Les Turner ALS Foundation
News & Resources
Foundation Blog
Statement: “The One Big Beautiful Bill” Puts ALS Families at Risk
On July 4, 2025, “The One Big Beautiful Bill” was …Read More »July 2025 Foundation eNews
Walking for Richie—and for each other For more than a …Read More »June 2025 Foundation eNews
Get ready for the biggest ALS event in the Midwest …Read More »June 2025 Foundation eNews
Walk with us toward a world free from ALS Get …Read More »
Faces of ALS
Faces of ALS: Jim Halstead, A life of joyful fidelity
At 76 years old, Jim Halstead can no longer move …Read More »Leaning on Family, Faith, and Community
For Satrina Bryant-Higgins, family is everything. Her three children and …Read More »Never back down, never give up: Ken Trent
For Ken Trent and his family, those six words—never back …Read More »When lives are on the line
Bryan Szymczak has always run toward danger. For 26 years, …Read More »Faces of ALS: A Veteran Nurse’s Journey of Service and Strength
Connie Daniels has dedicated much of her life to caring …Read More »
Advocacy
Statement: “The One Big Beautiful Bill” Puts ALS Families at Risk
On July 4, 2025, “The One Big Beautiful Bill” was …Read More »Letter to Congress: Preserve Funding for the National ALS Registry and Biorepository
The Honorable Members of the ALS Caucus United States Congress …Read More »$40M for ALS in FY25: A Hard-Earned Victory
We are grateful to share that ALS has been recommended …Read More »ALS organizations advocate for FY26 funding priorities to Congress
Delivered to the offices of Sen. Susan Collins and Sen. …Read More »
Research News
ALS drug effectively treats Alzheimer’s disease in new animal study
Experimental drug NU-9 — a small molecule compound approved by …UPDATED: Statement on Proposed Cut to Congressionally Directed Medical Research Program for FY2025
Updated: On March 14, 2025, the Senate passed a bill …LETTER: Neuromuscular Advocacy Groups Oppose NIH Indirect Cost Cap of 15%
On behalf of the approximately 300,000 Americans living with a …URGENT: Tell Congress to Oppose Catastrophic Research Cuts
The National Institutes of Health (NIH) recently announced a major …
Donor Spotlights
Donor Spotlight: Ann Drury
Every ALS diagnosis has a story of its own. For …Our Boughton Grant Program makes home modifications easier
As a licensed cosmetologist and hairdresser for 19 years, Janie …Donor Spotlight: Foglia Family Foundation
As a lifelong baseball fan, Vince Foglia knew about ALS …Donor Spotlight: Robert P. Ives
Robert “Bob” P. Ives is a familiar face at the …
Foundation eNews
July 2025 Foundation eNews
Walking for Richie—and for each other For more than a …Read More »June 2025 Foundation eNews
Get ready for the biggest ALS event in the Midwest …Read More »June 2025 Foundation eNews
Walk with us toward a world free from ALS Get …Read More »May 2025 Foundation eNews
Highlighting our community this ALS Awareness Month As ALS Awareness …Read More »
