Les Turner ALS Foundation

Lou Gehrig Day Game - Chicago Cubs
2024-06-02
Join us at Wrigley Field on Sunday, June 2 at 1:20 p.m. for the Chicago Cubs game against the Cincinnati Reds.

All ticket prices include a Lou Gehrig’s Day shirt from the Cubs as well as a Les Turner/Lou Gehrig Day Shirt from the Les Turner ALS Foundation.
Tickets are located in Section 228

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End The Legacy's Genetic ALS & FTD Community Summit 2024
2024-06-07 - 2024-06-09
We are so pleased and excited to open up registration to all impacted by Genetic ALS & FTD to our first Community Summit of those impacted by genetic ALS & FTD. The event will be held in Chicago with local host the Les Turner ALS Foundation, from Friday afternoon, June 7th, through Sunday mid-day, June 9th. The summit will focus on informal connections for the dozens of participants, a NEALS Clinical Research Learning Institute, and skill-building panels for a strong Genetic ALS & FTD patient movement. Learn more and sign up here!
Questions, please email info@endthelegacy.org

Navigating ALS Together Support Group
2024-06-08 10:30 - 12:00, 2024-07-13 10:30 - 12:00, 2024-08-10 10:30 - 12:00 UTC
Meets the Second Saturday of each month from 10:30am – 12:00 pm
Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM
RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Navigating ALS Together Support Group
2024-06-17 14:00 - 15:00, 2024-07-15 14:00 - 15:00, 2024-08-19 14:00 - 15:00 UTC
Meets the Third Monday of each month from 2-3:15 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

ALS Caregivers Support Group
2024-06-17 15:30 - 16:30, 2024-07-15 15:30 - 16:30 (America/Chicago)
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the guidance and encouragement of a devoted facilitator, caregivers can find the strength to persevere. And, by feeling heard and understood, caregivers become more equipped to face another day with new coping strategies.
Time: Meets the Third Monday of each month from 3:30 – 4:30 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please RSVP here.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

ALS Learning Series: Control your phone with your voice
2024-06-20 12:00 - 13:00 (America/Chicago)
Thursday, June 20, at 12:00 P.M. CST
What should someone with ALS do to control their phone or tablet, when direct tapping on the screen becomes difficult? This ALS Learning Session will describe in detail how to control your mobile devices totally hands-free with just your voice. After seeing how powerful Voice Control is on iPhones and iPads, and Voice Access is on Androids, you’ll wonder why these absolutely free and easy-to-use software utilities aren’t more well known! These voice tools are truly good news for almost all people with ALS who are experiencing loss of motor ability in their hands.
The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar.
Eddy Ehrlich is the Assistive Technology Specialist at Bridging Voice. He came to the field of Assistive Technology through his combination training as an occupational therapist and a mechanical engineer and has provided evaluations and trainings to people in various settings: schools, hospitals, and homes. Eddy specializes in computer access and augmentative communication. Over the past 30 years he has seen promising emerging technologies transform into powerful products for people with disabilities including voice-control and eye-tracking. Eddy has been a salesperson and a therapist but has always seen himself as an assistive technology educator, believing that knowledgeable consumers evolve into more powerful and independent tech users. Eddy works patiently but diligently to train people in expanding their technical skills because poorly implemented technology solutions can be so overwhelming and frustrating. Eddy has been with Bridging Voice nearly since its beginning in 2019, now working nationally [and all over the world] with a team of 10 experts to remove the access barriers between people with ALS and communication. See more at www.bridgingvoice.org

ALS Caregivers Support Group
2024-06-20 15:00 - 16:00, 2024-07-18 15:00 - 16:00, 2024-08-15 15:00 - 16:00 (America/Chicago)
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the guidance and encouragement of a devoted facilitator, caregivers can find the strength to persevere. And, by feeling heard and understood, caregivers become more equipped to face another day with new coping strategies.
Time: Meets the Third Thursday of each month from 3:00 – 4:00 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please RSVP here.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Navigating ALS Together Support Group
2024-06-22 10:30 - 11:30 UTC
Meets the Fourth Saturday of each month from 10:30 am-11:30 a.m.
Facilitator(s): Rochelle Walwer, LCSW
RSVP: Click here to register
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Living After Loss (Bereavement Group)
2024-06-24 18:00 - 19:30, 2024-07-22 18:00 - 19:30 (America/Chicago)
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will be shared about how to remain connected to the memory of a loved one.
Date: Fourth Monday
Time: 6pm – 7:30pm
Facilitator(s): Easton Stevenson, LCSW

RSVP: Email supportgroup@lesturnerals.org.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Moving Forward After Loss: Spousal/ Partner Bereavement Group Summer Session
2024-06-27 18:00 - 19:30 (America/Chicago)
A closed, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months.
This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one.
Summer Session- June 27 – August 1, 2024
Visit our Calendar of Events for upcoming dates.
Time: 6 – 7:30 p.m. C.S.T

Facilitator: Easton Stevenson, LCSW

RSVP: Please register here. This group is invite only.

