Kevin Patula (left) and Chris Fusco at Paw Paw Lake in Michigan, July 2025 Kevin Patula and Chris Fusco became close friends in first grade. More than 45 years later, they’re navigating a diagnosis that neither saw coming — and …
Leading ALS Organizations Call for Swift Passage of the ACT for ALS Reauthorization Act
June 18, 2026 The Honorable Mike Johnson, Speaker U.S. House of Representatives H-232, The Capitol Washington, D.C. 20515 The Honorable Hakeem Jeffries, Minority Leader U.S. House of Representatives 2267 Rayburn House Office Building Washington, DC 20515 Re: Please Swiftly Pass …
June 2026 Foundation eNews
Unite with us along the lakefront for a world free from ALS Join us at Soldier Field on Saturday, Oct. 24, for the ALS Walk for Life — the largest ALS walk in the Midwest. Registration is officially open, and …
Researchers discover cause of neuron excitability in ALS, leading to new potential treatment
Digging deep into the molecular mechanisms behind ALS, researchers at the Les Turner ALS Center at Northwestern Medicine have discovered why nerve cells overfire in the disease. Not only that—they have also designed a new drug to stop this overfiring, …
June 2026 Foundation eNews
You helped us raise awareness all May With ALS Awareness Month coming to a close at the end of last month, we wanted to acknowledge once more the community members who made these videos possible. Throughout the month, we focused …
Together, We Helped Secure $300,000 for ALS Care and Research in Illinois
This year marked an important achievement for the ALS community in Illinois with the approval of $300,000 in state funding for ALS care and research. State funding will help expand care coordination, increase support for families, improve access to multidisciplinary …
