About this tool

People living with ALS can get genetic testing to learn more about why they developed the condition. The information you learn from genetic testing can help you make decisions about your ALS care and plan for the future. If you have ALS, you can use this tool to learn about genetic testing and decide if it’s right for you.

Researchers have found pathogenic variants, or differences in specific genes, that can cause people to develop ALS. Genetic testing may tell you if your specific type of ALS was linked to a pathogenic variant.

Anyone living with ALS can benefit from genetic testing, but you’re more likely to get clear answers from genetic testing if you have a family history of ALS. You can use this tool to learn about genetic testing and think about whether it’s right for you. Then talk to your ALS care team about any questions you have. Together, you and your care team can make a plan that works for you.

Would you like to learn more about genetic testing for ALS?