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Do you think genetic testing is right for you?
Next steps
Make an appointment with a genetic counselor to explore next steps. To find a genetic counselor in your area, you can:
- Ask your doctor for a referral
- Talk to your family member’s ALS care team
- Check with the National Society of Genetic Counselors
Before your appointment, find out if your family member has had genetic testing, so you can share the results with your genetic counselor.
It may be also helpful to talk with other people who have a family history of ALS or related conditions. If you’re interested in joining a support group, explore groups with the Les Turner ALS Foundation and EndTheLegacy.org.
Learn more about genetic counseling and testingNext steps
It’s okay if you’re not sure or you’re not ready to think about genetic testing yet. Remember, it’s always your choice — and you can come back to this tool at any time.
If you’d like to learn more about genetic testing, make an appointment with a genetic counselor. To find a genetic counselor in your area, you can:
- Ask your doctor for a referral
- Talk to your family member’s ALS care team
- Check with the National Society of Genetic Counselors
Before your appointment, find out if your family member has had genetic testing, so you can share the results with your genetic counselor.
It may be also helpful to talk with other people who have a family history of ALS or related conditions. If you’re interested in joining a support group, explore groups with the Les Turner ALS Foundation and End the Legacy.
Learn more about genetic counseling and testingNext steps
If you’ve spoken with a doctor about your risk for ALS or a related condition, be sure to let them know your decision. Remember, it’s always your choice whether to get genetic counseling or testing. If your needs change in the future, you can always come back to this tool.
Some people find it helpful to talk with other people who have a family history of ALS or related conditions. If you’re interested in joining a support group, explore groups with the Les Turner ALS Foundation and End the Legacy.
Learn more about genetic counseling and testing