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X-WR-CALNAME:Les Turner ALS Foundation
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X-WR-CALDESC:Events for Les Turner ALS Foundation
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DTSTART;TZID=America/Chicago:20210930T120000
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CREATED:20210921T192622Z
LAST-MODIFIED:20210922T143502Z
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SUMMARY:ALS Learning Series: Designing a Toolbox for Continuous Communication with Your Existing Technology
DESCRIPTION:ALS Learning Series: Designing a Toolbox for Continuous Communication with Your Existing Technology\nFeaturing Janet Bischof-Rosario\, Allied Health Supervisor and Occupational Therapist in the Technology Center at the Shirley Ryan AbilityLab and AnneMarie Doyle\, Senior Speech-Language Pathologist at Shirley Ryan AbilityLab\nThursday\, September 30 at 12 p.m. CT\n  \nAs ALS can affect speech and the ability to handle standard communication devices\, this webinar will identify solutions for continuing to use smart phones\, tablets\, and computers. \nThis course will focus on making communication as easy as possible throughout this difficult journey\, using technology and collaboration with each person’s team including their family\, caregivers\, therapists\, physicians\, and vendors. \nRegister and learn more here \n 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/designing-a-toolbox-for-continuous-communication-with-your-existing-technology/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20211007T120000
DTEND;TZID=America/Chicago:20211007T130000
DTSTAMP:20260505T025823
CREATED:20210922T134635Z
LAST-MODIFIED:20210922T141605Z
UID:10000383-1633608000-1633611600@lesturnerals.org
SUMMARY:ALS Learning Series: Family Planning and ALS
DESCRIPTION:ALS Learning Series: Family Planning and ALS\nFeaturing  Lisa Kinsley\, Senior Genetic Counselor\, Neurology Department at Northwestern Medicine\nThursday\, October 7 at 12 p.m. CT\n \n  \nGenetic testing for a familial ALS gene may have implications for those who are considering whether or not to start a family. \nThis webinar will review the family planning options available to individuals who are interested in reducing the risk of passing on a genetic disorder. \nWe’ll review what is involved in each option as well as some of the biological\, ethical and financial considerations that play a role in this important decision. \nRegister and learn more here
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/als-learning-series-family-planning-and-als/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250724T120000
DTEND;TZID=America/Chicago:20250724T130000
DTSTAMP:20260505T025823
CREATED:20250701T203044Z
LAST-MODIFIED:20250701T203044Z
UID:10002441-1753358400-1753362000@lesturnerals.org
SUMMARY:ALS Learning Series: Voice Preservation Beyond Recording: Creating and Using My Preserved Voice
DESCRIPTION:Join us for our July ALS Learning Series featuring a comprehensive review of current best practices and tools in Message Banking\, Voice Banking\, and Voice Cloning\, including the role of Artificial Intelligence (AI) in voice preservation. After a diagnosis of a progressive condition that impacts speech\, an urgent priority is preserving one’s voice.  However\, recording your voice is only the first step. Part of the feature matching process is to determine compatibility and integration of one’s preserved voice into communication apps and software. We will cover the full process from recording through integration\, updates on current technologies\, including AI’s role in voice preservation\, and treatment recommendations for using one’s preserved voice most effectively and efficiently for functional communication. 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/als-learning-series-voice-preservation-beyond-recording-creating-and-using-my-preserved-voice/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250821T120000
DTEND;TZID=America/Chicago:20250821T130000
DTSTAMP:20260505T025823
CREATED:20250819T212216Z
LAST-MODIFIED:20250820T145154Z
UID:10002442-1755777600-1755781200@lesturnerals.org
SUMMARY:Making Daily Life Easier: Occupational Therapy Solutions for People Living with ALS
DESCRIPTION:Join us for an informative session about how occupational therapy can support your daily activities and quality of life while living with ALS. Becca Schroeder\, MOT\, OTR/L\, will explore practical strategies\, adaptive equipment\, and energy conservation techniques that can help you maintain independence in your home and community utilizing her skills as an occupational therapist paired with the expertise of people living with ALS. This webinar will provide you with actionable tools and resources to navigate daily challenges with confidence.  \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar.  
