ALS Learning Series
Empowering Through ALS Education
The Les Turner ALS Foundation’s online ALS Learning Series is aimed at empowering our ALS community through the latest information and insights. Educational webinars and interactive Q&A’s covering a diverse array of topics, from telemedicine to respiratory care, are hosted monthly by the Foundation's Support Services team and clinicians from our Lois Insolia ALS Clinic at Northwestern Medicine. The ALS Learning Series also includes blog posts and articles on ALS research, clinical trials, caregiver support and so much more.
Upcoming Webinar - September
Designing a Toolbox for Continuous Communication with Your Existing Technology - Thursday, September 30, 2021 from Noon to 1:15pm CT
About the Program:
This webinar will identify solutions for communication and use of smart phones, tablets, and computers as ALS can affect your speech and ability to use these devices. This course will focus on making communication as easy as possible throughout this difficult journey, using cutting-edge technology and collaboration with each person’s team including their family, caregivers, therapists, physicians, and vendors. Upon completion of this webinar you will be able to:
- Describe the differences between voice and message banking and equipment needed to complete these tasks.
- Identify low tech and mid tech methods for communication including but not limited to paper based systems, voice
amplification equipment, and communication apps available for both phone and tablets, to use on the go.
- Learn about accessibility options to facilitate use of these mid tech devices with decreased strength in arms and hands.
- Examine high tech communication software for computer-based devices that provide voice output, along with access to
these devices via head movement and eye gaze.
About the Speakers:
Janet Bischof-Rosario, OTR/L is the allied health supervisor and an occupational therapist in the Technology Center at the Shirley Ryan AbilityLab. She has been providing assistive technology evaluations and training for the past 35 years to children and adults with a variety of disabilities, in the area of augmentative communication, computer access, and electronic aids to daily living.
AnneMarie Doyle, MA, CCC-SLP: AnneMarie is a senior speech-language pathologist at Shirley Ryan AbilityLab. She currently works full time in Shirley Ryan AbilityLab’s Technology Center, focusing on Augmentative and Alternative Communication for both the adult and pediatric population.
Upcoming Webinar - October
Family Planning and ALS - Thursday, October 7, 2021 from Noon to 1:00pm CT
About the Program:
The decision to have genetic testing for a familial ALS gene is important and may have implications for those interested in starting a family. This talk will review family planning options available to individuals to reduce the risk of passing on a genetic disorder. We'll review what is involved in each option as well as some of the biological, ethical, and financial considerations that play a role in this important decision.
About the Speaker:
Lisa Kinsley: Lisa is well known to many of our Les Turner ALS families through her work at our Lois Insolia ALS Clinic. Lisa graduated with a biology degree from Valparaiso University, and then earned her Master’s degree from Northwestern University’s Genetic Counseling Graduate Program in 2009, and then received board certification in 2010. Currently, she is the senior genetic counselor for Northwestern’s Neurology Dept. She provides genetic counseling services for patients with a variety of neurogenetic indications in the MDA, ALS, epilepsy, cognitive neurology, and movement disorders clinics. She also sees patients for a variety of genetic indications in Northwestern’s Neurogenetic Counseling Clinic.
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Previous ALS Learning Series Webinars
ALS Learning Series Sponsors
The ALS Learning Series is made possible by a generous donation from the Gilbert and Jacqueline Fern Foundation and our industry partners.