meets the Third Monday of each month from 3:30 – 4:30 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please RSVP here.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Chicago Wolves ALS Awareness Game
2024-03-10 15:00 - 18:00 (America/Chicago)
Join us for an unforgettable night of hockey in support of ALS awareness!
Grab your tickets now for the Chicago Wolves game on ALS Awareness Night. A portion of the proceeds will be donated to the Les Turner ALS Foundation.

Let’s score big for a great cause!
Buy your tickets

NCAA March Madness Bracket Challenge Kickoff
2024-03-14 18:30 - 22:00 (America/Chicago)
Our NCAA tournament kick-off party is on Thursday, March 14th at 6:30 pm at the Pony Inn and will include free pizza and apps if you purchase a bracket. See you there!
The Pony Inn will also offer 1/2 price apps, $3 frosty mugs until 8 pm, $18 domestic buckets, $10 waffle nachos, and trivia starting at 8 pm.

NCAA2024 | Powered By GiveSmart

ALS Learning Series: The role of multidisciplinary care in ALS
2024-03-28 12:00 - 13:00 (America/Chicago)
Join us for our March ALS Learning Series, where team members and people living with ALS will explore the crucial role of collaboration in delivering holistic care. Discover how multidisciplinary clinics can help people living with ALS to live longer and with a higher quality of life. From exploring treatment options to providing emotional support, our panel will illustrate how this approach significantly enhances the well-being of people living with ALS, their families, and caregivers. This webinar will also discuss the ALS Better Care Act (HR 5663/S.3258), which will enhance Medicare reimbursement for multidisciplinary clinics nationwide, improving care for people living with ALS. You’ll learn how you can get involved in supporting this legislation. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation, Biogen, & Mitsubishi Tanabe Pharma America for sponsoring this webinar.

https://register.gotowebinar.com/register/7883989190684308310

About the Speakers: Chaunelle Caver-Perkins, Support Services Committee Member, Les Turner ALS Foundation
Janie Gobeli, advisory committee member for the HEALEY ALS Platform Trial and the QurAlis/CISCRP Global Patient Advisory Board, ALS Research Ambassador for the Northeast ALS Consortium (NEALS), and a reviewer for the Les Turner ALS Foundation’s educational materials and programs.
Frank Granata, member of the Foundation’s Board of Directors and Support Services Committee Member, Les Turner ALS Foundation
April Szymanksi, RN, MSN, APN-BC, Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine
Lauren Webb, LCSW, Chief Advocacy & Outreach Officer, Les Turner ALS Foundation

Moving Forward After Loss: Spousal/Bereavement Group Spring Session
2024-04-11 18:00 - 19:30 (America/Chicago)
A closed, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months.
This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one.
Spring Session- April 11- May 16, 2024
Visit our Calendar of Events for upcoming dates.
Time: 6 – 7:30 p.m. C.S.T

Facilitator: Easton Stevenson, LCSW

RSVP: Please register here. This group is invite only.

Hope Through Caring Gala 2024
2024-04-13 18:00 - 23:00 (America/Chicago) | Radisson Blu Aqua Hotel, 221 N Columbus Drive, Chicago, IL, 60601, United States
This year, as for the past 35 years, the Les Turner ALS Foundation will bring together Chicago’s top minds in ALS research and care, business, academics, philanthropy, and most importantly, people living with ALS, for one of the city’s most elegant and most prestigious black-tie optional events of the year: the 36th Annual Hope Through Caring Gala, at the Radisson Blu Aqua Hotel on Saturday, April 13, 2024. There will also be a virtual option available with a link to view the program.
