ALS & Caregiver Self-Care
Taking care of yourself
Caregivers have told us that social media community groups have helped them tremendously. Check out some of the most well-liked Facebook groups:
Stages of caregiver burnout
Lack of alone time
Lack of support
Symptoms of caregiver burnout
Resources for caregivers
Veterans Affairs assistance for family caregivers
U.S. military veterans are twice as likely to develop ALS compared to non-veterans. Veteran Affairs (VA) offers benefits such as disability and caregiver compensation; grants for home and vehicle modifications; medications and supplies; and home health care and equipment. To learn more, visit: va.gov.
The Paralyzed Veterans of America (PVA) specialize in providing navigation services for veterans. You can reach their website at: pva.org.
Family caregivers provide essential support in caring for veterans. The VA recognizes the importance of family caregivers and has an assistance program for caregivers. To learn more, visit: caregiver.va.gov
Apps for caregivers
My ALS Decision Tool™
ALS Learning Series
My ALS Communication Passport to Quality Care
Theses resources are made possible by a generous donation from the Gilbert & Jacqueline Fern Foundation and other donors to the Foundation.