Leo’s Motor Neurons, Motoring at the Walk This September marks Sue Carrel’s 10th ALS Walk for Life—nine of them as the proud captain of Leo’s Motor Neurons, the team she formed with her husband Leo, who lived with ALS until …
Participation in the National ALS Registry
ALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease, its causes, and how to fight it. Join us for our January ALS Learning series …
Better Bowel Days: Managing the Burden of Constipation in People living with ALS
Join us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in this population, examine the role of dietary fiber, and discuss how hydration supports bowel health. The …
Making Daily Life Easier: Occupational Therapy Solutions for People Living with ALS
Join us for an informative session about how occupational therapy can support your daily activities and quality of life while living with ALS. Becca Schroeder, MOT, OTR/L, will explore practical strategies, adaptive equipment, and energy conservation techniques that can help …
August 2025 Foundation eNews
Walking for my dad, and the ALS community This September, Alex Willard will walk for the first time in honor of his dad, Jim, who was diagnosed with ALS in 2023. “Our story isn’t a sad one,” Alex says. “It’s …
August 2025 Foundation eNews
No Quitters for Q: walking strong for 16 years Since 2009, Ninfa Queyquep has led her team, No Quitters for Q, at the ALS Walk for Life in honor of her late husband, Eric. “He was diagnosed in July, and …
July 2025 Foundation eNews
Two decades of walking strong — Gary Kravitz and his crew Since 2004, Gary Kravitz has been a constant presence at the ALS Walk for Life. “I’ve signed up 20 years in a row,” he says. “I only missed once—when …
July 2025 Foundation eNews
Walking for Richie—and for each other For more than a decade, the D’Ambrosia family has come together for the ALS Walk for Life, honoring the man who brought them to the cause. Diagnosed in 2013 and living in Bronzeville near …
ALS Learning Series: Voice Preservation Beyond Recording: Creating and Using My Preserved Voice
Join us for our July ALS Learning Series featuring a comprehensive review of current best practices and tools in Message Banking, Voice Banking, and Voice Cloning, including the role of Artificial Intelligence (AI) in voice preservation. After a diagnosis of …
June 2025 Foundation eNews
Get ready for the biggest ALS event in the Midwest “This is a great event, there’s a DJ and things for kids to do. The location is great and helps bring out a crowd. I love the walk and the …
