Quick recap

Let’s review what you’ve learned.

People living with ALS, along with family members and caregivers, are essential partners in ALS research. If you choose to participate in clinical research, you can help scientists and doctors learn about ALS and work toward finding new ways to diagnose, treat, or prevent this disease.

For many people, participating in research can be an empowering experience. But it’s important to carefully weigh the possible benefits, like helping future generations or getting access to an investigational product, with the possible risks, like side effects. Thinking about the resources needed to participate, like time and energy, can also help you make an informed decision that’s best for you. And keep in mind that your participation is voluntary — you can talk to the research team about any of your concerns or questions, and you can decide to stop participating at any time for any reason.