Using IMV safely

To use IMV safely, you will need a device to prevent the ventilator from disconnecting from your trach. If you’re using IMV at home, you’ll need to make sure that your home has the right electrical connections to support your ventilator.  

If you choose to use IMV, you and your caregiver(s) will need to plan ahead for everything — from short outings (like running errands or going to the doctor) to overnight trips to emergency situations. For example, think about what equipment you will need, any tasks you may need help with while you’re away from home, and who is available to come with you. Here are a few things you can do ahead of time to stay prepared for a variety of situations:   

• Pack a bag with all the medical equipment and supplies that you need to use your trach and IMV. Bring it with you anytime you leave home.  
• Keep extra supplies on hand so you don’t run out. 
• Tell your local fire department and emergency medical services (EMS) that you use a ventilator. That way, first responders may be prepared to help you in case an emergency happens. 
• Save contact information for a hospital or other medical facility that can support people living with ALS during an emergency.  
• Get a backup battery for your ventilator and keep it fully charged.  
• If possible, keep a backup generator at home to provide power to your ventilator.