Peace be with you all. Greetings from Rome! I am very happy to join you in Chicago as the Les Turner ALS Foundation gathers us for the annual ALS Walk for Life. Ours is a gathering of many people. Let …
September 2025 Foundation eNews
Join us and the ALS community this Saturday! The ALS Walk for Life is this Saturday, Sept. 20 at Soldier Field in Chicago, and we couldn’t be more excited! This isn’t just a fundraiser — it’s the Midwest’s largest ALS …
Pope Leo XIV to address the 2025 ALS Walk for Life on Saturday, Sept. 20 in Chicago
On Saturday, Sept. 20, 2025, the ALS community will come together at Soldier Field in Chicago for the largest ALS gathering in the Midwest: the Les Turner ALS Foundation’s ALS Walk for Life. We’ll walk to honor family and friends …
Les Turner ALS Foundation to Make $500,000 Gift to Northwestern Research
Funding ensures promising new ALS therapies and vital research can continue In response to the current federal funding crisis, the Les Turner ALS Foundation is announcing that it will make a $500,000 gift to support ALS research at Northwestern University …
September 2025 Foundation eNews
Leo’s Motor Neurons, Motoring at the Walk This September marks Sue Carrel’s 10th ALS Walk for Life—nine of them as the proud captain of Leo’s Motor Neurons, the team she formed with her husband Leo, who lived with ALS until …
August 2025 Foundation eNews
Walking for my dad, and the ALS community This September, Alex Willard will walk for the first time in honor of his dad, Jim, who was diagnosed with ALS in 2023. “Our story isn’t a sad one,” Alex says. “It’s …
August 2025 Foundation eNews
No Quitters for Q: walking strong for 16 years Since 2009, Ninfa Queyquep has led her team, No Quitters for Q, at the ALS Walk for Life in honor of her late husband, Eric. “He was diagnosed in July, and …
July 2025 Foundation eNews
Two decades of walking strong — Gary Kravitz and his crew Since 2004, Gary Kravitz has been a constant presence at the ALS Walk for Life. “I’ve signed up 20 years in a row,” he says. “I only missed once—when …
LETTER: Advocating for the Renewal of ALLFTD Study to Propel ALS and FTD Research
The Honorable Richard Hodes, MD, Director of the National Institute on Aging The Honorable Walter Koroshetz, MD, Director of the National Institute of Neurological Disorders and StrokeNational Institutes of Health 9000 Rockville Pike, Bethesda, Maryland 20892 Subject: ALLFTD Renewal Dear Dr. …
Statement: “The One Big Beautiful Bill” Puts ALS Families at Risk
On July 4, 2025, “The One Big Beautiful Bill” was signed into law. It includes deep cuts to healthcare programs that people living with ALS and their caregivers rely on: Medicaid, Medicare, and the Affordable Care Act (ACA). These cuts, …
