For ALS Awareness Month, we asked members of the Les Turner ALS Foundation’s Support Services Committee to help us explore topics in ALS that people should know more about. For the first week of May, we’re looking at a day …
3 Tips for People with ALS Applying for Social Security Disability Insurance
Applying for Social Security Disability Insurance (SSDI) can feel overwhelming. It’s important to know that the ALS Disability Insurance Access Act of 2019 eliminates the required five-month SSDI waiting period for ALS applicants. You can apply for SSDI benefits here. Bear …
Medicare Advantage plans directed to cover treatment for SOD1-ALS
Under a new directive from the Centers for Medicare and Medicaid Services (CMS), Medicare Advantage plans are now required to cover QALSODY® (tofersen), Biogen’s recently-approved treatment for people living with SOD1-ALS. We strongly support this new directive. Study results suggest …
2024 Gift Guide for People Living With ALS and Caregivers
Haga clic aquí para leer este artículo en español. Discover thoughtful and practical gift ideas in our Gift Guide for People Living with ALS, developed with the help of …
Introducing My ALS Decision Tool™ on Genetic Counseling and Testing for Family Members
As a registered nurse, Tina Cascio cared for several people diagnosed with ALS, including her own mother, Pamela. Prior to her mother’s passing, Tina began to experience symptoms that were eerily familiar. “I started having muscle spasms and twitching in …
Introducing the ALS & Participation in Clinical Research Guide
As the field of ALS research evolves, opportunities arise to participate in clinical trials and research studies that could lead to new treatments and insights into the disease. At the Les Turner ALS Foundation, we want to empower people living with …
5 Things to Know for New ALS Caregivers
An ALS diagnosis can change someone’s life overnight. Becoming an ALS caregiver, however, is a role and an identity that you grow into. Caring for a loved one with ALS can be extremely challenging, but it can also be very …
Tips for Preventing the Spread of Respiratory Disease
As someone living with ALS or in contact with someone living with ALS, you should always take special precautions to safeguard your health and the health of those around you. People living with ALS are at an increased risk of respiratory problems …
January 2021 Foundation eNews
ALS Disability Insurance Access Act Signed into Law We are excited to announce that on December 22, the ALS Disability Insurance Access Act was signed into law, which waives the mandatory five-month waiting period for ALS patients to receive Social …
