July 2022 Foundation eNews

Emily Cerbone Foundation eNews, Home Page


Foundation News

Gather up your teams – it’s time to walk!

Registration for this year’s ALS Walk for Life is open! Join the Les Turner ALS family on Saturday, Sept. 24 at Soldier Field for our largest gathering of the year and a day full of celebration, hope, and courage.

The ALS Walk for Life includes a two-mile stroll along Chicago’s beautiful lakefront and through Soldier Field stadium, leading you to the finish line. With food, music, and activities, the day is meant for all those who love or have loved someone living with ALS to come together.

Signing up individually or creating a team allows you to fundraise in honor or memory of a loved one diagnosed with ALS and helps make it possible for the Foundation to care for those affected by the disease, guide them to answers, support them and their loved ones, and provide hope through scientific research.

If you have any questions, or would like to volunteer, please contact us!


New caregiver information guides

While your loved one’s ALS diagnosis changed your life overnight, becoming a caregiver is a role and an identity you grow into. Being a caregiver does not have to erase or replace the other parts of who you are. Taking care of yourself can revitalize your energy and help you realize that you are not alone.

To support caregivers, we’ve published three new ALS Information Guides: ALS & Relationships, Sex, and Intimacy; ALS & Caregiver Self-Care; ALS & Children. In these guides, you will find tips and information on changing relationship dynamics, symptoms and causes of caregiver burnout, how to talk to children about ALS, and how young people experience caregiving.

Visit LesTurnerALS.org/Caregiver to read the new guides and learn more about making decisions on caregiving.

Strike Out ALS was a success — thank you!

Thank you to everyone who participated in this year’s Strike Out ALS 5k and 1 Mile Run, Walk & Roll – we had a blast! We enjoyed seeing all of you in-person supporting one another and racing towards a cure – thank you!

And who could forget the fun after the race? If you ask us, there’s no better way to end a successful night than with food trucks, music, and camaraderie!

P.S. If you couldn’t join us or want to look through all the photos from the event, they’ll be available soon!

Patient Fellows Program at International Symposium on ALS/MND

The 2022 International Symposium on ALS/MND will be held virtually on Dec. 6-9. People who have been diagnosed with ALS or MND are invited to apply for the Patient Fellows Program and participate in the largest annual symposium dedicated to ALS/MND research. Fellowships have also been reserved for caregivers and non-symptomatic gene carriers.

Fellowships include prepaid registration to attend the symposium and opportunities to share valuable insights and experiences with other people who are living with ALS alongside ALS researchers from around the world.

Applications can be completed online. The deadline is Friday, Aug. 19. If you are chosen, please notify us – we’d love to share your story!