Learn about genetic testing and decide if it’s right for you

As part of the genetic counseling process, you can choose to get genetic testing to learn more detailed information about your risk of developing ALS or related conditions. Your counselor will explain how genetic testing works and walk through all the benefits and downsides, so you can decide if it’s right for you.

Your counselor will also explain how you can use your genetic testing results to plan for the future. Many people with a family history of ALS see a genetic counselor to explore family planning options. For example, some people may choose to pursue special reproductive options to avoid passing down genetic differences linked to ALS or related conditions.

If you already have children, you may wonder if they can get genetic testing, too. In general, genetic counselors don’t recommend testing for children and teens, so young people can make their own decisions about testing once they are 18 or older. If you’re concerned that your child may have symptoms of ALS or a related condition, consider taking them to a neurologist. While it’s rare for these conditions to develop before age 30, a neurologist can evaluate your child’s symptoms and recommend next steps if needed.