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Category Archive

Below you'll find a list of all posts that have been categorized as “Faces of ALS”

Jim Halstead teaching at DePaul University

Faces of ALS: Jim Halstead, A life of joyful fidelity

lesturner May 7, 2025Faces of ALS, Foundation Blog, Home Page

At 76 years old, Jim Halstead can no longer move between the lecture halls of DePaul University or preside at Sunday mass like he once did. But his days are still rich with meaning, reflection, and connection—albeit quieter and more …

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ALS Awareness Month
Interviewing Satrina Bryant-Higgins

Leaning on Family, Faith, and Community

lesturner March 25, 2025Faces of ALS, Foundation Blog, Home Page

For Satrina Bryant-Higgins, family is everything. Her three children and three grandchildren are the center of her world. “We are all we have, and we have a great relationship,” she says. “Whenever I see my grandbabies, it brightens my whole …

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Never back down, never give up: Ken Trent

Ashley Rosenbrock March 13, 2025Faces of ALS, Foundation Blog, Home Page

For Ken Trent and his family, those six words—never back down, never give up—have become their motto. His youngest daughter first said them, and now they guide the Trent family through each day. “ALS takes away your independence,” says Ken. …

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alsals communityals learning seriesals researchchicago

When lives are on the line

Mark Heiden November 24, 2024Faces of ALS, Foundation Blog, Foundation eNews, Home Page

Bryan Szymczak has always run toward danger. For 26 years, he fought fires in cities across Illinois, until an ALS diagnosis forced him into early retirement. It began with a weakness in his right thumb, which he chalked up to …

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Veteran Connie Daniels

Faces of ALS: A Veteran Nurse’s Journey of Service and Strength

lesturner November 8, 2024Faces of ALS, Foundation Blog, Home Page

Connie Daniels has dedicated much of her life to caring for others. Born at St. Luke’s Hospital in 1946, she grew up on the South Side of Chicago. The oldest girl in a family of six, Connie always wanted to …

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Gordon Scully: Racing Towards a Cure for ALS

Alden Kennedy May 28, 2024Faces of ALS, Uncategorized

Up to the Challenge: The Hernandez Family

Ashley Rosenbrock March 26, 2024Faces of ALS, Foundation Blog, Home Page

  Caring makes the difference. For Mario Hernandez, it starts with his daughters Jenny and Emily. “My daughters are two angels that God gave me, to support me in this moment of what I’m going through right now,” says Mario. …

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The Keldani Family Fights On

Ashley Rosenbrock March 15, 2024Faces of ALS, Foundation Blog, Home Page

  Susan Keldani won’t slow down. At the age of 60, she’s a prolific fundraiser for ALS care and research, the mother of college-age triplets, and the owner of a busy intermodal trucking company. Managing a business alongside the ever-present …

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Brian Davis in his wheelchair and his daughter Ada on his lap.

The things that matter the most

Mark Heiden November 22, 2023Faces of ALS, Foundation Blog, Home Page

Brian Davis was diagnosed with ALS last year at the age of 35. This holiday season, Brian and his wife Katy McNeil want to share how the disease has affected them – and how much your support for the Les …

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Faces of ALS: The Tejeda Family’s Journey / El Camino de la Familia Tejeda

Ashley Rosenbrock September 15, 2023Faces of ALS, Foundation Blog, Home Page

At the age of 54, Martin Tejeda found himself in uncharted territory for the second time. Originally from Atlixco in the state of Puebla, Mexico, he immigrated to Chicago at 19, and over the decades that followed, his family has …

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    May 28, 2025
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