Chicago radio host Lin Brehmer died today at the age of 68. He was widely known and beloved for his time on-air at WXRT-FM 93.1, but the ALS community in the Midwest knew another side of Lin: a friend, spokesperson …
Faces of ALS: Giving New Meaning to ‘an ALS Journey’ …Road Trip!
Erin Weis generously offered her story for our 2021 Annual Appeal, helping raise vital funds for ALS care and research — just one of the many ways she volunteered to support the Les Turner ALS Foundation. But her story was …
Mature ‘lab grown’ neurons hold promise for ALS and other neurodegenerative diseases
Researchers at Northwestern University and the Les Turner ALS Center at Northwestern Medicine have created the first highly mature neurons from human induced pluripotent stem cells (iPSCs), a feat that opens new opportunities for medical research and potential transplantation therapies …
Gift Guide for People Living With ALS
If your holiday shopping list includes someone who is living with ALS or a caregiver, we’ve compiled a list of gift ideas to help. Our support services team contributed these recommendations from their experience providing resources and support to people …
Make your year end gifts go further
Every donation to the Les Turner ALS Foundation makes a direct, personal impact on the lives of people living with ALS and their families. Your gift reaches them in their homes, where their questions are answered by our support services …
Our Boughton Grant Program makes home modifications easier
As a licensed cosmetologist and hairdresser for 19 years, Janie Gobeli was concerned when she began to lose strength and dexterity in her right hand. Walking was already difficult for her, having recently broken her kneecap in a fall. Soon …
Year-End Giving: Hope and Help for People Living With ALS
Victor was 14 years old when his father, an avid marathon runner, was diagnosed with ALS. To this day, he remembers how much the support his family received from the Les Turner ALS Foundation meant to them. “Anyone who is …
FDA Approves AMX0035 (RELYVRIO™) for Treatment of ALS
The FDA’s decision to approve Amylyx Pharmaceuticals’ therapeutic compound AMX0035 for treatment of ALS was fully justified by the data and the science. Clinicians, researchers, advocacy groups, and people living with ALS spoke in overwhelming numbers in favor of approval. …
Newly published data on tofersen shows success in treating SOD1 ALS
New results published this week provide further evidence that tofersen, a drug in development by Biogen, may be effective in slowing the progression of SOD1 ALS. As reported in the New England Journal of Medicine, the Phase 3 clinical trial …
FDA Advisory Committee Recommends Approval of AMX0035
Watch our oral testimony at the FDA Advisory Committee meeting on September 7, 2022. We are grateful to the FDA Advisory Committee for examining the evidence, listening to the ALS community, and voting to recommend approval of Amylyx Pharmaceuticals’ therapeutic …