Les Turner ALS Foundation

2024 Life Time Chicago Spring Half Marathon and 10K
2024-05-19
We don’t just race to the finish line. We race to a CURE.
Sunday, May 19, 2024
Maggie Daley Park in Chicago
Welcome to the 2024 Life Time Chicago Spring Half Marathon. Run for the Les Turner ALS Foundation and join a community committed to finding a world free of ALS. Stroll along the beautiful Lake Michigan shoreline, then get the party started at the Spring Market Finish Festival complete with take-home flowers, beer, brunch, live music, photo ops, and much more.
The funds you raise go toward our mission to provide the most comprehensive care and support to people living with ALS and their families so that they can confidently navigate the disease, and advance scientific research for the prevention, treatment, and cure of ALS.
2024 Life Time Chicago Spring Half Marathon and 10k – Les Turner ALS Foundation

Lew Blond Memorial 5K Run/Walk
2024-05-18 08:00 - 12:00 (America/Chicago)
Saturday, May 18, 2024

Northbrook, IL
The annual Lew Blond Memorial 5K Run/Walk honors former Northbrook/Glenview School District 30 teacher Lew Blond, who passed away from ALS in 2000. A portion of the proceeds go to the Les Turner ALS Foundation in Lew’s memory.
There are activities for all age levels including the Little Lew 50-yard dash for children up to six years old. The Lew Blond 5K is a great chance for people of all ability levels to get some exercise, enjoy the sun, and support ALS care and research.
During registration, if you select ‘Les Turner ALS Foundation’ in the “How did you hear about the Lew Blond Run?” drop-down, the full proceeds from your registration will be donated to the Foundation.

https://www.lewblondrun.org/

Moving Forward After Loss: Spousal/Bereavement Group Spring Session
2024-05-16 18:00 - 19:30, 2024-05-09 18:00 - 19:30, 2024-05-02 18:00 - 19:30, 2024-04-25 18:00 - 19:30, 2024-04-18 18:00 - 19:30, 2024-04-11 18:00 - 19:30 (America/Chicago)
A closed, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months.
This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one.
Spring Session- April 11- May 16, 2024
Visit our Calendar of Events for upcoming dates.
Time: 6 – 7:30 p.m. C.S.T

Facilitator: Easton Stevenson, LCSW

RSVP: Please register here. This group is invite only.

ALS Caregivers Support Group
2024-05-16 15:00 - 16:00, 2024-04-18 15:00 - 16:00, 2024-03-21 15:00 - 16:00 (America/Chicago)
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the guidance and encouragement of a devoted facilitator, caregivers can find the strength to persevere. And, by feeling heard and understood, caregivers become more equipped to face another day with new coping strategies.
Time: Meets the Third Thursday of each month from 3:00 – 4:00 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please RSVP here.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Navigating ALS Together Support Group
2024-05-11 10:30 - 12:00, 2024-04-13 10:30 - 12:00, 2024-03-09 10:30 - 12:00 UTC
Meets the Second Saturday of each month from 10:30am – 12:00 pm
Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM
RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Hampshire Softball Strikes Out ALS
2024-05-11 10:00 - 14:00 (America/Chicago)
Hampshire High School Softball is hosting a fundraiser to Strike-Out ALS on May 11th. It will be a great day to watch some softball while giving away some great raffle baskets. All the proceeds raised from the fundraiser will be given to the Les Turner ALS Foundation’s Fundraise Your Way program.
Location: Hampshire High School Saturday, May 11th, 2024
Tickets sold at the door.
10 AM – Hampshire V. Woodstock North, Noon – Woodstock North V. Bartlett, 2 PM – Hampshire V. Bartlett
Click to learn more

Navigating ALS Together Support Group
2024-04-27 10:30 - 11:30, 2024-03-23 10:30 - 11:30, 2024-02-24 10:30 - 11:30 UTC
Meets the Fourth Saturday of each month from 10:30 am-11:30 a.m.
Facilitator(s): Rochelle Walwer, LCSW
RSVP: Click here to register
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Living After Loss (Bereavement Group)
2024-04-22 18:00 - 19:30, 2024-03-25 18:00 - 19:30, 2024-02-26 18:00 - 19:30 (America/Chicago)
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will be shared about how to remain connected to the memory of a loved one.
Date: Fourth Monday
Time: 6pm – 7:30pm
Facilitator(s): Easton Stevenson, LCSW

