Les Turner ALS Foundation

ALS Caregivers Support Group
2024-05-16 15:00 - 16:00, 2024-06-20 15:00 - 16:00, 2024-07-18 15:00 - 16:00 (America/Chicago)
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the guidance and encouragement of a devoted facilitator, caregivers can find the strength to persevere. And, by feeling heard and understood, caregivers become more equipped to face another day with new coping strategies.
Time: Meets the Third Thursday of each month from 3:00 – 4:00 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please RSVP here.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Moving Forward After Loss: Spousal/Bereavement Group Spring Session
2024-05-16 18:00 - 19:30 (America/Chicago)
A closed, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months.
This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one.
Spring Session- April 11- May 16, 2024
Visit our Calendar of Events for upcoming dates.
Time: 6 – 7:30 p.m. C.S.T

Facilitator: Easton Stevenson, LCSW

RSVP: Please register here. This group is invite only.

Lew Blond Memorial 5K Run/Walk
2024-05-18 08:00 - 12:00 (America/Chicago)
Saturday, May 18, 2024

Northbrook, IL
The annual Lew Blond Memorial 5K Run/Walk honors former Northbrook/Glenview School District 30 teacher Lew Blond, who passed away from ALS in 2000. A portion of the proceeds go to the Les Turner ALS Foundation in Lew’s memory.
There are activities for all age levels including the Little Lew 50-yard dash for children up to six years old. The Lew Blond 5K is a great chance for people of all ability levels to get some exercise, enjoy the sun, and support ALS care and research.
During registration, if you select ‘Les Turner ALS Foundation’ in the “How did you hear about the Lew Blond Run?” drop-down, the full proceeds from your registration will be donated to the Foundation.

https://www.lewblondrun.org/

2024 Life Time Chicago Spring Half Marathon and 10K
2024-05-19
We don’t just race to the finish line. We race to a CURE.
Sunday, May 19, 2024
Maggie Daley Park in Chicago
Welcome to the 2024 Life Time Chicago Spring Half Marathon. Run for the Les Turner ALS Foundation and join a community committed to finding a world free of ALS. Stroll along the beautiful Lake Michigan shoreline, then get the party started at the Spring Market Finish Festival complete with take-home flowers, beer, brunch, live music, photo ops, and much more.
The funds you raise go toward our mission to provide the most comprehensive care and support to people living with ALS and their families so that they can confidently navigate the disease, and advance scientific research for the prevention, treatment, and cure of ALS.
2024 Life Time Chicago Spring Half Marathon and 10k – Les Turner ALS Foundation

Navigating ALS Together Support Group
2024-05-20 14:00 - 15:00, 2024-06-17 14:00 - 15:00, 2024-07-15 14:00 - 15:00 UTC
Meets the Third Monday of each month from 2-3:15 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

ALS Caregivers Support Group
2024-05-20 15:30 - 16:30, 2024-06-17 15:30 - 16:30, 2024-07-15 15:30 - 16:30 (America/Chicago)
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the guidance and encouragement of a devoted facilitator, caregivers can find the strength to persevere. And, by feeling heard and understood, caregivers become more equipped to face another day with new coping strategies.
Time: Meets the Third Monday of each month from 3:30 – 4:30 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please RSVP here.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Navigating ALS Together Support Group
2024-05-25 10:30 - 11:30, 2024-06-22 10:30 - 11:30 UTC
Meets the Fourth Saturday of each month from 10:30 am-11:30 a.m.
Facilitator(s): Rochelle Walwer, LCSW
RSVP: Click here to register
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Lou Gehrig Day Game - Chicago White Sox
2024-05-26
Join us at Guaranteed Rate Field on Sunday, May 26 at 1:10 p.m for the Chicago White Sox game against the Baltimore Orioles.
A portion of all tickets sales will benefit our Foundation.
Once you buy your tickets please email Kim at kkempf@lesturnerals.org to get more information about our pregame tailgate.

Click the buy tickets

Living After Loss (Bereavement Group)
2024-05-27 18:00 - 19:30, 2024-06-24 18:00 - 19:30, 2024-07-22 18:00 - 19:30 (America/Chicago)
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will be shared about how to remain connected to the memory of a loved one.
Date: Fourth Monday
Time: 6pm – 7:30pm
Facilitator(s): Easton Stevenson, LCSW

RSVP: Email supportgroup@lesturnerals.org.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

ALS Learning Series: Developing tools to help people living with ALS make difficult decisions
2024-05-30 18:00 - 19:00 (America/Chicago)
People living with ALS must make many complex decisions regarding their future care needs, which can be stressful and overwhelming. In our upcoming ALS Learning Series, with Dr. Anne Hogden, she’ll discuss how she and other researchers have collaborated with the ALS community, their family members, and their ALS care teams to develop tools that support people living with ALS to make informed choices for their care and quality of life.
Thursday, May 30, 2024, 6pm CST
Dr Anne Hogden PhD, B SpPath, BA (Hons) is a Senior Lecturer and researcher with the School of Population Health, Faculty of Medicine and Health, University of New South Wales, Australia. She is a serving member of MND Research Australia, MND Australia Research Committee, The MND Collective Board and MND Collective Clinical Care working group. Her work focuses on patient decision support tool development for MND/ALS care. She has authored the first-ever MND/ALS patient decision support tool in Australia and assisted in similar tool development in the UK and USA.
Register now!

