One distinct hallmark of ALS is the dysfunction of a tiny protein called TDP-43. This protein normally lives within a cell’s nucleus, but in the case of ALS, it becomes dysfunctional, migrates out, and aggregates into the cell’s cytoplasm. The …
March 2026 Foundation eNews
Registration is closing soon for the Hope Through Caring Gala Join us on Saturday, April 11, at the Radisson Blu Aqua Hotel for our annual Hope Through Caring Gala. This elegant evening celebrates the courage of families like the Goldbergs …
How Humor and High-Tech Power the Goldberg Home
For Dr. Andrew Goldberg, life has always been about solving complex puzzles. As a former Chief Technology Officer and Vice President at AbbVie, he spent over 30 years bringing technological advances to the world of pharmaceuticals. But today, the 53-year-old …
March 2026 Foundation eNews
Together with You, We Made a World of Difference for ALS Families Every 90 minutes, someone in the US is diagnosed with ALS. In 2025, we turned your support into life-changing action by making every one of those minutes count. …
ALS organizations advocate for FY27 funding priorities to Congress
Delivered to the offices of Sen. Susan Collins and Sen. Patty Murray on the U.S. Senate Committee on Appropriations, and the offices of Rep. Tom Cole and Rep. Rosa DeLauro on the U.S. House Committee on Appropriations. March 4, 2026 …
A Love Language of Strength: The Kostrzeski Family
Humor, heart, and a 100-foot circle of care. For Lisa Kostrzeski, a 43-year-old Chicago native and registered nurse of 22 years, these are the tools her family uses to navigate life with ALS. “I’ve always been a talker, and I …
2025 Impact Report
Every moment is an opportunity. It’s estimated that every 90 minutes, someone is diagnosed with ALS. But how many more minutes will pass before that person has the chance to receive care at a multidisciplinary ALS clinic that can extend …
