Les Turner ALS Foundation
News & Resources
Foundation Blog
Nearly $1 Million in ALS Grants Awarded for 2023
In 2023, the Les Turner ALS Foundation is funding nearly …Read More »Lois Insolia ALS Clinic Opens Enrollment for New HEALEY ALS Platform Trial Regimen
The Lois Insolia ALS Clinic at the Les Turner ALS …Read More »Announcing the ALS Newly Diagnosed Support Series
An ALS diagnosis is difficult to process. People often feel …Read More »Illinois proclaims ALS Awareness Month, recognizes Les Turner ALS Foundation
Gov. J.B. Pritzker has proclaimed May as ALS Awareness Month …Read More »
Faces of ALS
Faces of ALS: Living life to the fullest
Jessica Morris always knew there was a possibility that she …Read More »Faces of ALS: Ina Turner Jones
“When I was told that Lester had ALS, I couldn’t …Read More »Faces of ALS: Devoted to Care
Jayanthy Thiagarajah was a fiercely independent woman and a devoted …Read More »Faces of ALS: A mother’s love
Chaunelle Caver-Perkins and her family will be among the guests …Read More »Faces of ALS: Redefining advocacy for a new generation
Please join us at the Hope Through Caring Gala on Saturday, Feb. …Read More »
Advocacy
FDA Approves tofersen (Qalsody™) for Treatment of SOD1-ALS
We are pleased that the FDA has granted accelerated approval …Read More »FDA Advisory Committee Recommends Accelerated Approval of tofersen
Watch our oral testimony at the FDA Advisory Committee meeting …Read More »Oral Testimony to the FDA Advisory Committee on the Approval of tofersen
Delivered by Lauren Webb, LCSW, Chief Advocacy and Outreach Officer …Read More »Call for Comments: Proposed Decision on Medicare & Seat Elevation Systems
The Les Turner ALS Foundation strongly supports Medicare coverage of …Read More »
Research News
Nearly $1 Million in ALS Grants Awarded for 2023
In 2023, the Les Turner ALS Foundation is funding nearly …Lois Insolia ALS Clinic Opens Enrollment for New HEALEY ALS Platform Trial Regimen
The Lois Insolia ALS Clinic at the Les Turner ALS …Comments to the FDA Advisory Committee in Support of Tofersen Approval
RE: FDA-2022-N-0691 Dear FDA Advisory Committee: We write to express …Calming the destructive cells of ALS by two independent approaches
Scientists from the Les Turner ALS Center at Northwestern Medicine …
Donor Spotlights
Our Boughton Grant Program makes home modifications easier
As a licensed cosmetologist and hairdresser for 19 years, Janie …Donor Spotlight: Foglia Family Foundation
As a lifelong baseball fan, Vince Foglia knew about ALS …Donor Spotlight: Robert P. Ives
Robert “Bob” P. Ives is a familiar face at the …Donor Spotlight: Richard A. Perritt Charitable Foundation
Richard A. Perritt had a remarkable career. He performed eye …
Foundation eNews
May 2023 Foundation eNews
ALS Awareness Month: Supporting Our Veterans ALS Awareness Month is just …Read More »May 2023 Foundation eNews
ALS Awareness Month: Celebrating nurses As ALS Awareness Month continues, we’re taking …Read More »May 2023 Foundation eNews
ALS Awareness Month: Take action! May is ALS Awareness Month, a …Read More »April 2023 Foundation eNews
Foundation News The first ALS Walk for Life team to …Read More »
