ALS Learning Series
The Cost of ALS - Where Research Stands and How it Compares to Other Diseases
December 11, 2025
Astrid Grouls, MD is a palliative care physician and clinical researcher at the Baylor College of Medicine in Houston, TX. She obtained her medical degree and completed her internal medicine training at McGovern Medical School in Houston before completing a palliative care fellowship at MD Anderson. She began at Baylor College of Medicine in 2020 and works on the inpatient palliative care service and at the ALS Multidisciplinary Clinic. Her clinical research focuses on improving quality of life for people living with ALS and spans advance care planning, fatigue and financial burden.
In this presentation, Dr. Grouls will explore a concept people living with ALS know all too well: the financial burden of disease. She will trace the evolution of financial burden research in ALS, drawing comparisons with the more established field of financial toxicity research in oncology. She'll share what we're learning from the latest research and what's currently being studied—and just as importantly, she'll point out where we still need answers.
The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar.
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