Lou Gehrig Day Game - Chicago Cubs
2024-06-02
Join us at Wrigley Field on Sunday, June 2 at 1:20 p.m. for the Chicago Cubs game against the Cincinnati Reds.

All ticket prices include a Lou Gehrig’s Day shirt from the Cubs as well as a Les Turner/Lou Gehrig Day Shirt from the Les Turner ALS Foundation.
Tickets are located in Section 228

Buy tickets

End The Legacy's Genetic ALS & FTD Community Summit 2024
2024-06-07 - 2024-06-09
We are so pleased and excited to open up registration to all impacted by Genetic ALS & FTD to our first Community Summit of those impacted by genetic ALS & FTD. The event will be held in Chicago with local host the Les Turner ALS Foundation, from Friday afternoon, June 7th, through Sunday mid-day, June 9th. The summit will focus on informal connections for the dozens of participants, a NEALS Clinical Research Learning Institute, and skill-building panels for a strong Genetic ALS & FTD patient movement. Learn more and sign up here!
Questions, please email info@endthelegacy.org

Navigating ALS Together Support Group
2024-06-08 10:30 - 12:00, 2024-07-13 10:30 - 12:00 UTC
Meets the Second Saturday of each month from 10:30am – 12:00 pm
Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM
RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

ALS Learning Series: Control your phone with your voice
2024-06-20 12:00 - 13:00 (America/Chicago)
Thursday, June 20, at 12:00 P.M. CST
What should someone with ALS do to control their phone or tablet, when direct tapping on the screen becomes difficult? This ALS Learning Session will describe in detail how to control your mobile devices totally hands-free with just your voice. After seeing how powerful Voice Control is on iPhones and iPads, and Voice Access is on Androids, you’ll wonder why these absolutely free and easy-to-use software utilities aren’t more well known! These voice tools are truly good news for almost all people with ALS who are experiencing loss of motor ability in their hands.
The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar.
Eddy Ehrlich is the Assistive Technology Specialist at Bridging Voice. He came to the field of Assistive Technology through his combination training as an occupational therapist and a mechanical engineer and has provided evaluations and trainings to people in various settings: schools, hospitals, and homes. Eddy specializes in computer access and augmentative communication. Over the past 30 years he has seen promising emerging technologies transform into powerful products for people with disabilities including voice-control and eye-tracking. Eddy has been a salesperson and a therapist but has always seen himself as an assistive technology educator, believing that knowledgeable consumers evolve into more powerful and independent tech users. Eddy works patiently but diligently to train people in expanding their technical skills because poorly implemented technology solutions can be so overwhelming and frustrating. Eddy has been with Bridging Voice nearly since its beginning in 2019, now working nationally [and all over the world] with a team of 10 experts to remove the access barriers between people with ALS and communication. See more at www.bridgingvoice.org

Moving Forward After Loss: Spousal/ Partner Bereavement Group Summer Session
2024-06-27 18:00 - 19:30 (America/Chicago)
A closed, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months.
This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one.
Summer Session- June 27 – August 1, 2024
Visit our Calendar of Events for upcoming dates.
Time: 6 – 7:30 p.m. C.S.T

Facilitator: Easton Stevenson, LCSW

RSVP: Please register here. This group is invite only.

Moving Forward After Loss: Spousal/ Partner Bereavement Group Summer Session
2024-07-02 18:00 - 19:30, 2024-07-09 18:00 - 19:30, 2024-07-16 18:00 - 19:30 (America/Chicago)
A closed, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months.
This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one.
Summer Session- July 2 – August 6, 2024
Visit our Calendar of Events for upcoming dates.
Time: 6 – 7:30 p.m. C.S.T

Facilitator: Easton Stevenson, LCSW

RSVP: Please register here. This group is invite only.

NASCAR in Chicago Watch Party with Gordon Scully
2024-07-06
Join us at Mother Hubbard’s Sports Pub, 5 W Hubbard St in Chicago on Saturday, July 6. IMSA Michelin Pilot Challenge GT4 professional driver, Gordon Scully, will host the watch party.

Navigating ALS Together
2024-07-20 10:30 - 12:30 (America/Chicago)
Time: 10:30 – 11:30 a.m. C.S.T

Facilitator: Rochelle Walwer, LCSW

RSVP: Please register here.
