More than 15 years ago, Northwestern University professor Richard Silverman set out to discover a small molecule compound that could prevent toxic protein aggregation in the brain. From that journey came NU-9, a drug that prevents the aggregation of the …
Faces of ALS: A 45-Year Friendship on the Run
Kevin Patula (left) and Chris Fusco at Paw Paw Lake in Michigan, July 2025 Kevin Patula and Chris Fusco became close friends in first grade. More than 45 years later, they’re navigating a diagnosis that neither saw coming — and …
Leading ALS Organizations Call for Swift Passage of the ACT for ALS Reauthorization Act
June 18, 2026 The Honorable Mike Johnson, Speaker U.S. House of Representatives H-232, The Capitol Washington, D.C. 20515 The Honorable Hakeem Jeffries, Minority Leader U.S. House of Representatives 2267 Rayburn House Office Building Washington, DC 20515 Re: Please Swiftly Pass …
June 2026 Foundation eNews
Unite with us along the lakefront for a world free from ALS Join us at Soldier Field on Saturday, Oct. 24, for the ALS Walk for Life — the largest ALS walk in the Midwest. Registration is officially open, and …
Researchers discover cause of neuron excitability in ALS, leading to new potential treatment
Digging deep into the molecular mechanisms behind ALS, researchers at the Les Turner ALS Center at Northwestern Medicine have discovered why nerve cells overfire in the disease. Not only that—they have also designed a new drug to stop this overfiring, …
June 2026 Foundation eNews
You helped us raise awareness all May With ALS Awareness Month coming to a close at the end of last month, we wanted to acknowledge once more the community members who made these videos possible. Throughout the month, we focused …
Together, We Helped Secure $300,000 for ALS Care and Research in Illinois
This year marked an important achievement for the ALS community in Illinois with the approval of $300,000 in state funding for ALS care and research. State funding will help expand care coordination, increase support for families, improve access to multidisciplinary …
Take 5 minutes – you won’t take today for granted.
ALS changes the smallest parts of life. Hear from Lisa, Andrew, and their families in the video below. Your donation today will help provide the technology, care, and support families like these need to stay connected and live with dignity. …
Three Generations of Lou Gehrig Vicari — A Cubs Family Story
When Wilma Vicari was diagnosed with ALS in the summer of 2025, she didn’t sink into despair. Instead, she turned to her doctor at Northwestern Medicine and said something that left him stunned. Her granddaughter, Lea Vicari, remembers it well. …
May 2026 Foundation eNews
Help us share stories from our community This May, we’re continuing to illuminate the realities of the disease to foster deeper understanding and spark change. Throughout ALS Awareness Month, the focus is on the financial impact, the diagnostic journey, the …










