July 13, 2026 Russell Vought, Director Office of Management and Budget Executive Office of the President 725 17th Street NW Washington, DC 20503 Re: Neuromuscular Disease Patient Advocacy Organization Comments on the “Regulation for Federal Financial Assistance” Proposed Rule – …
July 2026 Foundation eNews
Kravitz Krew is going 22-years strong at the ALS Walk for Life For Gary Kravitz, the ALS Walk for Life is a tradition over two decades in the making. Since his first Walk at Montrose Harbor in 2004, Gary and …
Finding the exact target for potential ALS drug
More than 15 years ago, Northwestern University professor Richard Silverman set out to discover a small molecule compound that could prevent toxic protein aggregation in the brain. From that journey came NU-9, a drug that prevents the aggregation of the …



