For Dr. Andrew Goldberg, life has always been about solving complex puzzles. As a former Chief Technology Officer and Vice President at AbbVie, he spent over 30 years bringing technological advances to the world of pharmaceuticals. But today, the 53-year-old …
March 2026 Foundation eNews
Together with You, We Made a World of Difference for ALS Families Every 90 minutes, someone in the US is diagnosed with ALS. In 2025, we turned your support into life-changing action by making every one of those minutes count. …
ALS organizations advocate for FY27 funding priorities to Congress
Delivered to the offices of Sen. Susan Collins and Sen. Patty Murray on the U.S. Senate Committee on Appropriations, and the offices of Rep. Tom Cole and Rep. Rosa DeLauro on the U.S. House Committee on Appropriations. March 4, 2026 …
A Love Language of Strength: The Kostrzeski Family
Humor, heart, and a 100-foot circle of care. For Lisa Kostrzeski, a 43-year-old Chicago native and registered nurse of 22 years, these are the tools her family uses to navigate life with ALS. “I’ve always been a talker, and I …
2025 Impact Report
Every moment is an opportunity. It’s estimated that every 90 minutes, someone is diagnosed with ALS. But how many more minutes will pass before that person has the chance to receive care at a multidisciplinary ALS clinic that can extend …
Faces of ALS: Diane Rutledge and the Power of Community
Diane Rutledge passed away from complications related to ALS on February 3, 2026. The story that follows is based on an interview with Diane that took place in January with the help of the assistive communication technologies mentioned below. In …
February 2026 Foundation eNews
Honoring Brian and Lori Andre at the Hope Through Caring Gala At this year’s Hope Through Caring Gala, we are proud to honor Brian and Lori Andre with the Hope Through Caring Award. Since Brian’s diagnosis in 2016, the Andres …
February 2026 Foundation eNews
Honoring Dr. John Coleman III at the Hope Through Caring Gala At this year’s Hope Through Caring Gala, we’re proud to honor John M. Coleman III, MD with the Harvey and Bonny Gaffen Advancements in ALS Award. Dr. Coleman is a …
Congress Approves Increase in Federal ALS Research Funding for FY 2026
On Feb. 3, 2026, the U.S. Congress approved new federal funding for ALS research for Fiscal Year 2026, totaling $315 million, the highest level of funding ever for ALS research. We are deeply grateful to the ALS community, including people living with ALS, …
Discovering how motor neurons break down in ALS
In the search for the underlying mechanisms of ALS, researchers are examining the role of even the tiniest parts of neuron cells. In fact, studies have shown that in ALS patients, microtubules—which are the major component of the cell cytoskeleton …









