August 2020 Foundation eNews

New and Improved Clinical Trials Webpage While it may feel like much in life is on pause at the moment, there is exciting news in the ALS clinical trials and studies space, including information on the upcoming HEALEY ALS Platform …

July 2020 Foundation eNews

HEALEY ALS Platform Clinical Trial Update Our Les Turner ALS Center at Northwestern Medicine is a participating site for the first-ever ALS platform trial. The clinical drug trial, led by the Sean M. Healey & AMG Center at Massachusetts General …

June 2020 Foundation eNews

Upper Motor Neuron Degeneration Pinpointed  In a recent study published in Frontiers in Molecular Neuroscience, researchers at our Les Turner ALS Center at Northwestern Medicine and the University of Belgrade have discovered the electrophysiological mechanism behind upper motor neuron disease, which …

How to Prepare for a Telehealth Visit

Due to the recent COVID-19 pandemic, many people, especially those living with ALS, have needed to change their routines in several ways including pivoting their medical appointments to telehealth visits.  A recent article published in Brain & Life Magazine shared …

A Letter From Our CEO

Dear Friends, On Friday, due to the COVID-19 outbreak, the Governor of Illinois issued a statewide shelter-in-place order, similar to what we’ve seen in other parts of the country. This news creates challenges for all of us. How do we …

Telehealth – How We’re Adapting

The need to adapt to changing circumstances is not new to those with ALS. ALS requires constant attention and creativity to stay ahead of physical and emotional changes. As news continues to emerge about precautions against COVID-19, we are all …

March 2020 Events eNews

A Record-Breaking Hope Through Caring Gala We broke the record at our Hope Through Caring Gala by raising over $900,000 to support our Chicagoland ALS community and advance scientific research. We are so grateful to Ed Rapp, recipient of the …