July 2020 Foundation eNews

HEALEY ALS Platform Clinical Trial Update Our Les Turner ALS Center at Northwestern Medicine is a participating site for the first-ever ALS platform trial. The clinical drug trial, led by the Sean M. Healey & AMG Center at Massachusetts General …

Advocacy Announcement – June 26, 2020

The Les Turner ALS Foundation has joined with the ALS community in support of two pieces of legislation – the Promising Pathway Act (S. 3872) and the Accelerating Access to Critical Therapies for ALS Act (H. 7071), which is co-sponsored …

A Letter From Our CEO

Dear Friends, On Friday, due to the COVID-19 outbreak, the Governor of Illinois issued a statewide shelter-in-place order, similar to what we’ve seen in other parts of the country. This news creates challenges for all of us. How do we …

Telehealth – How We’re Adapting

The need to adapt to changing circumstances is not new to those with ALS. ALS requires constant attention and creativity to stay ahead of physical and emotional changes. As news continues to emerge about precautions against COVID-19, we are all …

March 2020 Events eNews

A Record-Breaking Hope Through Caring Gala We broke the record at our Hope Through Caring Gala by raising over $900,000 to support our Chicagoland ALS community and advance scientific research. We are so grateful to Ed Rapp, recipient of the …

March 2020 Foundation eNews

We Are the Les Turner ALS Foundation Last week at our record-breaking Hope Through Caring Gala we premiered our brand new Les Turner ALS Foundation video! Our vision for our latest video was simple – our Les Turner ALS family …

Mechanisms Discovered Behind C9orf72 ALS Mutation

Evangelos Kiskinis, PhD, of our Les Turner ALS Center at Northwestern Medicine, alongside fellow Northwestern Medicine scientists, recently discovered the mechanisms and consequences behind ALS defect gene C9orf72. “A DNA mutation in a gene known as C9orf72 is responsible for …

February 2020 Events eNews

NCAA Bracket Challenge for Charity March Madness will be here before you know it! Join our NCAA Bracket Challenge for Charity hosted by our Young ProfessionALS Group. You can win bragging rights and prizes, all in support of people living …