RSVP: Email supportgroup@lesturnerals.org.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

ALS Caregivers Support Group
2024-04-15 15:30 - 16:30, 2024-03-18 15:30 - 16:30 (America/Chicago)
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the guidance and encouragement of a devoted facilitator, caregivers can find the strength to persevere. And, by feeling heard and understood, caregivers become more equipped to face another day with new coping strategies.
Time: Meets the Third Monday of each month from 3:30 – 4:30 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please RSVP here.
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Navigating ALS Together Support Group
2024-04-15 14:00 - 15:00, 2024-03-18 14:00 - 15:00 UTC
Meets the Third Monday of each month from 2-3:15 p.m.
Facilitator: Anne Lidsky, PhD
RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*

Hope Through Caring Gala 2024
2024-04-13 18:00 - 23:00 (America/Chicago) | Radisson Blu Aqua Hotel, 221 N Columbus Drive, Chicago, IL, 60601, United States
This year, as for the past 35 years, the Les Turner ALS Foundation will bring together Chicago’s top minds in ALS research and care, business, academics, philanthropy, and most importantly, people living with ALS, for one of the city’s most elegant and most prestigious black-tie optional events of the year: the 36th Annual Hope Through Caring Gala, at the Radisson Blu Aqua Hotel on Saturday, April 13, 2024. There will also be a virtual option available with a link to view the program.

ALS Learning Series: The role of multidisciplinary care in ALS
2024-03-28 12:00 - 13:00 (America/Chicago)
Join us for our March ALS Learning Series, where team members and people living with ALS will explore the crucial role of collaboration in delivering holistic care. Discover how multidisciplinary clinics can help people living with ALS to live longer and with a higher quality of life. From exploring treatment options to providing emotional support, our panel will illustrate how this approach significantly enhances the well-being of people living with ALS, their families, and caregivers. This webinar will also discuss the ALS Better Care Act (HR 5663/S.3258), which will enhance Medicare reimbursement for multidisciplinary clinics nationwide, improving care for people living with ALS. You’ll learn how you can get involved in supporting this legislation. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation, Biogen, & Mitsubishi Tanabe Pharma America for sponsoring this webinar.

https://register.gotowebinar.com/register/7883989190684308310

About the Speakers: Chaunelle Caver-Perkins, Support Services Committee Member, Les Turner ALS Foundation
Janie Gobeli, advisory committee member for the HEALEY ALS Platform Trial and the QurAlis/CISCRP Global Patient Advisory Board, ALS Research Ambassador for the Northeast ALS Consortium (NEALS), and a reviewer for the Les Turner ALS Foundation’s educational materials and programs.
Frank Granata, member of the Foundation’s Board of Directors and Support Services Committee Member, Les Turner ALS Foundation
April Szymanksi, RN, MSN, APN-BC, Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine
Lauren Webb, LCSW, Chief Advocacy & Outreach Officer, Les Turner ALS Foundation

NCAA March Madness Bracket Challenge Kickoff
2024-03-14 18:30 - 22:00 (America/Chicago)
Our NCAA tournament kick-off party is on Thursday, March 14th at 6:30 pm at the Pony Inn and will include free pizza and apps if you purchase a bracket. See you there!
The Pony Inn will also offer 1/2 price apps, $3 frosty mugs until 8 pm, $18 domestic buckets, $10 waffle nachos, and trivia starting at 8 pm.

NCAA2024 | Powered By GiveSmart

Chicago Wolves ALS Awareness Game
2024-03-10 15:00 - 18:00 (America/Chicago)
Join us for an unforgettable night of hockey in support of ALS awareness!
Grab your tickets now for the Chicago Wolves game on ALS Awareness Night. A portion of the proceeds will be donated to the Les Turner ALS Foundation.

Let’s score big for a great cause!
Buy your tickets

Moving Forward After Loss Spousal/Partner Bereavement Group Winter Session
2024-02-29 18:00 - 19:30 (America/Chicago)
A closed, six-week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months.
This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one.
Winter Session – January 25 – February 27, 2024
Time: 6 – 7:30 p.m. C.S.T
Facilitator: Easton Stevenson, LCSW
RSVP: Please register here. This group is invite only.
