FOUNDATION NEWS AMX0035 May Slow ALS Progression and Extend Life On September 15, Amylyx Pharmaceuticals announced its intention to submit a New Drug Application to the FDA for AMX0035 for the treatment of ALS. If the New Drug Application is …
September 2021 Foundation eNews
ALS Walk for Life – Honoring Teams We will be celebrating our 20th Anniversary of the ALS Walk for Life on September 18. As we honor all teams, here’s a look at two – a team that has been with …
August 2021 Foundation eNews
The ALS Walk for Life is September 18 The 20th anniversary of our ALS Walk for Life is returning to Chicago’s lakefront on Saturday, September 18! Our signature event features a beautiful two-mile stroll along the lakefront and finishes at …
July 2021 Foundation eNews
StrikeOut 5K and 1 Mile Run, Walk & Roll is back, register today! We are exicted to all be back together in-person for our Summer signature event on Thursday, July 22, at Guaranteed Rate Field, home of the Chicago White …
June 2021 Foundation eNews
Celebrating Lou Gehrig Day with Jonathan Eig and Lin Brehmer Join longtime friends of our Les Turner ALS family, Jonathan Eig, acclaimed New York Times best-selling author of ‘Luckiest Man: The Life and Death of Lou Gehrig,’ and renowned Chicago …
May 2021 Foundation eNews
How Do You #TakeABreath? Breathing. It’s something that can easily be taken for granted. But for many people living with ALS, breathing can often be a daily challenge. Our #TakeABreath campaign during ALS Awareness Month in May allows you to share …
Tips for Preventing the Spread of Respiratory Disease
As someone living with ALS or in contact with someone living with ALS, you should always take special precautions to safeguard your health and the health of those around you. People living with ALS are at an increased risk of respiratory problems …
April 2021 Foundation eNews
Grief & Loss in Children and Youth in Families with ALS: April ALS Learning Series Last month, our ALS Learning Series webinar focused on talking with children about ALS. This Thursday, April 8 at 12pm CST, Dr. Melinda Kavanaugh returns …
March 2021 Foundation eNews
Newly Discovered Compound Found to Reverse ALS Neuron Damage “We have identified the first compound that improves the health of upper motor neurons that become diseased,” shares Hande Ozdinler, PhD, senior author of the study along with Richard B. Silverman, …
February 2021 Foundation eNews
Therapeutic Potential for New ALS Drug According to a recent study published in JAMA Neurology, ezogabine, an experimental drug, is found to have potential therapeutic possibilities for ALS treatment. “Most importantly, ezogabine decreased cortical and spinal motor neuron excitability in …