Moving Forward After Loss: Spousal/ Partner Bereavement Group Summer Session
2024-07-02 18:00 - 19:30, 2024-07-09 18:00 - 19:30, 2024-07-16 18:00 - 19:30, 2024-07-23 18:00 - 19:30, 2024-07-30 18:00 - 19:30, 2024-08-06 18:00 - 19:30 (America/Chicago)
A closed, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months.
This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one.
Summer Session- July 2 – August 6, 2024
Visit our Calendar of Events for upcoming dates.
Time: 6 – 7:30 p.m. C.S.T

Facilitator: Easton Stevenson, LCSW

RSVP: Please register here. This group is invite only.

NASCAR in Chicago Watch Party with Gordon Scully
2024-07-06
Join us at Mother Hubbard’s Sports Pub, 5 W Hubbard St in Chicago on Saturday, July 6. IMSA Michelin Pilot Challenge GT4 professional driver, Gordon Scully, will host the watch party.

Navigating ALS Together
2024-07-20 10:30 - 12:30 (America/Chicago)
Time: 10:30 – 11:30 a.m. C.S.T

Facilitator: Rochelle Walwer, LCSW

RSVP: Please register here.

ALS Learning Series: The RISE Initiative: Clinical Research, Inclusion, Support, and Education
2024-07-25 12:00 - 13:00 (America/Chicago)
Join us for our July ALS Learning Series where Allison Bullet will discuss the Research Inclusion Support and Education (RISE) Initiative of The Northeast ALS Consortium (NEALS). This important initiative includes programs like the Clinical Research Learning Institute (CRLI) Research Ambassador Program, opportunities for people to engage with researchers, and personalized support for navigating the ALS clinical research landscape, and so much more. Allsion will discuss all the programs under the initiative and answer any questions you may have.

Register now

Swing 4 Shimer Golf Outing
2024-07-28 12:00 - 17:00 (America/Chicago)
Come on out for the first annual Swing 4 Shimer golf outing in honor of LIEUTENANT Bryan “SHIMMER” SZYMCZAK.

July 28th 2024

Pinecrest Golf Course
11220 W Algonquin Rd, Huntley, IL 60142

This year, we are raising funds for the Les Turner ALS Foundation. Their mission is to provide the most comprehensive care and support to people living with ALS and their families so they can confidently navigate the disease and advance scientific research for the prevention, treatment, and cure of ALS.
As of right now, there is no cure for ALS, however, every dollar we can raise will help researchers continue their progress on a cure as well as continue to support families suffering from this disease.
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11th annual Matt Creen Invitational Golf Outing
2024-08-08
This Invitational Golf Outing has raised over $775,000 for the Les Turner ALS Foundation and has helped further the mission of creating a world without ALS and providing support to those living with ALS and their families. The event has also spread awareness about the Foundation and ALS to countless members of Matt’s community, inspiring them and others to join our cause.
Thursday, August 8, 2024
Odyssey Country Club
19110 S Ridgeland Avenue
Tinley Park, IL 60477
Registration and Driving Range – 9:00 AM
Shotgun Start – 10:45 AM
Open Bar – 4-8:00 PM
Dinner – 5:30 PM
Raffle – 6:30 PM
Get your tickets

YPG Bar Crawl
2024-08-11 08:00 - 17:00 (America/Chicago)
Hosted by the Young ProfessionALS Group of the Les Turner ALS Foundation
Join the Young ProfessionALS Group for their summer bar crawl on Sunday, August 11th from 12:00 p.m. – 4:00 p.m. at the Avenue, Cody’s Public House, and the Pony Inn in Roscoe Village.
Remember to get your ticket early to save your spot and some extra money! Pre-registration closes at 4 p.m. (CT) on Saturday, August 10th. All proceeds from ticket sales go directly to the Les Turner ALS Foundation, Chicagoland’s leader in comprehensive ALS care.
MUST BE 21 OR OLDER WITH PROOF OF ID AT THE DOOR
Entry Fee:
Pre-event Ticket – $35
At the Door Ticket – $40

Get your tickets now!
