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Category Archive

Below you'll find a list of all posts that have been categorized as “Support Services”

Robert Akins enjoys his morning coffee while living with ALS

ALS Awareness Month: Robert Akins on adaptations and living with ALS

Mark Heiden May 5, 2025Foundation Blog, Home Page, Support Services, Support Services Committee

For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the first week of May, we’re looking at a day …

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ALS Awareness Month
Social security cards, fingers, a $100 bill

3 Tips for People with ALS Applying for Social Security Disability Insurance

Mark Heiden April 16, 2025Foundation Blog, Home Page, Support Services

Applying for Social Security Disability Insurance (SSDI) can feel overwhelming. It’s important to know that the  ALS Disability Insurance Access Act of 2019  eliminates the required five-month SSDI waiting period for ALS applicants. You can apply for SSDI benefits here. Bear …

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Medicare Advantage plans directed to cover treatment for SOD1-ALS

Mark Heiden December 18, 2024Advocacy, Clinical Trials, Foundation Blog, Home Page, Support Services

Under a new directive from the Centers for Medicare and Medicaid Services (CMS), Medicare Advantage plans are now required to cover QALSODY® (tofersen), Biogen’s recently-approved treatment for people living with SOD1-ALS. We strongly support this new directive. Study results suggest …

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2024 Gift Guide for People Living With ALS and Caregivers

lesturner November 21, 2024Foundation Blog, Home Page, Support Services

                      Haga clic aquí para leer este artículo en español. Discover thoughtful and practical gift ideas in our Gift Guide for People Living with ALS, developed with the help of …

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alsals communitychicago
Cascio family photo

Introducing My ALS Decision Tool™ on Genetic Counseling and Testing for Family Members

Mark Heiden May 20, 2024Foundation eNews, Home Page, Support Services

As a registered nurse, Tina Cascio cared for several people diagnosed with ALS, including her own mother, Pamela. Prior to her mother’s passing, Tina began to experience symptoms that were eerily familiar. “I started having muscle spasms and twitching in …

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Introducing the ALS & Participation in Clinical Research Guide

lesturner May 13, 2024Foundation Blog, Home Page, Support Services

As the field of ALS research evolves, opportunities arise to participate in clinical trials and research studies that could lead to new treatments and insights into the disease. At the Les Turner ALS Foundation, we want to empower people living with …

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5 Things to Know for New ALS Caregivers

Mark Heiden May 13, 2024Foundation Blog, Home Page, Support Services

An ALS diagnosis can change someone’s life overnight. Becoming an ALS caregiver, however, is a role and an identity that you grow into.  Caring for a loved one with ALS can be extremely challenging, but it can also be very …

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ALS Awareness Month

2021 Fall Newsletter

lesturner December 7, 2021Advocacy, Foundation eNews, Home Page, Support Services

als learning seriesals walk for lifehope through caring gala

Tips for Preventing the Spread of Respiratory Disease

lesturner May 1, 2021Advocacy, Foundation Blog, Foundation eNews, Home Page, Support Services

As someone living with ALS or in contact with someone living with ALS, you should always take special precautions to safeguard your health and the health of those around you. People living with ALS are at an increased risk of respiratory problems …

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January 2021 Foundation eNews

lesturner January 5, 2021Advocacy, Foundation eNews, Home Page, Support Services

ALS Disability Insurance Access Act Signed into Law We are excited to announce that on December 22, the ALS Disability Insurance Access Act was signed into law, which waives the mandatory five-month waiting period for ALS patients to receive Social …

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alsALS Disability Insurance Access Actchicagoles turner als center at northwestern medicineles turner als foundation
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Support Services Committee News

  • Statement: “The One Big Beautiful Bill” Puts ALS Families at Risk

    July 14, 2025
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  • Faces of ALS: Trevor Storm, Running for a Reason

    May 28, 2025

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