Foundation News Gather up your teams – it’s time to walk! Registration for this year’s ALS Walk for Life is open! Join the Les Turner ALS family on Saturday, Sept. 24 at Soldier Field for our largest gathering of …
FDA grants priority review for new SOD1-ALS treatment
The U.S. Food and Drug Administration (FDA) has accepted a New Drug Application for tofersen, a drug in development by Biogen for treatment of superoxide dismutase 1 (SOD1) amyotrophic lateral sclerosis (ALS) – and granted priority review for the application. …
Faces of ALS: Renato
For Renato, despite having been a successful business owner and a politician, his family came first – even after his ALS diagnosis. Caring for his family and specifically his wife was his top priority. As many of us know, being …
July 2022 Foundation eNews
Foundation News The Foundation represents the European Network to Cure ALS (ENCALS) In June, our CEO, Andrea Pauls Backman, attended the European Network to Cure ALS (ENCALS) conference in Edinburgh, Scotland, along with 650 ALS/MND researchers, patients, and advocates. …
Donor Spotlight: Richard A. Perritt Charitable Foundation
Richard A. Perritt had a remarkable career. He performed eye surgeries on two popes and several international dignitaries, and he was responsible for several breakthroughs as an ophthalmologist. For 35 years, Ron Tyrpin served as his investment adviser. When Dr. …
Faces of ALS: Frank Granata
Faces of ALS: Frank Granata – Staying active and enjoying life As a finance executive, Frank Granata often traveled for business. In 2018, after having lived in India for two years for a work assignment, Frank began having neurological issues …
