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Tracheostomy and invasive mechanical ventilation (IMV) for people living with ALS

Progress — 26%

Communication challenges with a trach

Many types of trachs (especially those with cuffs, or inflatable balloons) can make it harder to speak or prevent you from speaking at all. However, some trachs allow you to deflate the cuff so that you can speak. This is called leak speech. Your ALS care team can discuss your options and explain how using a trach and IMV may affect your ability to communicate.  

Most people who use a trach communicate using augmentative and alternative communication (AAC). AAC refers to many different ways of communicating without speaking, ranging from low-tech to high-tech options. Here are just a few examples: 

  • Writing on a notepad
  • Typing or using communication apps on a smartphone or tablet
  • Using eye gaze devices that track your gaze and say the letters or words you’re looking at

By using AAC, you can continue to communicate your wants and needs without speaking out loud. To learn more about AAC and how ALS can affect your ability to communicate, check out our ALS and Communication Guide.

A woman using augmentative and alternative communication, or AAC, to communicate with her doctor. Her caregiver is helping her select words on a tablet.
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