The Access for ALL in ALS (ALL ALS) Consortium is a nationwide, NIH-funded clinical research initiative in the United States that collects and shares biological samples and clinical data to accelerate amyotrophic lateral sclerosis (ALS) research. Aeryn Hopwood and Emma Schmidt …
September 2026 Foundation eNews
Team Arrivederci ALS isn’t waving the white flag. Mike Leopold’s dad was diagnosed with ALS in early 2024, shortly after hand surgery revealed a discrepancy in tests. “I believe we can choose to let this destroy us or unite us,” …
September 2026 Foundation eNews
Walking for Stephanie keeps her light shining Stephanie Kennedy was, as her daughter Elizabeth describes her, “the brightest light in the room.” When Stephanie was diagnosed with ALS in February 2020, that light never dimmed — it simply found new …
September 2026 Foundation eNews
From a team of three to a growing force: Special Agent Marshman returns When Cliff Marshman was diagnosed with ALS in September 2024, the very next day was the ALS Walk for Life. His wife knew she had to do …
ALS Learning Series: Cognitive and Language Impairments in ALS & ALS-FTD: Signs & Strategies
In this webinar, Marie Saxon, MS, CCC-SLP will review the most commonly observed cognitive and language symptoms in individuals with ALS and FTD, as well as their functional implications. Symptoms include reduced executive functioning, attention, memory, social cognition, and communication that …
August 2026 Foundation eNews
Getting the gang back together: Rob Akins and the joy of Rob’s Mob For more than 20 years, Rob Akins has lived with ALS — and for the past three, he’s walked with Rob’s Mob, the team that bears his …
August 2026 Foundation eNews
Family, faith, and a reason to walk together For Michael Jaquez and his family, the ALS Walk for Life is about one thing: seeing his mom, Luz, smile. Diagnosed with ALS in early 2025, Luz faced the first months with …
ALS Learning Series: ALS-FTD Clinicopathological Overlap
ALS and frontotemporal dementia (FTD) are increasingly understood to share underlying biological connections, and some people living with ALS may also experience changes in thinking, behavior, or personality. Join Dr. David Irwin from Penn Medicine, as he explores the relationship …
July 2026 Foundation eNews
Kravitz Krew is going 22-years strong at the ALS Walk for Life For Gary Kravitz, the ALS Walk for Life is a tradition over two decades in the making. Since his first Walk at Montrose Harbor in 2004, Gary and …
ALS Learning Series: Traveling with ALS: What to Know Before You Go
Travel and exploration don’t need to stop with an ALS diagnosis. Join us for our July ALS Learning Series on travel. Kari Brouwer, Craig and Emily Mandell, and Monica Meder O’Callaghan will come together to share honest stories and hard-won advice about navigating travel with ALS. …
