Les Turner ALS Foundation
News & Resources
Foundation Blog
December 2025 Foundation eNews
Your generosity brings hope to families like Cecil and Grace …Read More »November 2025 Foundation eNews
The 2025 Gift Guide is here Looking for thoughtful ways …Read More »The Heart Does the Giving, the Fingers Just Let Go
Dear Friend, This year marks my third as CEO …Read More »November 2025 Foundation eNews
New clue links ALS and FTD to overactive neurons A …Read More »
Faces of ALS
A Chef’s Touch: How Kate Milashus Keeps Creating Through ALS
For nearly 15 years, the heat, rhythm, and camaraderie of …Read More »Faces of ALS: A wedding speech, in her own voice
When Monica O’Callaghan was diagnosed with ALS in 2022, her …Read More »Faces of ALS: Trevor Storm, Running for a Reason
Trevor Storm is no stranger to the fragility of life. …Read More »Faces of ALS: Jim Halstead, A life of joyful fidelity
At 76 years old, Jim Halstead can no longer move …Read More »Leaning on Family, Faith, and Community
For Satrina Bryant-Higgins, family is everything. Her three children and …Read More »
Advocacy
LETTER: Advocating for the Renewal of ALLFTD Study to Propel ALS and FTD Research
The Honorable Richard Hodes, MD, Director of the National Institute …Read More »Statement: “The One Big Beautiful Bill” Puts ALS Families at Risk
On July 4, 2025, “The One Big Beautiful Bill” was …Read More »Letter to Congress: Preserve Funding for the National ALS Registry and Biorepository
The Honorable Members of the ALS Caucus United States Congress …Read More »$40M for ALS in FY25: A Hard-Earned Victory
We are grateful to share that ALS has been recommended …Read More »
Research News
A new clue to ALS and FTD: Faulty protein disrupts brain’s ‘brake’ system
Findings point to promising drug that restores neuron balance and …Les Turner ALS Foundation to Make $500,000 Gift to Northwestern Research
Funding ensures promising new ALS therapies and vital research can …ALS drug effectively treats Alzheimer’s disease in new animal study
Experimental drug NU-9 — a small molecule compound approved by …UPDATED: Statement on Proposed Cut to Congressionally Directed Medical Research Program for FY2025
Updated: On March 14, 2025, the Senate passed a bill …
Donor Spotlights
Donor Spotlight: Ann Drury
Every ALS diagnosis has a story of its own. For …Our Boughton Grant Program makes home modifications easier
As a licensed cosmetologist and hairdresser for 19 years, Janie …Donor Spotlight: Foglia Family Foundation
As a lifelong baseball fan, Vince Foglia knew about ALS …Donor Spotlight: Robert P. Ives
Robert “Bob” P. Ives is a familiar face at the …
Foundation eNews
December 2025 Foundation eNews
Your generosity brings hope to families like Cecil and Grace …Read More »November 2025 Foundation eNews
The 2025 Gift Guide is here Looking for thoughtful ways …Read More »November 2025 Foundation eNews
New clue links ALS and FTD to overactive neurons A …Read More »October 2025 Foundation eNews
Join us at the leading edge of ALS research Join …Read More »
Care. Community. Cure.
We provide individualized care, local community support and hope through scientific research.
