Walking for Richie—and for each other For more than a decade, the D’Ambrosia family has come together for the ALS Walk for Life, honoring the man who brought them to the cause. Diagnosed in 2013 and living in Bronzeville near …
June 2025 Foundation eNews
Get ready for the biggest ALS event in the Midwest “This is a great event, there’s a DJ and things for kids to do. The location is great and helps bring out a crowd. I love the walk and the …
June 2025 Foundation eNews
Walk with us toward a world free from ALS Get ready to lace up your sneakers and join the largest ALS gathering in the Midwest: the Les Turner ALS Foundation’s ALS Walk for Life! It’s more than just a walk—it’s a …
Faces of ALS: Trevor Storm, Running for a Reason
Trevor Storm is no stranger to the fragility of life. As a hospice nurse from Shelbyville, Illinois, a small town of fewer than 5,000 people, he has spent his career helping families navigate their most vulnerable moments. But it wasn’t …
May 2025 Foundation eNews
Highlighting our community this ALS Awareness Month As ALS Awareness Month draws to a close, we’re continuing to highlight the lived experiences of people affected by ALS. In the second half of May, we’re focusing on two powerful themes: — The financial …
ALS Awareness Month: Crossing the Rainbow: A Son’s Reflection on Caregiving and ALS
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For this final week of May, we’re looking at a day in the …
ALS Awareness Month: Frank Granata on the Financial Toll of this Disease
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the third week of May, we’re looking at the financial cost of …
ALS Awareness Month: “My mom’s diagnosis broke my heart.”
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the second week of May, we’re looking at diagnostic delays, which are …
May 2025 Foundation eNews
ALS Awareness Month is this May May is ALS Awareness Month — and we’re spotlighting what it truly means to live with this disease. This week, we’re continuing our series with stories from our ALS community that bring this experience …
ALS Awareness Month: “I Knew Something Was Wrong”— Stories of Delayed ALS Diagnosis
For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the second week of May, we’re looking at diagnostic delays, which are …
