May 2021 Foundation eNews

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How Do You #TakeABreath? Breathing. It’s something that can easily be taken for granted. But for many people living with ALS, breathing can often be a daily challenge. Our #TakeABreath campaign during ALS Awareness Month in May allows you to share …

April 2021 Foundation eNews

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Grief & Loss in Children and Youth in Families with ALS: April ALS Learning Series Last month, our ALS Learning Series webinar focused on talking with children about ALS. This Thursday, April 8 at 12pm CST, Dr. Melinda Kavanaugh returns …

March 2021 Foundation eNews

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Newly Discovered Compound Found to Reverse ALS Neuron Damage “We have identified the first compound that improves the health of upper motor neurons that become diseased,” shares Hande Ozdinler, PhD, senior author of the study along with Richard B. Silverman, …

February 2021 Foundation eNews

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Therapeutic Potential for New ALS Drug According to a recent study published in JAMA Neurology, ezogabine, an experimental drug, is found to have potential therapeutic possibilities for ALS treatment. “Most importantly, ezogabine decreased cortical and spinal motor neuron excitability in …

January 2021 Foundation eNews

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ALS Disability Insurance Access Act Signed into Law We are excited to announce that on December 22, the ALS Disability Insurance Access Act was signed into law, which waives the mandatory five-month waiting period for ALS patients to receive Social …

December 2020 Foundation eNews

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Be a Giver this Giving Tuesday This holiday season, your tax-deductible gift provides life-changing help to a person living with ALS. There is no better time to kick off your end of year giving than today, Giving Tuesday – the …

November 2020 Foundation eNews

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Empowering through ALS Education We are excited to launch our new online learning series aimed at empowering our ALS community through the latest information and insights. Educational webinars and interactive Q&A’s covering a diverse array of topics, from telemedicine to …

October 2020 Foundation eNews

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Join our 10th Annual Les Turner Symposium on ALS – Monday, November 9 Registration is now open for our 10th Annual Symposium, hosted by our own Les Turner ALS Center at Northwestern Medicine. This year’s event will be held virtually on …