You helped us raise awareness all May With ALS Awareness Month coming to a close at the end of last month, we wanted to acknowledge once more the community members who made these videos possible. Throughout the month, we focused …
May 2026 Foundation eNews
Help us share stories from our community This May, we’re continuing to illuminate the realities of the disease to foster deeper understanding and spark change. Throughout ALS Awareness Month, the focus is on the financial impact, the diagnostic journey, the …
ALS is driven by a domino‑like chain reaction that begins in nerve cells
Study links TDP‑43 pathology to inflammation, disease progression and survival across ALS subtypes. Study used cutting-edge techniques to analyze blood, spinal cord samples from hundreds of patients Immune signatures differ by ALS type (genetic or non-genetic), disease stage, speed of …
Clinical trials test potential new gene therapies for inherited ALS
As director of the clinical research program at the Les Turner ALS Center at Northwestern Medicine, Senda Ajroud-Driss has seen her share of potential ALS therapies. Though many drugs have not made it past clinical trials, recent advances have given …
May 2026 Foundation eNews
Voices and visions for ALS Awareness Month This May, we’re highlighting the profound realities of the disease to foster deeper understanding and drive meaningful change. Throughout the month, we’re focusing on the significant financial impact, the complex diagnostic journey, the …
Looking at bridges between neurons for clues to ALS
To understand neurodegenerative diseases like ALS, researchers are looking beyond individual neurons and examining tiny bridges that connect neurons to other neurons. These bridges, called tunneling nanotubes (TNTs), shuttle molecules and proteins between cells, including small structures with specific functions …
April 2026 Foundation eNews
The Hope Through Caring Gala was a smash hit! We are still celebrating the success of our 38th Annual Hope Through Caring Gala held on Saturday, April 11, at the Radisson Blu Aqua Hotel. We are thrilled to share that …
April 2026 Foundation eNews
Join us this Saturday for the Hope Through Caring Gala The 38th annual Hope Through Caring Gala arrives this Saturday, April 11, at the Radisson Blu Aqua Hotel. We are the leader in comprehensive ALS care in Chicagoland, providing individualized …
Searching for the cause of ALS, researchers look to metabolism within cells
One distinct hallmark of ALS is the dysfunction of a tiny protein called TDP-43. This protein normally lives within a cell’s nucleus, but in the case of ALS, it becomes dysfunctional, migrates out, and aggregates into the cell’s cytoplasm. The …
March 2026 Foundation eNews
Registration is closing soon for the Hope Through Caring Gala Join us on Saturday, April 11, at the Radisson Blu Aqua Hotel for our annual Hope Through Caring Gala. This elegant evening celebrates the courage of families like the Goldbergs …










