On July 13, 2021 the Les Turner ALS Foundation and 19 other advocacy organizations sent a letter to call on the House of Representatives to pass the ACT for ALS Act (H.R.3537) as soon as possible, and no later than …
Finding Hope in ALS Research and Clinical Trials
By Lauren Webb, LCSW, Director of Support Services and Education Many years ago, as I was driving along Lake Shore Drive on my way to a pediatric hospital in Chicago, with the sun beginning to rise over Lake Michigan, I …
Tips for Preventing the Spread of Respiratory Disease
As someone living with ALS or in contact with someone living with ALS, you should always take special precautions to safeguard your health and the health of those around you. People living with ALS are at an increased risk of respiratory problems …
ALS Research Ambassadors Fostering Community, Influencing Change
By Gwen Gotsch I lost my 30-year-old son to ALS in July of 2017. Kris was 27 and newly married when he was diagnosed. He died just three years later. During those three years, Kris, an elementary school special ed …
Newly Discovered Compound Found to Reverse ALS Neuron Damage
We are pleased to announce more exciting news on the ALS research front coming out of our Les Turner ALS Center at Northwestern Medicine. On February 22, Northwestern scientists, led by P. Hande Ozdinler, PhD, and Richard B. Silverman, PhD, …
PEOPLE LIVING WITH ALS ELIGIBLE FOR COVID-19 VACCINATIONS STARTING FEBRUARY 25 UNDER ILLINOIS PHASE 1B; CHICAGO, COOK COUNTY EXCLUDED
We are pleased to announce big changes in access to COVID-19 vaccinations for people living with ALS in Illinois. The State is making plans to expand COVID-19 Phase 1B vaccination eligibility on February 25 to people who have comorbidities and …
ALS Groups Urge Social Security Administration to Grant Immediate Access to SSDI Benefits
The Les Turner ALS Foundation has joined with 18 other ALS advocacy organizations, signing onto a letter strongly urging the Social Security Administration to honor the enactment for all those already in the waiting period. On December 22, 2020, the …
Foundation Advocating for COVID-19 Vaccination Prioritization for Individuals with ALS
As we turn the calendar to 2021, the Les Turner ALS Foundation is taking proactive steps to help ensure that those living with neuromuscular disease, including ALS, are given priority access to COVID-19 vaccines and treatments. On Wednesday, January 6, Illinois …
Research May Lead to New Ways to Combat ALS
Because we live in a changing environment, our survival and function depend on adapting to novel, potentially stressful, conditions. Is our ability to adapt to changing conditions fixed or is it possible to enhance our ability to tolerate a stressful …
Global Connections to Create a World Free of ALS
Andrea Pauls Backman, CEO, and member of the Board of Directors of the International Alliance of ALS/MND Associations Every December for the last 31 years, the ALS/MND community has gathered in various locations across the globe to share new findings …