Consider the best time to get genetic testing

If you’re interested in genetic testing, your genetic counselor can help you decide when to get tested. Here are a few factors you may want to consider and discuss with your counselor:

• Do you have a strong support system? Are there family members or friends who can support you as you go through the genetic testing process? Keep in mind that genetic testing may bring up past traumatic experiences related to ALS or other conditions in your family. A mental health professional can also help you through the ups and downs that may come with genetic testing.
• Are you going through a stressful situation, like caring for your relative with ALS or a related condition, a divorce or breakup, a career change, or a big move? If you’re already feeling stressed or overwhelmed, it may be helpful to wait to start genetic testing.
• Do you want to start a family? If so, you may want to get genetic testing sooner rather than later, so you can learn about family planning options and decide if you want to pursue alternative reproductive methods.
• If you have children, what’s going on in their lives? Some people may choose to wait until their children are older, when life may be less hectic.

Meeting with a genetic counselor does not mean you have to do any type of genetic testing. Genetic testing is a very personal decision, and there are no right or wrong answers! It’s always your decision to make, and you can move forward at your own pace — if you decide to move forward at all.