How to Prepare for a Telehealth Visit

Due to the recent COVID-19 pandemic, many people, especially those living with ALS, have needed to change their routines in several ways including pivoting their medical appointments to telehealth visits.  A recent article published in Brain & Life Magazine shared …

The Embodiment of Hope and Help

As we near the end of ALS Awareness Month, facts and statistics about ALS can be found around every corner. The lifetime risk of developing ALS is just 1 in 300. The estimated annual cost of care is $250,000. These figures illustrate …

May 2020 Events eNews

Celebrating Our Heroic Nurses Nurses are heroes, plain and simple. And those of us in the ALS community know that nurses have always been essential. Despite this crisis, the amazing nurses at our Lois Insolia ALS Clinic at the Les …

May 2020 Foundation eNews

Be a Giver for #GivingTuesdayNow Today is #GivingTuesdayNow, a new global day of giving as an emergency response to the unprecedented impact of COVID-19. At the onset of the COVID-19 pandemic, we paused all in-person Support Service Team visits and …