Les Turner ALS Foundation
News & Resources
Foundation Blog
ALS Better Care Act introduced in U.S. House of Representatives
Today, the bipartisan ALS Better Care Act was introduced by …Read More »Walker Wednesday #8 Know Before You Go
Know Before You Go Can you believe the ALS Walk …Read More »Walker Wednesday #7 Sneak Preview of the Big Day
Hello, walkers! Welcome to Walker Wednesday where we share inspiring …Read More »Faces of ALS: The Tejeda Family’s Journey / El Camino de la Familia Tejeda
At the age of 54, Martin Tejada found himself in …Read More »
Faces of ALS
Faces of ALS: The Tejeda Family’s Journey / El Camino de la Familia Tejeda
At the age of 54, Martin Tejada found himself in …Read More »Faces of ALS: Anne Lidsky, a legacy of resilience and love
More than 50 years later, Anne Lidsky vividly remembers preparing …Read More »Faces of ALS: Julie Stowell, from the heart
She’s one of the people you see at the finish …Read More »Faces of ALS: Celebrating Glenview Tag Days: 25 Years of Community Support & Fundraising
In the heart of Glenview, Illinois, a remarkable tradition has …Read More »Faces of ALS: Living life to the fullest
Jessica Morris always knew there was a possibility that she …Read More »
Advocacy
ALS Better Care Act introduced in U.S. House of Representatives
Today, the bipartisan ALS Better Care Act was introduced by …Read More »FDA Approves tofersen (Qalsody™) for Treatment of SOD1-ALS
We are pleased that the FDA has granted accelerated approval …Read More »FDA Advisory Committee Recommends Accelerated Approval of tofersen
Watch our oral testimony at the FDA Advisory Committee meeting …Read More »Oral Testimony to the FDA Advisory Committee on the Approval of tofersen
Delivered by Lauren Webb, LCSW, Chief Advocacy and Outreach Officer …Read More »
Research News
‘New’ ALS gene destabilizes neuron’s structure and chokes off its nucleus
As many as 2% of all ALS cases have been …Nearly $1 Million in ALS Grants Awarded for 2023
In 2023, the Les Turner ALS Foundation is funding nearly …Lois Insolia ALS Clinic Opens Enrollment for New HEALEY ALS Platform Trial Regimen
The Lois Insolia ALS Clinic at the Les Turner ALS …Comments to the FDA Advisory Committee in Support of Tofersen Approval
RE: FDA-2022-N-0691 Dear FDA Advisory Committee: We write to express …
Donor Spotlights
Our Boughton Grant Program makes home modifications easier
As a licensed cosmetologist and hairdresser for 19 years, Janie …Donor Spotlight: Foglia Family Foundation
As a lifelong baseball fan, Vince Foglia knew about ALS …Donor Spotlight: Robert P. Ives
Robert “Bob” P. Ives is a familiar face at the …Donor Spotlight: Richard A. Perritt Charitable Foundation
Richard A. Perritt had a remarkable career. He performed eye …
Foundation eNews
September 2023 Foundation eNews
The ALS Walk for Life is here! The ALS community …Read More »September 2023 Foundation eNews
Meet the Kravitz Krew: Two Decades of Walkin’ Gary Kravitz …Read More »August 2023 Foundation eNews
Team George’s Generals: Join us at the ALS Walk for …Read More »‘New’ ALS gene destabilizes neuron’s structure and chokes off its nucleus
As many as 2% of all ALS cases have been …Read More »
