New and Improved Clinical Trials Webpage While it may feel like much in life is on pause at the moment, there is exciting news in the ALS clinical trials and studies space, including information on the upcoming HEALEY ALS Platform …
Difficult Conversations Can Be Some of the Most Important
Making Your End-of-Life Wishes Known Author: Karen Raley Steffens, RN, CHPN, CCM ALS Support Services Coordinator “You may not control life’s circumstances but getting to be the author of your life means getting to control what you do with them.” …
How to Prepare for a Telehealth Visit
Due to the recent COVID-19 pandemic, many people, especially those living with ALS, have needed to change their routines in several ways including pivoting their medical appointments to telehealth visits. A recent article published in Brain & Life Magazine shared …
May 2020 Events eNews
Celebrating Our Heroic Nurses Nurses are heroes, plain and simple. And those of us in the ALS community know that nurses have always been essential. Despite this crisis, the amazing nurses at our Lois Insolia ALS Clinic at the Les …
May 2020 Foundation eNews
Be a Giver for #GivingTuesdayNow Today is #GivingTuesdayNow, a new global day of giving as an emergency response to the unprecedented impact of COVID-19. At the onset of the COVID-19 pandemic, we paused all in-person Support Service Team visits and …
April 2020 Events eNews
Tag for ALS From Home As you can see from our video, we’re doing Tag Days a bit differently this year. Since 1997, our Tag Days Drives have raised over $2 million to support people living with ALS and helped …
April 2020 Foundation eNews
Our Mission Continues So much has changed since our last Foundation eNews. We’ve all been asked to acclimate to a new normal. But one thing that hasn’t changed is our dedication to our Les Turner ALS family. Our ALS Support …
A Letter From Our CEO
Dear Friends, On Friday, due to the COVID-19 outbreak, the Governor of Illinois issued a statewide shelter-in-place order, similar to what we’ve seen in other parts of the country. This news creates challenges for all of us. How do we …
Telehealth – How We’re Adapting
The need to adapt to changing circumstances is not new to those with ALS. ALS requires constant attention and creativity to stay ahead of physical and emotional changes. As news continues to emerge about precautions against COVID-19, we are all …