Every Moment Counts: Brian and Katy’s ALS Journey This holiday season, join us in making an impact on families like Brian Davis, Katy McNeil, and their two young children, Ada and Penny. Brian’s journey, from a difficult diagnosis to care …
November 2023 Foundation eNews
ALS Better Care Act Makes Its Way to the Senate Exciting news from Capitol Hill: the ALS Better Care Act has been introduced in the U.S. Senate, a crucial step towards improving access to multidisciplinary care for those battling ALS. …
October 2023 Foundation eNews
Roll the Dice for a Great Cause! Dive into an evening of thrills at the 17th Annual All In For ALS Casino Night this Saturday, Nov. 4, from 7-11 p.m. at the East Bank Club in Chicago, hosted by our …
October 2023 Foundation eNews
Our 17th Annual Casino Night is Almost Here Step into a night of excitement at the 17th annual All In For ALS Casino Night on Saturday, Nov. 4, from 7-11 p.m. at the East Bank Club in Chicago. Immerse yourself in …
October 2023 Foundation eNews
A Day of Hope and Celebration in Pictures That’s a wrap on the 22nd annual ALS Walk for Life, and it was a huge hit. You not only raised funds for care, advocacy, and research – you looked great doing it! Over 2,000 …
September 2023 Foundation eNews
The ALS Walk for Life is here! The ALS community is coming together this Saturday, Sept. 23 at Soldier Field in Chicago. If you and your family have been affected by this terrible disease, there’s nothing like the experience of …
September 2023 Foundation eNews
Meet the Kravitz Krew: Two Decades of Walkin’ Gary Kravitz is the driving force behind the Kravitz Krew, a team dedicated to making a difference in the fight against ALS. With an impressive 20 years of participation, Gary’s passion is …
August 2023 Foundation eNews
Team George’s Generals: Join us at the ALS Walk for Life Team George’s Generals is lining up on Saturday, Sept. 23 for the ALS Walk for Life. Alyssa Poniatowski leads this team in honor of her late father George, who …
‘New’ ALS gene destabilizes neuron’s structure and chokes off its nucleus
As many as 2% of all ALS cases have been linked to mutations in the gene NEK1, making it one of the top-known causes of the disease. But it wasn’t known how the mutated gene disrupts the function of the …
August 2023 Foundation eNews
Marching On: Remembering Richie at the ALS Walk for Life In memory of his beloved father Richie, Matthew D’Ambrosia and Team Richie have been involved in the ALS Walk for Life for over a decade. After Richie’s diagnosis in 2013, …
