Les Turner ALS Foundation
News & Resources
Foundation Blog
Faces of ALS: Every mile for Vanessa
Kenny Muñoz doesn’t dwell on the hardest months. When he …Read More »September 2026 Foundation eNews
Team Arrivederci ALS isn’t waving the white flag. Mike Leopold’s …Read More »ACT for ALS Reauthorization passed by Congress
On Sept. 28, 2026, Congress passed the ACT for ALS …Read More »Finding a Favorite Part of Every Day: Brady Beck and Team Race for ALS
When Brady Beck lines up at the 2026 Bank of …Read More »
Faces of ALS
Faces of ALS: Every mile for Vanessa
Kenny Muñoz doesn’t dwell on the hardest months. When he …Read More »Terri Tatroe — Rolling with ALS, Smiling All the Way
Terri Tatroe doesn’t waste time on despair. At 65, the …Read More »Running a Marathon for Mom: Kevin Dispensa and Team Race for ALS
Kevin Dispensa never planned to run a marathon. But when …Read More »Faces of ALS: A 45-Year Friendship on the Run
Kevin Patula (left) and Chris Fusco at Paw Paw Lake …Read More »Three Generations of Lou Gehrig Vicari — A Cubs Family Story
When Wilma Vicari was diagnosed with ALS in the summer …Read More »
Advocacy
ACT for ALS Reauthorization passed by Congress
On Sept. 28, 2026, Congress passed the ACT for ALS …Read More »ALS Organizations Urge Congress to Pass the ALS Better Care Act
Senate Majority Leader John Thune 511 Dirksen Senate Office Building …Read More »Neuromuscular Disease Organizations Urge Withdrawal of Proposed Federal Funding Rule
July 13, 2026 Russell Vought, Director Office of Management and …Read More »Leading ALS Organizations Call for Swift Passage of the ACT for ALS Reauthorization Act
June 18, 2026 The Honorable Mike Johnson, Speaker U.S. House …Read More »
Research News
Positive Phase 3 results for FUS-ALS treatment
Otsuka and Ionis have announced that ulefnersen, an investigational treatment …Connecting the immune system to ALS to develop new therapies
Researchers have long suspected the immune system to be a …Neuromuscular Disease Organizations Urge Withdrawal of Proposed Federal Funding Rule
July 13, 2026 Russell Vought, Director Office of Management and …Finding the exact target for potential ALS drug
More than 15 years ago, Northwestern University professor Richard Silverman …
Donor Spotlights
Donor Spotlight: Ann Drury
Every ALS diagnosis has a story of its own. For …Our Boughton Grant Program makes home modifications easier
As a licensed cosmetologist and hairdresser for 19 years, Janie …Donor Spotlight: Foglia Family Foundation
As a lifelong baseball fan, Vince Foglia knew about ALS …Donor Spotlight: Robert P. Ives
Robert “Bob” P. Ives is a familiar face at the …
Foundation eNews
September 2026 Foundation eNews
Team Arrivederci ALS isn’t waving the white flag. Mike Leopold’s …Read More »Finding a Favorite Part of Every Day: Brady Beck and Team Race for ALS
When Brady Beck lines up at the 2026 Bank of …Read More »September 2026 Foundation eNews
Walking for Stephanie keeps her light shining Stephanie Kennedy was, …Read More »September 2026 Foundation eNews
From a team of three to a growing force: Special …Read More »
Care. Community. Cure.
We provide individualized care, local community support and hope through scientific research.
