The Hope Through Caring Gala was a smash hit! We are still celebrating the success of our 38th Annual Hope Through Caring Gala held on Saturday, April 11, at the Radisson Blu Aqua Hotel. We are thrilled to share that …
Leading ALS Organizations Celebrate Introduction of ACT for ALS Reauthorization Act: Call for Swift Congressional Passage
Washington, D.C., April 8, 2026 – In support of this week’s introduction of the ACT for ALS Reauthorization Act of 2026 (H.R.8205), leading ALS advocacy organizations released the following statement calling for swift passage of the legislation: “This week’s introduction …
April 2026 Foundation eNews
Join us this Saturday for the Hope Through Caring Gala The 38th annual Hope Through Caring Gala arrives this Saturday, April 11, at the Radisson Blu Aqua Hotel. We are the leader in comprehensive ALS care in Chicagoland, providing individualized …
March 2026 Foundation eNews
Registration is closing soon for the Hope Through Caring Gala Join us on Saturday, April 11, at the Radisson Blu Aqua Hotel for our annual Hope Through Caring Gala. This elegant evening celebrates the courage of families like the Goldbergs …
How Humor and High-Tech Power the Goldberg Home
For Dr. Andrew Goldberg, life has always been about solving complex puzzles. As a former Chief Technology Officer and Vice President at AbbVie, he spent over 30 years bringing technological advances to the world of pharmaceuticals. But today, the 53-year-old …
March 2026 Foundation eNews
Together with You, We Made a World of Difference for ALS Families Every 90 minutes, someone in the US is diagnosed with ALS. In 2025, we turned your support into life-changing action by making every one of those minutes count. …
ALS organizations advocate for FY27 funding priorities to Congress
Delivered to the offices of Sen. Susan Collins and Sen. Patty Murray on the U.S. Senate Committee on Appropriations, and the offices of Rep. Tom Cole and Rep. Rosa DeLauro on the U.S. House Committee on Appropriations. March 4, 2026 …
A Love Language of Strength: The Kostrzeski Family
Humor, heart, and a 100-foot circle of care. For Lisa Kostrzeski, a 43-year-old Chicago native and registered nurse of 22 years, these are the tools her family uses to navigate life with ALS. “I’ve always been a talker, and I …
2025 Impact Report
Every moment is an opportunity. It’s estimated that every 90 minutes, someone is diagnosed with ALS. But how many more minutes will pass before that person has the chance to receive care at a multidisciplinary ALS clinic that can extend …
Faces of ALS: Diane Rutledge and the Power of Community
Diane Rutledge passed away from complications related to ALS on February 3, 2026. The story that follows is based on an interview with Diane that took place in January with the help of the assistive communication technologies mentioned below. In …
