Quick recap

Let’s review what you’ve learned.

People living with ALS can get genetic testing to learn more about their condition. Genetic testing may tell you:

• If the type of ALS you have is linked to a pathogenic variant (differences in certain genes that can cause people to develop ALS)
• If you’re likely to experience other symptoms in the future, like cognitive changes (changes in how you think and behave)
• If there are more effective ways to manage your ALS symptoms
• If you can participate in certain clinical trials (research studies where participants try new medical treatments) or other research studies
• If your children or other family members are more likely to develop ALS or related conditions

Knowing this information may help you make choices about your ALS treatment, prepare for your future care needs, and plan for your family’s future. 

It’s important to understand the benefits of genetic testing, as well as the limitations and challenges.