Applying for Social Security Disability Insurance (SSDI) can feel overwhelming. It’s important to know that the ALS Disability Insurance Access Act of 2019 eliminates the required five-month SSDI waiting period for ALS applicants.
You can apply for SSDI benefits here. Bear in mind that not everyone is eligible for SSDI – see the requirements here.
SSDI and Medicare are two separate programs, but you apply for them together. You only have to apply for SSDI — and if you qualify, you will automatically receive Medicare disability benefits, too.
- Make sure your SSDI application indicates that you have a diagnosis of ALS. If you began your application for SSDI prior to your diagnosis, you will need to submit paperwork from your physician confirming your ALS diagnosis. Discuss with your SSA office how to expedite review of your case with confirmation of an ALS diagnosis.
- Check on the status of your application at least once a month, preferably towards the end of the month. Don’t be afraid to advocate for yourself by contacting or going to your SSA office to discuss the status of your application. Please be aware that recent staffing reductions, office closures, and policy changes at the SSA may result in delays in processing your application.
- If there is a delay in the process or a mistake in your file, reach out to someone who can help advocate for you. Contact your Les Turner ALS Foundation Support Service Coordinator to discuss your concerns and for suggestions on resources to help you. Consider reaching out to your local congressional representative’s office to initiate a congressional inquiry into your case. They can help bring attention to your case, address processing delays, and identify mistakes in the application.
