Like most events at the Gardner home in the western suburbs of Chicago it was a family affair. With the face masks in-place and appropriate social distancing, the Gardner family met us outside for what we’re lovingly calling a “front …
Advocacy Announcement: ALS Disability Insurance Access Act
Foundation Blog: Advocacy The Les Turner ALS Foundation has joined with several other national ALS patient advocacy organizations (ALS Association, I AM ALS, Muscular Dystrophy Association and Team Gleason) in a letter to U.S. House of Representatives’ leadership requesting that …
Data from Amylyx’s CENTAUR trial shows promise in slowing ALS progression
We are very pleased to share promising data published this week in the New England Journal of Medicine from the recent CENTAUR trial, conducted by Amylyx Pharmaceuticals, showing that AMX0035, the combination drug of sodium phenylbutyrate–taurursodiol, can slow functional decline …
September 2020 Events eNews
Rosie’s Riveters Rosie’s “happy place” is the quilting studio her husband Mike created in the family’s Oakwood Hills home. It is here where Rosie selects patterns, cuts and sews patchwork, and stitches and binds quilts of all shapes and sizes, …
September 2020 Foundation eNews
Join our 10th Annual Les Turner Symposium on ALS Registration is now open for our 10th Annual Symposium, hosted by our own Les Turner ALS Center at Northwestern Medicine. This year’s event will be held virtually on Nov, 9, and …
Sustainers for Sustainability
These past several months have been unexpectedly difficult for everyone. For those facing the daily challenges of ALS, the many uncertainties and unanswered questions brought upon by the COVID-19 pandemic can be simply overwhelming. “Our commitment and number one goal …
August 2020 Events eNews
$20,000 Triple Your Impact Challenge We’re kicking this Events eNews off with a new ALS Walk for Life Team Challenge! Starting today, the first 10 teams to register, raise $1,000 AND recruit 10 walkers will receive a $3 to $1 match ($2,000 …
August 2020 Foundation eNews
New and Improved Clinical Trials Webpage While it may feel like much in life is on pause at the moment, there is exciting news in the ALS clinical trials and studies space, including information on the upcoming HEALEY ALS Platform …
Virtual ALS Celebration of Life 2020
This past weekend, over 100 members of our Les Turner ALS family joined us for our Virtual Celebration of Life. The event consisted of a moving 15-minute ceremony honoring those we have lost to ALS. The ceremony included readings from …