ALS and frontotemporal dementia (FTD) are increasingly understood to share underlying biological connections, and some people living with ALS may also experience changes in thinking, behavior, or personality. Join Dr. David Irwin from Penn Medicine, as he explores the relationship …
July 2026 Foundation eNews
Kravitz Krew is going 22-years strong at the ALS Walk for Life For Gary Kravitz, the ALS Walk for Life is a tradition over two decades in the making. Since his first Walk at Montrose Harbor in 2004, Gary and …
ALS Learning Series: Traveling with ALS: What to Know Before You Go
Travel and exploration don’t need to stop with an ALS diagnosis. Join us for our July ALS Learning Series on travel. Kari Brouwer, Craig and Emily Mandell, and Monica Meder O’Callaghan will come together to share honest stories and hard-won advice about navigating travel with ALS. …
June 2026 Foundation eNews
Unite with us along the lakefront for a world free from ALS Join us at Soldier Field on Saturday, Oct. 24, for the ALS Walk for Life — the largest ALS walk in the Midwest. Registration is officially open, and …
ALS Learning Series: The ALS Turbocharged Living Scale: A New Way to Measure What Matters
Join us for an inspiring one-hour conversation with Peggy Plews-Ogan, MD, of the Hummingbird Fund, as she shares the story behind the ALS Turbocharged Living Scale, a powerful framework developed by her late husband. The scale offers a meaningful way …
June 2026 Foundation eNews
You helped us raise awareness all May With ALS Awareness Month coming to a close at the end of last month, we wanted to acknowledge once more the community members who made these videos possible. Throughout the month, we focused …
May 2026 Foundation eNews
Help us share stories from our community This May, we’re continuing to illuminate the realities of the disease to foster deeper understanding and spark change. Throughout ALS Awareness Month, the focus is on the financial impact, the diagnostic journey, the …
May 2026 Foundation eNews
Voices and visions for ALS Awareness Month This May, we’re highlighting the profound realities of the disease to foster deeper understanding and drive meaningful change. Throughout the month, we’re focusing on the significant financial impact, the complex diagnostic journey, the …
April 2026 Foundation eNews
The Hope Through Caring Gala was a smash hit! We are still celebrating the success of our 38th Annual Hope Through Caring Gala held on Saturday, April 11, at the Radisson Blu Aqua Hotel. We are thrilled to share that …
ALS Learning Series: Finding Your People: Real Stories of Community After an ALS Diagnosis
An ALS diagnosis can change everything — but it doesn’t mean navigating the road ahead alone. In this panel discussion, Rob, Tina, Kelly, and Juan, people living with ALS, will share their personal stories of finding community, getting involved with organizations like Her …
