For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the first week of May, we’re looking at a day in the …
ALS Awareness Month: Matt Creen’s journey to keep traveling with ALS, no matter what
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the first week of May, we’re looking at a day in the …
Faces of ALS: Jim Halstead, A life of joyful fidelity
At 76 years old, Jim Halstead can no longer move between the lecture halls of DePaul University or preside at Sunday mass like he once did. But his days are still rich with meaning, reflection, and connection—albeit quieter and more …
ALS Awareness Month: Robert Akins on adaptations and living with ALS
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the first week of May, we’re looking at a day …
State of Illinois proclaims ALS Awareness Month in May 2025
At the request of the Les Turner ALS Foundation, Gov. J.B. Pritzker has proclaimed May as ALS Awareness Month in the State of Illinois. The proclamation can be found below and downloaded at this link. Throughout the month, we look …
April 2025 Foundation eNews
Lace Up for a Cause at the Lew Blond Run/Walk Join us on Saturday, May 18 for the Lew Blond Memorial 5K Run/Walk — a community tradition that honors the life and legacy of beloved Maple School teacher Lew Blond, …
Steve “Mongo” McMichael, 1957-2025
Chicago Bears legend and NFL Hall of Famer Steve McMichael died this week at the age of 67. We’ve been honored to support Steve and his family since his ALS diagnosis in 2021. When we presented Steve with the Les …
Letter to Congress: Preserve Funding for the National ALS Registry and Biorepository
The Honorable Members of the ALS Caucus United States Congress Washington, D.C. 20515 Subject: Urgent Action Needed to Preserve Funding for the National ALS Registry and Biorepository Dear Members of the ALS Caucus, We, the collective voice of the ALS …
3 Tips for People with ALS Applying for Social Security Disability Insurance
Applying for Social Security Disability Insurance (SSDI) can feel overwhelming. It’s important to know that the ALS Disability Insurance Access Act of 2019 eliminates the required five-month SSDI waiting period for ALS applicants. You can apply for SSDI benefits here. Bear …
April 2025 Foundation eNews
The Gala was a smash hit! With over 400 guests joining in person and virtually, the 37th annual Hope Through Caring Gala was a night to remember. Together, we raised $620,000 and counting to support compassionate ALS care, groundbreaking research, …
