January 2021 Foundation eNews

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ALS Disability Insurance Access Act Signed into Law We are excited to announce that on December 22, the ALS Disability Insurance Access Act was signed into law, which waives the mandatory five-month waiting period for ALS patients to receive Social …

December 2020 Foundation eNews

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Be a Giver this Giving Tuesday This holiday season, your tax-deductible gift provides life-changing help to a person living with ALS. There is no better time to kick off your end of year giving than today, Giving Tuesday – the …

November 2020 Foundation eNews

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Empowering through ALS Education We are excited to launch our new online learning series aimed at empowering our ALS community through the latest information and insights. Educational webinars and interactive Q&A’s covering a diverse array of topics, from telemedicine to …

Amylyx Publishes CENTAUR Survival Data Demonstrating Statistically Significant Survival Benefit of AMX0035 for People with ALS

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We are excited to share some promising data regarding the CENTAUR trial evaluating AMX0035 in people with ALS on overall survival analysis, published today (October 16, 2020)  in the neuromuscular disease journal Muscle & Nerve. The survival analysis followed each …

October 2020 Foundation eNews

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Join our 10th Annual Les Turner Symposium on ALS – Monday, November 9 Registration is now open for our 10th Annual Symposium, hosted by our own Les Turner ALS Center at Northwestern Medicine. This year’s event will be held virtually on …

Data from Amylyx’s CENTAUR trial shows promise in slowing ALS progression

lesturner Foundation Blog, Home Page, Research & The Les Turner ALS Center

We are very pleased to share promising data published this week in the New England Journal of Medicine from the recent CENTAUR trial, conducted by Amylyx Pharmaceuticals, showing that AMX0035, the combination drug of sodium phenylbutyrate–taurursodiol, can slow functional decline …

September 2020 Foundation eNews

lesturner Foundation eNews, Home Page, Research & The Les Turner ALS Center, Support Services

Join our 10th Annual Les Turner Symposium on ALS Registration is now open for our 10th Annual Symposium, hosted by our own Les Turner ALS Center at Northwestern Medicine. This year’s event will be held virtually on Nov, 9, and …

August 2020 Events eNews

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$20,000 Triple Your Impact Challenge We’re kicking this Events eNews off with a new ALS Walk for Life Team Challenge! Starting today, the first 10 teams to register, raise $1,000 AND recruit 10 walkers will receive a $3 to $1 match ($2,000 …