Awareness Month

What is ALS Awareness Month?

ALS Awareness Month, recognized globally each May, is an opportunity to share information with your community about Amyotrophic Lateral Sclerosis (ALS), a fatal neurodegenerative disease, and the unmatched work of the Les Turner ALS Foundation. We invite you, your passion and commitment to a cure, to join us as we spread the message of hope and help for people living with ALS. Above all, ALS Awareness Month is a way for community members to rally around people living with ALS and their families and spread awareness.

Together, we will spread the message of hope and help.

See how you can support ALS Awareness Month: 

Thank you to all our amazing 2018 ALS Awareness Advocates and Tag Day volunteers! Check back for more information about how to get involved in 2019!

ALS Awareness Advocate: You be can the face of the Foundation and the voice of people living with ALS. We will provide you Awareness Kits containing the necessary tools to engage your friends, family and peers. This role requires little time, minimal effort and no fundraising component, but makes a monumental impact on the ALS community. Contact to learn more and request your Awareness Kit today!

Support Tag Days: Lookout for ALS Awareness Advocates in yellow vests with donation jugs! Support communities around the Chicagoland area as they take to the streets to spread awareness about ALS and raise funds for research and care.

How to spread ALS Awareness all year:

  • Invite friends and family to attend Foundation events
  • Host your own fundraiser with Fundraise Your Way
  • Engage with us on social media! Share, comment, like, retweet and favorite Foundation posts on social media


ALS Awareness Month Tools & Resources: 

Donate to Awareness MonthDonate to Tag Days2018 Tag DaysFacebook Banner PhotoBe a 2019 ALS Awareness Advocate

Did You Know

  • Every 90 minutes someone in the U.S is diagnosed with ALS, and every 90 minutes someone with ALS dies. That’s 112 people per week.
  • ALS is 100% fatal. There is no known cure for ALS and once diagnosed, people typically live three to five years.
  • The Les Turner ALS Foundation is the leader in comprehensive ALS care in Chicagoland.


“Although I cannot conduct research in the labs at Northwestern Medicine or provide care at the Lois Insolia ALS Clinic, what I CAN do, just like we ALL CAN, is spread awareness about ALS.”
— Cindy, Daughter of PALS

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Join us as we freeze ALS:

40 Years of Hope and Help

This year, the Foundation celebrates 40 years of providing hope and help to the ALS community. In addition to supporting those affected by the disease, we also support their loved ones who fight alongside them throughout their journey.

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Hope Through Caring

Each day we celebrate those courageously living with ALS and remembered those who lost their battle far too soon. This courage is shown in our Hope Through Caring video which showcases the many ways the Foundation supports those impacted by this disease.

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Freeze ALS

Through a partnership with Northwestern Medicine, watch the stories of 12 people who are either currently living with or have passed away from ALS which illustrates how the disease affects the body while the spirit remains the same.

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Hope and help for people with ALS.

Your contribution helps support the vast majority of the Chicagoland ALS population.