Support Services
ALS Learning Series
Empowering Through ALS Education
The Les Turner ALS Foundation’s online ALS Learning Series is aimed at empowering our ALS community through the latest information and insights. Educational webinars and interactive Q&A’s covering a diverse array of topics, from telemedicine to respiratory care, are hosted monthly by the Foundation’s Support Services team and clinicians from our Lois Insolia ALS Clinic at Northwestern Medicine. The ALS Learning Series also includes blog posts and articles on ALS research, clinical trials, caregiver support and so much more.
Upcoming Webinars
Friday, January 29 at 12 p.m. CST – My ALS Communication Passport to Quality Care, featuring Karen Steffens, RN, CHPN, CCM, ALS Support Services Coordinator, Les Turner ALS Foundation and Rosie Riley, a person living with ALS.
My ALS Communication Passport to Quality Care is a tool for individuals living with ALS and their families. The 12-page Passport document helps caregivers, nursing and medical staff better understand the care needs and preferences of people living with ALS. During this 20-minute webinar, Karen will walk participants through the Communication Passport, how to fill it out, and when to use the tool. This will be followed by a short conversation between Karen and Rosie Riley, a person living with ALS, who has benefited greatly from filling out the Passport.
Previous ALS Learning Series Webinars
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Speaker: Featuring Benjamin Joslin, CCRC, Clinical Research Project Manager, Northwestern University Feinberg School of Medicine
Speaker: Lisa Kinsley, Senior Genetic Counselor at Northwestern University’s Department of Neurology