Kevin Dispensa never planned to run a marathon. But when his best friend from high school, Ross, suggested they tackle the Chicago Marathon in honor of Kevin’s mom, Janie Gobeli, everything clicked. Now, Kevin, his brother, his dad, and three …
Neuromuscular Disease Organizations Urge Withdrawal of Proposed Federal Funding Rule
July 13, 2026 Russell Vought, Director Office of Management and Budget Executive Office of the President 725 17th Street NW Washington, DC 20503 Re: Neuromuscular Disease Patient Advocacy Organization Comments on the “Regulation for Federal Financial Assistance” Proposed Rule – …
July 2026 Foundation eNews
Kravitz Krew is going 22-years strong at the ALS Walk for Life For Gary Kravitz, the ALS Walk for Life is a tradition over two decades in the making. Since his first Walk at Montrose Harbor in 2004, Gary and …
Finding the exact target for potential ALS drug
More than 15 years ago, Northwestern University professor Richard Silverman set out to discover a small molecule compound that could prevent toxic protein aggregation in the brain. From that journey came NU-9, a drug that prevents the aggregation of the …
