Every Moment Counts: Brian and Katy’s ALS Journey This holiday season, join us in making an impact on families like Brian Davis, Katy McNeil, and their two young children, Ada and Penny. Brian’s journey, from a difficult diagnosis to care …
The things that matter the most
Brian Davis was diagnosed with ALS last year at the age of 35. This holiday season, Brian and his wife Katy McNeil want to share how the disease has affected them – and how much your support for the Les …
2023 Gift Guide for People Living With ALS
On Black Friday, Cyber Monday, or any day this holiday gift season, it’s never too early to start looking for the perfect present. If your holiday shopping list includes someone who is living with ALS or a caregiver, we’ve compiled …
November 2023 Foundation eNews
ALS Better Care Act Makes Its Way to the Senate Exciting news from Capitol Hill: the ALS Better Care Act has been introduced in the U.S. Senate, a crucial step towards improving access to multidisciplinary care for those battling ALS. …
Studies Identify Novel Underpinnings of Genetic ALS
A pair of recent studies from the laboratory of Evangelos Kiskinis, PhD, associate professor in the Ken and Ruth Davee Department of Neurology’s Division of Neuromuscular Disease and of Neuroscience and a member of the Les Turner ALS Center at Northwestern Medicine, have uncovered novel …
Letter to the Editor: Support veterans with ALS
This letter was published in the Chicago Tribune on Saturday, Nov. 11, 2023 For many people, baseball is the first thing that comes to mind when they think of amyotrophic lateral sclerosis, or ALS, thanks to New York Yankees player …
October 2023 Foundation eNews
Roll the Dice for a Great Cause! Dive into an evening of thrills at the 17th Annual All In For ALS Casino Night this Saturday, Nov. 4, from 7-11 p.m. at the East Bank Club in Chicago, hosted by our …
October 2023 Foundation eNews
Our 17th Annual Casino Night is Almost Here Step into a night of excitement at the 17th annual All In For ALS Casino Night on Saturday, Nov. 4, from 7-11 p.m. at the East Bank Club in Chicago. Immerse yourself in …
October 2023 Foundation eNews
A Day of Hope and Celebration in Pictures That’s a wrap on the 22nd annual ALS Walk for Life, and it was a huge hit. You not only raised funds for care, advocacy, and research – you looked great doing it! Over 2,000 …
ALS Better Care Act introduced in U.S. House of Representatives
UPDATE: The ALS Better Care Act has now been introduced in the U.S. Senate. We are pleased to be working with Sen. Chris Coons (D-DE) and Sen. Lisa Murkowski (R-AK) to support this important legislation. Today, the bipartisan ALS Better …
