March 2021 Foundation eNews

lesturner Advocacy, ALS Learning Series, Foundation eNews, Home Page, Research & The Les Turner ALS Center

Newly Discovered Compound Found to Reverse ALS Neuron Damage “We have identified the first compound that improves the health of upper motor neurons that become diseased,” shares Hande Ozdinler, PhD, senior author of the study along with Richard B. Silverman, …

Working to Make True on a Wish

lesturner Advocacy, Faces of ALS, Home Page, Research & The Les Turner ALS Center

When Jonathan Brent, MD, PhD, asks his ALS patients what their goals are, the answer is almost always the same: to find a cure for ALS. “What motivates me,” says Dr. Brent, “is how I can make true on that …

February 2021 Foundation eNews

lesturner Advocacy, Foundation eNews, Home Page, Research & The Les Turner ALS Center

Therapeutic Potential for New ALS Drug According to a recent study published in JAMA Neurology, ezogabine, an experimental drug, is found to have potential therapeutic possibilities for ALS treatment. “Most importantly, ezogabine decreased cortical and spinal motor neuron excitability in …

January 2021 Foundation eNews

lesturner Advocacy, Foundation eNews, Home Page, Research & The Les Turner ALS Center, Support Services

ALS Disability Insurance Access Act Signed into Law We are excited to announce that on December 22, the ALS Disability Insurance Access Act was signed into law, which waives the mandatory five-month waiting period for ALS patients to receive Social …

December 2020 Foundation eNews

lesturner Advocacy, ALS Learning Series, Foundation eNews, Home Page, Research & The Les Turner ALS Center, Support Services

Be a Giver this Giving Tuesday This holiday season, your tax-deductible gift provides life-changing help to a person living with ALS. There is no better time to kick off your end of year giving than today, Giving Tuesday – the …

November 2020 Foundation eNews

lesturner Advocacy, ALS Learning Series, Foundation eNews, Home Page, Research & The Les Turner ALS Center, Support Services

Empowering through ALS Education We are excited to launch our new online learning series aimed at empowering our ALS community through the latest information and insights. Educational webinars and interactive Q&A’s covering a diverse array of topics, from telemedicine to …

Amylyx Publishes CENTAUR Survival Data Demonstrating Statistically Significant Survival Benefit of AMX0035 for People with ALS

lesturner Foundation Blog, Home Page, Research & The Les Turner ALS Center

We are excited to share some promising data regarding the CENTAUR trial evaluating AMX0035 in people with ALS on overall survival analysis, published today (October 16, 2020)  in the neuromuscular disease journal Muscle & Nerve. The survival analysis followed each …