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/making-daily-life-easier-occupational-therapy-solutions-for-people-living-with-als/
LOCATION:https://us02web.zoom.us/webinar/register/WN_NvIxvs4-TQSR5BwY_maltA  
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250908T120000
DTEND;TZID=America/Chicago:20250908T130000
DTSTAMP:20260505T025823
CREATED:20250820T171824Z
LAST-MODIFIED:20250820T172059Z
UID:10002445-1757332800-1757336400@lesturnerals.org
SUMMARY:Participation in the National ALS Registry
DESCRIPTION:ALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease\, its causes\, and how to fight it. Join us for our January ALS Learning series with Reshma Punjani and Janie Gobeli to learn how the National ALS Registry helps advance research. Reshma will discuss how to join the National ALS Registry\, what information they collect and why\, and the type of research the registry is conducting\, while Janie will discuss her personal experience with the registry. A Q&A session will follow the discussion.     \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar. 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/participation-in-the-national-als-registry/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250925T120000
DTEND;TZID=America/Chicago:20250925T130000
DTSTAMP:20260505T025823
CREATED:20250820T145558Z
LAST-MODIFIED:20250820T145720Z
UID:10002444-1758801600-1758805200@lesturnerals.org
SUMMARY:Better Bowel Days: Managing the Burden of Constipation in People living with ALS
DESCRIPTION:Join us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in this population\, examine the role of dietary fiber\, and discuss how hydration supports bowel health. The session will provide practical strategies to support digestive wellness in ALS care.  \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar.  
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/better-bowel-days-managing-the-burden-of-constipation-in-people-living-with-als/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251211T120000
DTEND;TZID=America/Chicago:20251211T130000
DTSTAMP:20260505T025823
CREATED:20251124T195418Z
LAST-MODIFIED:20251124T195418Z
UID:10002516-1765454400-1765458000@lesturnerals.org
SUMMARY:ALS Learning Series: The Cost of ALS - Where Research Stands and How it Compares to Other Diseases
DESCRIPTION:Join us for our December ALS Learning Series featuring Dr. Grouls who will explore a concept people living with ALS know all too well: the financial burden of disease. She will trace the evolution of financial burden research in ALS\, drawing comparisons with the more established field of financial toxicity research in oncology.  She’ll share what we’re learning from the latest research and what’s currently being studied—and just as importantly\, she’ll point out where we still need answers.  \n 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/als-learning-series-the-cost-of-als-where-research-stands-and-how-it-compares-to-other-diseases/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260129T120000
DTEND;TZID=America/Chicago:20260129T133000
DTSTAMP:20260505T025823
CREATED:20251211T194720Z
LAST-MODIFIED:20251211T194720Z
UID:10002519-1769688000-1769693400@lesturnerals.org
SUMMARY:ALS Learning Series: Living Fully\, Living Well: How Palliative Care Can Help
DESCRIPTION:Join us for our January learning series featuring Kara E. Bischoff\, MD. This talk will provide an introduction to palliative care and how it can be helpful to people with ALS and their loved ones. Aspects of advance care planning that are important for people with ALS will be discussed. Hospice will also be described and distinguished from palliative care. Finally\, information about how to find palliative care services will be provided. Questions will be solicited and answered.       \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar. 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/als-learning-series-living-fully-living-well-how-palliative-care-can-help/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260212T120000
DTEND;TZID=America/Chicago:20260212T130000
DTSTAMP:20260505T025823
CREATED:20260122T190744Z
LAST-MODIFIED:20260122T190823Z
UID:10002556-1770897600-1770901200@lesturnerals.org
SUMMARY:ALS Learning Series: Hospice Care and ALS: What It Is\, When to Consider It\, and How It Supports You
DESCRIPTION:Join us for our February ALS Learning Series which will provide an overview of hospice care and how it supports individuals living with ALS and their caregivers. Participants will learn what hospice is\, when it may be appropriate\, and how it can improve comfort\, quality of life\, and emotional well-being. The session will also address common myths about hospice and offer guidance on starting these important conversations. Time will be reserved for questions and discussion.   \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar.
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/als-learning-series-hospice-care-and-als-what-it-is-when-to-consider-it-and-how-it-supports-you/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260423T120000
DTEND;TZID=America/Chicago:20260423T130000
DTSTAMP:20260505T025823
CREATED:20260415T161450Z
LAST-MODIFIED:20260415T161636Z
UID:10002704-1776945600-1776949200@lesturnerals.org
SUMMARY:ALS Learning Series: Informed Decision-Making in ALS: An Open Discussion on Tracheostomy and Invasive Mechanical Ventilation
DESCRIPTION:Join us for an open and honest conversation about one of the more challenging decisions people living with ALS face: whether to pursue tracheostomy and invasive mechanical ventilation. Our panel discussion brings together diverse perspectives; through their stories and insights\, this webinar will help people with ALS\, their families\, and care partners understand the medical\, emotional\, and practical considerations involved in this decision. Whether you’re considering this option or supporting someone through their decision\, this discussion will provide valuable perspectives to inform your journey.  \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Biogen & Tanabe Pharma America for sponsoring this webinar. 
URL:https://lesturnerals.org/https-us02web-zoom-us-webinar-register-wn_nvixvs4-tqsr5bwy_malta-registration/als-learning-series-informed-decision-making-in-als-an-open-discussion-on-tracheostomy-and-invasive-mechanical-ventilation/
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