Les Turner ALS Foundation
News & Resources
Foundation Blog
On the passing of Lin Brehmer, a true friend of the ALS community
Chicago radio host Lin Brehmer died today at the age …Read More »Faces of ALS: Giving New Meaning to ‘an ALS Journey’ …Road Trip!
Erin Weis generously offered her story for our 2021 Annual …Read More »Mature ‘lab grown’ neurons hold promise for ALS and other neurodegenerative diseases
Researchers at Northwestern University and the Les Turner ALS Center …Read More »Gift Guide for People Living With ALS
If your holiday shopping list includes someone who is living …Read More »
Faces of ALS
Faces of ALS: Redefining advocacy for a new generation
Please join us at the Hope Through Caring Gala on Saturday, Feb. …Read More »Faces of ALS: Giving New Meaning to ‘an ALS Journey’ …Road Trip!
Erin Weis generously offered her story for our 2021 Annual …Read More »Faces of ALS: Hope Through Painting
Please join us at the Hope Through Caring Gala on …Read More »Faces of ALS: From caregiver to advocate
Tyler Gaetano’s mother Vera, a Navy veteran, worked in the …Read More »Faces of ALS: Lending a helping hand
Navy veteran Jim Schlader, his wife Sue, and their neighbor …Read More »
Advocacy
FDA Approves AMX0035 (RELYVRIO™) for Treatment of ALS
The FDA’s decision to approve Amylyx Pharmaceuticals’ therapeutic compound AMX0035 …Read More »FDA Advisory Committee Recommends Approval of AMX0035
Watch our oral testimony at the FDA Advisory Committee meeting …Read More »Oral Testimony to the FDA Advisory Committee on the Approval of AMX0035
Delivered by Andrea Pauls Backman, CEO of the Les Turner …Read More »Comments to Centers for Medicare & Medicaid Services on Seat Elevation Systems as an Accessory to Power Wheelchairs
The Centers for Medicare & Medicaid Services have opened a …Read More »
Research News
Mature ‘lab grown’ neurons hold promise for ALS and other neurodegenerative diseases
Researchers at Northwestern University and the Les Turner ALS Center …FDA Awards 19 Grants and Two Contracts Related to Rare Diseases, including ALS
On Monday October 17, 2022, the U.S. Food and Drug …Newly published data on tofersen shows success in treating SOD1 ALS
New results published this week provide further evidence that tofersen, …FDA grants priority review for new SOD1-ALS treatment
The U.S. Food and Drug Administration (FDA) has accepted a …
Donor Spotlights
Our Boughton Grant Program makes home modifications easier
As a licensed cosmetologist and hairdresser for 19 years, Janie …Donor Spotlight: Foglia Family Foundation
As a lifelong baseball fan, Vince Foglia knew about ALS …Donor Spotlight: Robert P. Ives
Robert “Bob” P. Ives is a familiar face at the …Donor Spotlight: Richard A. Perritt Charitable Foundation
Richard A. Perritt had a remarkable career. He performed eye …
Foundation eNews
January 2023 Foundation eNews
Foundation News Mature ‘lab grown’ neurons hold promise for ALS …Read More »January 2023 Foundation eNews
Foundation News Thank you We can’t thank you enough for …Read More »December 2022 Foundation eNews
Foundation News Now is the time When a family is …Read More »December 2022 Foundation eNews
Foundation News Giving back in gratitude For people who have …Read More »
