Lois Insolia ALS Clinic

Clinical Trials and Studies

Updated: 5/13/2022

The Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine is actively involved in multi-center drug trials.

Clinical research in ALS at the Les Turner ALS Center at Northwestern Medicine encompasses a broad range of work, including biomarker studies, open label therapeutic studies, natural history studies and clinical trials.

Choosing to participate in a study is an important personal decision. We encourage you to talk with your doctor and family members or friends about deciding to join a study.

Please talk with your physician about the inclusion/exclusion criteria for participation in any trial. To learn more about clinical trials at Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine, please contact Emma Schmidt, Clinical Research Coordinator, emma.schmidt@northwestern.edu or (312) 503-4362.

To make an appointment at the Lois Insolia ALS Clinic, please call 312 695 7950. Patients are seen by appointment only. The clinical nurse coordinator will make your appointment and discuss the schedule of your visit.

Enrolling ALS Clinical Trials

Enrolling Studies: Clinical Research to Understand ALS and PLS

Expanded Access Program

Enrollment Completed

International Alliance of ALS/MND Associations

Scientific Advisory Council – Briefing Notes

The Les Turner ALS Foundation has been a founding member of the International Alliance of ALS/MND Associations since 1992. The role of the Alliance’s Scientific Advisory Council (SAC) is to be a centralized resource to review and provide global perspective on scientific and biomedical announcements, information and opportunities relating to ALS/MND. We are pleased to share these briefing notes with our Les Turner ALS family. The SAC strongly encourages individuals to speak with their ALS physician before considering access to treatment. Here are the latest briefing notes on current ALS trials and therapies with recommendations from the SAC.

Dr. Senda Ajroud-Driss, Director of our Lois Insolia ALS Clinic at the Les Turner ALS Center discusses the breakthrough Healey ALS Platform Trial and why it’s a game-changer for ALS research.

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Additional Resources

Learn more about ALS Clinical Research, view educational webinars and how to participate in the Clinical Research Learning Institute (CRLI).

We are a partner in Answer ALS, a large research study building the most comprehensive clinical, genetic, molecular and biochemical assessment of ALS, and openly sharing the results with the global research community

ALS Signal: Clinical Research Dashboard designed for and by patients and caregivers. This tool will provide an overview of treatments and supplements that are being tested in the USA and across the world.


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