Progress — 94%
Downsides: What matters most to you?
Do any of these downsides of using a trach and IMV stand out to you?
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If you choose to use a trach and IMV, you’ll need caregiver support throughout the day. It’s a good idea to talk to your loved ones as you consider your options, so everyone will know what to expect.
Using a trach and IMV is more expensive than using non-invasive ventilation (NIV), as the medical equipment is expensive and insurance typically doesn’t cover the cost of caregiving services.
Like any surgery, surgery to get a trach has risks. Your care team can go over the risks with you.
Many types of trachs and ventilators can make it harder to speak or prevent you from speaking, but you can learn to communicate using augmentative and alternative communication (AAC).
Having a trach can make it harder to swallow, but your ALS care team can recommend ways to make swallowing easier, like changing your diet or switching to a different type of trach.
If you get a trach, you will need to have your lungs suctioned regularly. Your ALS care team can give you guidance on how often to suction and ways to make it as comfortable as possible.
While using a trach and IMV can help you live longer, it cannot stop ALS from progressing (getting worse).
Using a trach and IMV will bring big changes to your daily life. The challenges that come with using a trach and IMV can bring up strong feelings of depression, frustration, or anxiety.
