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About this tool

If you’ve been diagnosed with ALS, you can volunteer to participate in clinical research. Your participation in clinical research has many benefits — including helping scientists and doctors learn more about ALS through your experience. By taking part in clinical research, you can be an essential partner in finding answers for everyone living with ALS.

You can use this tool to learn about clinical research and think about whether participating could be right for you. Then you can talk to your medical providers and other people in your life to help you decide.

A doctor sitting with a patient while having a discussion.

Would you like to learn more about participating in ALS clinical research?

About the Les Turner ALS Foundation

Founded in 1977, the Les Turner ALS Foundation is the oldest independent ALS group in the country. For more than 45 years, it has been our mission to provide the most comprehensive care and support to people living with ALS and their families so they can confidently navigate the disease and have access to the most promising therapies. We treat each person like family, supporting them every step of the way, and provide their loved ones with answers and encouragement. Our Les Turner ALS Center at Northwestern Medicine is advancing vital care and research in pursuit of life-enhancing treatments and a cure.

About NEALS (the Northeast Amyotrophic Lateral Sclerosis Consortium^®)

This tool was developed in collaboration with NEALS. NEALS is the world’s largest consortium of clinical research sites dedicated to rapidly translating scientific advances into clinical research and new treatments for people living with ALS. Through the ALS Clinical Research Learning Institute^® (CRLI) Research Ambassador Program, NEALS actively supports the integration of lived experience into the global drug development process by creating collaboration opportunities within the patient community, academia, and industry that ensure a patient-centric approach to treatment discovery.