Remembering Those We’ve Lost In remembrance of our loved ones lost to ALS, we’re hosting a Celebration of Life on Saturday, July 18 at 11am via Facebook Live. This will be a moving, 15-minute online service honoring those we have …
Difficult Conversations Can Be Some of the Most Important
Making Your End-of-Life Wishes Known Author: Karen Raley Steffens, RN, CHPN, CCM ALS Support Services Coordinator “You may not control life’s circumstances but getting to be the author of your life means getting to control what you do with them.” …
July 2020 Foundation eNews
HEALEY ALS Platform Clinical Trial Update Our Les Turner ALS Center at Northwestern Medicine is a participating site for the first-ever ALS platform trial. The clinical drug trial, led by the Sean M. Healey & AMG Center at Massachusetts General …
Advocacy Announcement – June 26, 2020
The Les Turner ALS Foundation has joined with the ALS community in support of two pieces of legislation – the Promising Pathway Act (S. 3872) and the Accelerating Access to Critical Therapies for ALS Act (H. 7071), which is co-sponsored …
Letting the Love In
The first night they met, John and Meg Rooney won second place in a dance contest. What followed was a 27-year marriage, three sons and a long-term dedication to our Les Turner ALS family. For many of you, the Rooney …
June 2020 Events eNews
Upholding Family Values and Traditions For Rosa Elizondo and her teammates, participating in our Strike Out ALS 5k and 1 Mile Run, Walk & Roll allows them to race towards a cure in loving memory of Rosa’s uncle, Alfonso, who …
June 2020 Foundation eNews
Upper Motor Neuron Degeneration Pinpointed In a recent study published in Frontiers in Molecular Neuroscience, researchers at our Les Turner ALS Center at Northwestern Medicine and the University of Belgrade have discovered the electrophysiological mechanism behind upper motor neuron disease, which …
The Embodiment of Hope and Help
As we near the end of ALS Awareness Month, facts and statistics about ALS can be found around every corner. The lifetime risk of developing ALS is just 1 in 300. The estimated annual cost of care is $250,000. These figures illustrate …
May 2020 Events eNews
Celebrating Our Heroic Nurses Nurses are heroes, plain and simple. And those of us in the ALS community know that nurses have always been essential. Despite this crisis, the amazing nurses at our Lois Insolia ALS Clinic at the Les …
May 2020 Foundation eNews
Be a Giver for #GivingTuesdayNow Today is #GivingTuesdayNow, a new global day of giving as an emergency response to the unprecedented impact of COVID-19. At the onset of the COVID-19 pandemic, we paused all in-person Support Service Team visits and …
