On behalf of the approximately 300,000 Americans living with a neuromuscular disease (NMD), the undersigned 40 patient advocacy organizations strongly urge the National Institutes of Health (NIH) to immediately reverse and retract “Supplemental Guidance to the 2024 NIH Grants Policy …
2024 Impact Report
Your support of the Les Turner ALS Foundation has made an incredible difference in the lives of people with ALS, their families, their caregivers, and everyone who has lost someone to this disease. Every time you made a donation, held …
URGENT: Tell Congress to Oppose Catastrophic Research Cuts
The National Institutes of Health (NIH) recently announced a major reduction in grant funding that would have a catastrophic impact on research, especially for neuromuscular diseases like ALS. NIH funding has led to amazing discoveries, including the underlying mechanisms of …
Advocacy in Washington DC
This week, we joined over 50 advocates in Washington, DC at the “More Than Our Stories” conference to discuss priorities for 2025, focusing on research investment, quality of care, and support for those living with ALS and their caregivers. Our …
February 2025 Foundation eNews
Celebrating a force for change At the Hope Through Caring Gala, we’re proud to honor Jean Swidler and Mindy Uhrlaub, founders of End the Legacy, with the Harvey and Bonny Gaffen Advancements in ALS Award. Jean and Mindy’s mission is deeply …